Re: blood clots, bruises, platelets

[Guest guest]

bloody nose ... very awkward when I'm at work.

dlielc wrote:

> Hi:

>

> Some people have been writing about having blood clots or

> conditionswhich appear to be blood clots. I have a huge, huge

> bruise--

> ugly and all on the inner right thigh. I've had this bruise for about

>

> seven weeks. The primary care doctor thought it was a superficial

> thrombophlebitis. To check it out, she sent me for an ultrasound to

> rule out a clot in the vein. I had that done yesterday. As I haven't

>

> heard anything, I'm assuming it's not a clot. However, I'll call

> tommorrow just to make certain.

>

> My platelets are low, aobut 64000. Wonder if anyone else has had

> vascular problems, and how much it is connected with the gleevec.

> Thanks, Jean.

>

>

>

>

>

>

[Guest guest]

btw, if you have a bloody nose accompanied by dizziness, what does that

mean?

I had a big bruise just like the one you describe and it last

for weeks. In fact, about four months later, it is still faintly

discernible. My doc didn't think it was significant. It faded over time.

Rosen-Lum wrote:

> bloody nose ... very awkward when I'm at work.

>

> dlielc wrote:

>

> > Hi:

> >

> > Some people have been writing about having blood clots or

> > conditionswhich appear to be blood clots. I have a huge, huge

> > bruise--

> > ugly and all on the inner right thigh. I've had this bruise for

> about

> >

> > seven weeks. The primary care doctor thought it was a superficial

> > thrombophlebitis. To check it out, she sent me for an ultrasound to

>

> > rule out a clot in the vein. I had that done yesterday. As I

> haven't

> >

> > heard anything, I'm assuming it's not a clot. However, I'll call

> > tommorrow just to make certain.

> >

> > My platelets are low, aobut 64000. Wonder if anyone else has had

> > vascular problems, and how much it is connected with the gleevec.

> > Thanks, Jean.

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi MJ,

I know that recently reported that she had some blood clots

and Kat from Austrailia had them too a while ago. I don't know if the

clots have been proven without a doubt to be due to Gleevec though.

Good luck,

Tracey

> Hi:

>

> Some people have been writing about having blood clots or

> conditionswhich appear to be blood clots. I have a huge, huge

bruise--

> ugly and all on the inner right thigh. I've had this bruise for

about

> seven weeks. The primary care doctor thought it was a superficial

> thrombophlebitis. To check it out, she sent me for an ultrasound to

> rule out a clot in the vein. I had that done yesterday. As I

haven't

> heard anything, I'm assuming it's not a clot. However, I'll call

> tommorrow just to make certain.

>

> My platelets are low, aobut 64000. Wonder if anyone else has had

> vascular problems, and how much it is connected with the gleevec.

> Thanks, Jean.

[Guest guest]

> > Hi:

> >

> > Some people have been writing about having blood clots or

> > conditionswhich appear to be blood clots. I have a huge, huge

> bruise--

> > ugly and all on the inner right thigh. I've had this bruise for

> about

> > seven weeks. The primary care doctor thought it was a

superficial

> > thrombophlebitis. To check it out, she sent me for an ultrasound

to

> > rule out a clot in the vein. I had that done yesterday. As I

> haven't

> > heard anything, I'm assuming it's not a clot. However, I'll call

> > tommorrow just to make certain.

> >

> > My platelets are low, aobut 64000. Wonder if anyone else has had

> > vascular problems, and how much it is connected with the

gleevec.

> > Thanks, Jean.

>

>

>

>

>

>

[Guest guest]

Hi

Sorry I didn't reply right away, but my husband and I were out of town. Your

question is actually one I was going to post to the group myself. For a few

months now my husband has been bothered by a sore left arm. He noticed that

when he lifted that arm part of the tendons or ligaments on the underneath side

of the upper arm appeared to have pulled away and was sticking out a bit. It was

sore but otherwise didn't seem to bother him. To make a long story short he

finally went to see an orthapaedic surgeon about it and was told that it wasn't

a problem with the tendons, ligaments or muscles of the arm, but was a

thrombosed vein. He's informed him CML doctors at s Hopkins and MD

and no one seems particularly concerned about his vein, but they do want to

watch it. Dr. Cortes at MD said they have seen a few issues with blood

clots for their patients on Gleevec but that it is very rare. My husband is on

800 mg and also takes aranesp for anemia. They're thinking

of reducing his aranesp dose in case that was the cause of the clot in this

vein. The vein is superficial and that seems to suggest to the doctors that

this is not a serious problem. But I wonder how many other people on the list

have had clotting problems while on Gleevec. There is , my husband and

you. My husband intends to see a vascular specialist and I will let you know

what he/she says about this.

Hope your leg gets better very soon. Has your doctor recommended doing anything

for this?

Adrienne

dlielc <MJHodor@...> wrote:

Hi:

Some people have been writing about having blood clots or

conditionswhich appear to be blood clots. I have a huge, huge bruise--

ugly and all on the inner right thigh. I've had this bruise for about

seven weeks. The primary care doctor thought it was a superficial

thrombophlebitis. To check it out, she sent me for an ultrasound to

rule out a clot in the vein. I had that done yesterday. As I haven't

heard anything, I'm assuming it's not a clot. However, I'll call

tommorrow just to make certain.

My platelets are low, aobut 64000. Wonder if anyone else has had

vascular problems, and how much it is connected with the gleevec.

Thanks, Jean.

[Guest guest]

--

Hi Adrienne:

I've just an MRI. After those results and checking on platelets,

we'll see what's going on. The doctor might decide just to keep an

eye on it unless there is something else involved. My problems seem

to involve rather heavy bleeding with problems trying to clot I

think. I'll let you know by the middle of the week what's going on.

In the meantime, the hematologist should have returned to town.

CML certainly complicates things. If it's a small tumor rather than

a hematoma, what then? Even a minor surgery seems to be a very

complicated thing with the platelets and tendency to bleed. I'm

praying that it turns out to be a small hematoma which will

eventually recede. Thanks, MJH

- In , Adrienne <artist934@y...> wrote:

> Hi

>

> Sorry I didn't reply right away, but my husband and I were out of

town. Your question is actually one I was going to post to the group

myself. For a few months now my husband has been bothered by a sore

left arm. He noticed that when he lifted that arm part of the

tendons or ligaments on the underneath side of the upper arm appeared

to have pulled away and was sticking out a bit. It was sore but

otherwise didn't seem to bother him. To make a long story short he

finally went to see an orthapaedic surgeon about it and was told that

it wasn't a problem with the tendons, ligaments or muscles of the

arm, but was a thrombosed vein. He's informed him CML doctors at

s Hopkins and MD and no one seems particularly concerned

about his vein, but they do want to watch it. Dr. Cortes at MD

said they have seen a few issues with blood clots for their

patients on Gleevec but that it is very rare. My husband is on 800

mg and also takes aranesp for anemia. They're thinking

> of reducing his aranesp dose in case that was the cause of the

clot in this vein. The vein is superficial and that seems to suggest

to the doctors that this is not a serious problem. But I wonder how

many other people on the list have had clotting problems while on

Gleevec. There is , my husband and you. My husband intends

to see a vascular specialist and I will let you know what he/she says

about this.

>

> Hope your leg gets better very soon. Has your doctor recommended

doing anything for this?

>

> Adrienne

>

> dlielc <MJHodor@a...> wrote:

> Hi:

>

> Some people have been writing about having blood clots or

> conditionswhich appear to be blood clots. I have a huge, huge

bruise--

> ugly and all on the inner right thigh. I've had this bruise for

about

> seven weeks. The primary care doctor thought it was a superficial

> thrombophlebitis. To check it out, she sent me for an ultrasound

to

> rule out a clot in the vein. I had that done yesterday. As I

haven't

> heard anything, I'm assuming it's not a clot. However, I'll call

> tommorrow just to make certain.

>

> My platelets are low, aobut 64000. Wonder if anyone else has had

> vascular problems, and how much it is connected with the gleevec.

> Thanks, Jean.

>

>

>

>

>

>

[Guest guest]

--

Hi Adrienne:

I've just an MRI. After those results and checking on platelets,

we'll see what's going on. The doctor might decide just to keep an

eye on it unless there is something else involved. My problems seem

to involve rather heavy bleeding with problems trying to clot I

think. I'll let you know by the middle of the week what's going on.

In the meantime, the hematologist should have returned to town.

CML certainly complicates things. If it's a small tumor rather than

a hematoma, what then? Even a minor surgery seems to be a very

complicated thing with the platelets and tendency to bleed. I'm

praying that it turns out to be a small hematoma which will

eventually recede. Thanks, MJH

- In , Adrienne <artist934@y...> wrote:

> Hi

>

> Sorry I didn't reply right away, but my husband and I were out of

town. Your question is actually one I was going to post to the group

myself. For a few months now my husband has been bothered by a sore

left arm. He noticed that when he lifted that arm part of the

tendons or ligaments on the underneath side of the upper arm appeared

to have pulled away and was sticking out a bit. It was sore but

otherwise didn't seem to bother him. To make a long story short he

finally went to see an orthapaedic surgeon about it and was told that

it wasn't a problem with the tendons, ligaments or muscles of the

arm, but was a thrombosed vein. He's informed him CML doctors at

s Hopkins and MD and no one seems particularly concerned

about his vein, but they do want to watch it. Dr. Cortes at MD

said they have seen a few issues with blood clots for their

patients on Gleevec but that it is very rare. My husband is on 800

mg and also takes aranesp for anemia. They're thinking

> of reducing his aranesp dose in case that was the cause of the

clot in this vein. The vein is superficial and that seems to suggest

to the doctors that this is not a serious problem. But I wonder how

many other people on the list have had clotting problems while on

Gleevec. There is , my husband and you. My husband intends

to see a vascular specialist and I will let you know what he/she says

about this.

>

> Hope your leg gets better very soon. Has your doctor recommended

doing anything for this?

>

> Adrienne

>

> dlielc <MJHodor@a...> wrote:

> Hi:

>

> Some people have been writing about having blood clots or

> conditionswhich appear to be blood clots. I have a huge, huge

bruise--

> ugly and all on the inner right thigh. I've had this bruise for

about

> seven weeks. The primary care doctor thought it was a superficial

> thrombophlebitis. To check it out, she sent me for an ultrasound

to

> rule out a clot in the vein. I had that done yesterday. As I

haven't

> heard anything, I'm assuming it's not a clot. However, I'll call

> tommorrow just to make certain.

>

> My platelets are low, aobut 64000. Wonder if anyone else has had

> vascular problems, and how much it is connected with the gleevec.

> Thanks, Jean.

>

>

>

>

>

>

[Guest guest]

Hi Adrienne. I had lately same problem with my left arm tendency. I am planning

to see a neurologist and orthopedic surgeon in the coming two weeks. It is very

painful to lift my arm up. I don't know if I have same diagnosis or not. I will

keep you informed.

TO

dxd 1/2003

CCR 7/2003

Zero club#764

Re: [ ] blood clots, bruises, platelets

Hi

Sorry I didn't reply right away, but my husband and I were out of town. Your

question is actually one I was going to post to the group myself. For a few

months now my husband has been bothered by a sore left arm. He noticed that

when he lifted that arm part of the tendons or ligaments on the underneath side

of the upper arm appeared to have pulled away and was sticking out a bit. It was

sore but otherwise didn't seem to bother him. To make a long story short he

finally went to see an orthapaedic surgeon about it and was told that it wasn't

a problem with the tendons, ligaments or muscles of the arm, but was a

thrombosed vein. He's informed him CML doctors at s Hopkins and MD

and no one seems particularly concerned about his vein, but they do want to

watch it. Dr. Cortes at MD said they have seen a few issues with blood

clots for their patients on Gleevec but that it is very rare. My husband is on

800 mg and also takes aranesp for anemia. They're thinking

of reducing his aranesp dose in case that was the cause of the clot in this

vein. The vein is superficial and that seems to suggest to the doctors that

this is not a serious problem. But I wonder how many other people on the list

have had clotting problems while on Gleevec. There is , my husband and

you. My husband intends to see a vascular specialist and I will let you know

what he/she says about this.

Hope your leg gets better very soon. Has your doctor recommended doing

anything for this?

Adrienne

[Guest guest]

At 06:08 PM 8/27/05 -0700, you wrote:

> Dr. Cortes at MD said they have seen a few issues with blood

> clots for their patients on Gleevec but that it is very rare. My husband

> is on 800 mg and also takes aranesp for anemia. They're thinking

>of reducing his aranesp dose in case that was the cause of the clot in

>this vein.

Hi Adrienne,

Even before I got to this part of your post, I wondered if your husband was

also on a red cell booster.

There was some talk a while back about Procrit having a risk of blood

clots. I asked Dr. Druker about this and he said it was a very small risk,

and more of a concern if the person had high blood pressure. I am guessing

the same may be true for aranesp.

Another thing to also consider.....in addition to how many platelets you

have, you also should test for clotting if you are going to have any

surgery (or maybe just to know). I do know of a cmler who had platelets in

the normal range and was having a jugular catheter inserted.....she bleed

profusely which they did not expect because her blood did not clot well. So

we can have lots of platelets but they don't always function normally.

C.

[Guest guest]

Thanks, . Hope your arm problem turns out to be nothing. I'll keep you

informed on my husband's situation.

Adrienne

mtadros9@... wrote:

Hi Adrienne. I had lately same problem with my left arm tendency. I am planning

to see a neurologist and orthopedic surgeon in the coming two weeks. It is very

painful to lift my arm up. I don't know if I have same diagnosis or not. I will

keep you informed.

TO

dxd 1/2003

CCR 7/2003

Zero club#764

Re: [ ] blood clots, bruises, platelets

Hi

Sorry I didn't reply right away, but my husband and I were out of town. Your

question is actually one I was going to post to the group myself. For a few

months now my husband has been bothered by a sore left arm. He noticed that

when he lifted that arm part of the tendons or ligaments on the underneath side

of the upper arm appeared to have pulled away and was sticking out a bit. It was

sore but otherwise didn't seem to bother him. To make a long story short he

finally went to see an orthapaedic surgeon about it and was told that it wasn't

a problem with the tendons, ligaments or muscles of the arm, but was a

thrombosed vein. He's informed him CML doctors at s Hopkins and MD

and no one seems particularly concerned about his vein, but they do want to

watch it. Dr. Cortes at MD said they have seen a few issues with blood

clots for their patients on Gleevec but that it is very rare. My husband is on

800 mg and also takes aranesp for anemia. They're

thinking

of reducing his aranesp dose in case that was the cause of the clot in this

vein. The vein is superficial and that seems to suggest to the doctors that

this is not a serious problem. But I wonder how many other people on the list

have had clotting problems while on Gleevec. There is , my husband and

you. My husband intends to see a vascular specialist and I will let you know

what he/she says about this.

Hope your leg gets better very soon. Has your doctor recommended doing

anything for this?

Adrienne

[Guest guest]

I hope it turns out to be a simple problem too. Thanks for the info. I hope

we'll learn more about Jim's arm later this week. If so, I'll let you know.

Adrienne

dlielc <MJHodor@...> wrote:

--

Hi Adrienne:

I've just an MRI. After those results and checking on platelets,

we'll see what's going on. The doctor might decide just to keep an

eye on it unless there is something else involved. My problems seem

to involve rather heavy bleeding with problems trying to clot I

think. I'll let you know by the middle of the week what's going on.

In the meantime, the hematologist should have returned to town.

CML certainly complicates things. If it's a small tumor rather than

a hematoma, what then? Even a minor surgery seems to be a very

complicated thing with the platelets and tendency to bleed. I'm

praying that it turns out to be a small hematoma which will

eventually recede. Thanks, MJH

- In , Adrienne <artist934@y...> wrote:

> Hi

>

> Sorry I didn't reply right away, but my husband and I were out of

town. Your question is actually one I was going to post to the group

myself. For a few months now my husband has been bothered by a sore

left arm. He noticed that when he lifted that arm part of the

tendons or ligaments on the underneath side of the upper arm appeared

to have pulled away and was sticking out a bit. It was sore but

otherwise didn't seem to bother him. To make a long story short he

finally went to see an orthapaedic surgeon about it and was told that

it wasn't a problem with the tendons, ligaments or muscles of the

arm, but was a thrombosed vein. He's informed him CML doctors at

s Hopkins and MD and no one seems particularly concerned

about his vein, but they do want to watch it. Dr. Cortes at MD

said they have seen a few issues with blood clots for their

patients on Gleevec but that it is very rare. My husband is on 800

mg and also takes aranesp for anemia. They're thinking

> of reducing his aranesp dose in case that was the cause of the

clot in this vein. The vein is superficial and that seems to suggest

to the doctors that this is not a serious problem. But I wonder how

many other people on the list have had clotting problems while on

Gleevec. There is , my husband and you. My husband intends

to see a vascular specialist and I will let you know what he/she says

about this.

>

> Hope your leg gets better very soon. Has your doctor recommended

doing anything for this?

>

> Adrienne

>

> dlielc <MJHodor@a...> wrote:

> Hi:

>

> Some people have been writing about having blood clots or

> conditionswhich appear to be blood clots. I have a huge, huge

bruise--

> ugly and all on the inner right thigh. I've had this bruise for

about

> seven weeks. The primary care doctor thought it was a superficial

> thrombophlebitis. To check it out, she sent me for an ultrasound

to

> rule out a clot in the vein. I had that done yesterday. As I

haven't

> heard anything, I'm assuming it's not a clot. However, I'll call

> tommorrow just to make certain.

>

> My platelets are low, aobut 64000. Wonder if anyone else has had

> vascular problems, and how much it is connected with the gleevec.

> Thanks, Jean.

>

>

>

>

>

>

[Guest guest]

Hi ,

Whether aranesp is a factor in this is hard to know. Jim just had a check-up at

Hopkins and we discussed the clotting issue. Those doctors basically had the

same view as Dr. Druker. Jim's platelet count is at the low end of normal, so

he's got enough. But as you say they may not be functioning as they should.

This is his left arm where he usually gets his blood draws. Maybe the vein's

been bleeding more than it should and when it finally stopped there was a clot

that didn't get reabsorbed. I guess the bottom line is we don't know enough

yet. I hope within a week or two we'll have some more info. Thanks for your

thoughts.

Adrienne

Cogan <ncogan@...> wrote:

At 06:08 PM 8/27/05 -0700, you wrote:

> Dr. Cortes at MD said they have seen a few issues with blood

> clots for their patients on Gleevec but that it is very rare. My husband

> is on 800 mg and also takes aranesp for anemia. They're thinking

>of reducing his aranesp dose in case that was the cause of the clot in

>this vein.

Hi Adrienne,

Even before I got to this part of your post, I wondered if your husband was

also on a red cell booster.

There was some talk a while back about Procrit having a risk of blood

clots. I asked Dr. Druker about this and he said it was a very small risk,

and more of a concern if the person had high blood pressure. I am guessing

the same may be true for aranesp.

Another thing to also consider.....in addition to how many platelets you

have, you also should test for clotting if you are going to have any

surgery (or maybe just to know). I do know of a cmler who had platelets in

the normal range and was having a jugular catheter inserted.....she bleed

profusely which they did not expect because her blood did not clot well. So

we can have lots of platelets but they don't always function normally.

C.