First BMB in 1 1/2 years

[Guest guest]

Hi All,

Since I got word 2 weeks ago that I had 3 interphase cells in my FISH, I have

had a quantitative PCR (no results yet), lots of other tests as part of a

research project at NIH and today a BMB. I should know a lot in a week or so

where I stand. I repeat something I said a week ago. Dr. Goldman, well

regarded as a CML expert in the UK is doing CML research at NIH and he said

quantitative PCRs are essential and that Europe is 10 years ahead of the U.S. in

doing them. Start nagging! They can only be read at certain labs and they're

all different but still worth the effort.

Also, four years into CML I was being told that as long as I had regular FISH

that I wouldn't need BMBs. I knew that was wrong and once again the patient

knew more than the doc. Don't get lazy about your testing. Nag, nag, nag.

L

[Guest guest]

Hi ,

Thanks for sharing all this expert opinion from Dr. Goldman.

The experts agree..........bmbs once a year..........grit your teeth and

endure it

or if you doc is that bad, find someone else to do it.

And anyone can get a blood sample to a cancer center for a QPCR.

You are right about educating our doctors about the correct 'standard of care'.

Thanks for posting this,

C.

At 04:30 PM 6/27/05 -0400, you wrote:

>Hi All,

>

>Since I got word 2 weeks ago that I had 3 interphase cells in my FISH, I

>have had a quantitative PCR (no results yet), lots of other tests as part

>of a research project at NIH and today a BMB. I should know a lot in a

>week or so where I stand. I repeat something I said a week ago. Dr.

>Goldman, well regarded as a CML expert in the UK is doing CML research at

>NIH and he said quantitative PCRs are essential and that Europe is 10

>years ahead of the U.S. in doing them. Start nagging! They can only be

>read at certain labs and they're all different but still worth the effort.

>

>Also, four years into CML I was being told that as long as I had regular

>FISH that I wouldn't need BMBs. I knew that was wrong and once again the

>patient knew more than the doc. Don't get lazy about your testing. Nag,

>nag, nag.

>

> L

>

>

[Guest guest]

Hi ,

As it turned out, my onc was very good with the BMB. The aspiration was more

painful than usual but maybe he just did it too fast or something. Anyway, it

was fine. Now I'm just waiting for results. Will report when I have them.

L

Re: [ ] First BMB in 1 1/2 years

Hi ,

Thanks for sharing all this expert opinion from Dr. Goldman.

The experts agree..........bmbs once a year..........grit your teeth and

endure it

or if you doc is that bad, find someone else to do it.

And anyone can get a blood sample to a cancer center for a QPCR.

You are right about educating our doctors about the correct 'standard of

care'.

Thanks for posting this,

C.

At 04:30 PM 6/27/05 -0400, you wrote:

>Hi All,

>

>Since I got word 2 weeks ago that I had 3 interphase cells in my FISH, I

>have had a quantitative PCR (no results yet), lots of other tests as part

>of a research project at NIH and today a BMB. I should know a lot in a

>week or so where I stand. I repeat something I said a week ago. Dr.

>Goldman, well regarded as a CML expert in the UK is doing CML research at

>NIH and he said quantitative PCRs are essential and that Europe is 10

>years ahead of the U.S. in doing them. Start nagging! They can only be

>read at certain labs and they're all different but still worth the effort.

>

>Also, four years into CML I was being told that as long as I had regular

>FISH that I wouldn't need BMBs. I knew that was wrong and once again the

>patient knew more than the doc. Don't get lazy about your testing. Nag,

>nag, nag.

>

> L

>

>