Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Hi Tami- Welcome to the listserv. thanks for joining us. How does Collin react when you try to give him table food? KathyR (mom to Danny, almost 8 yrs and his 6 older sibs) > > Hi > > I just joined the group today. I go the list serve off of the down > syndrome bulletin board off of BAbycenter.com which is a great board > by the way. I am a SAHM to three boys and a little girl on the way > (due in September). Collin is 16 months old with the designer genes. > I didn't know prenatally that he had downs and remember those early > days just walking around in a fog not knowing where to go or what to > do but i am much better these days. He has an ASD defect which is > being watched but other than that he is great. He just recently > started sitting up and he is getting up on his knees. We are working > on getting him onto table food which is a challenge let me tell you > but he takes baby food. Any hints would be wonderful about how to > manage that. He is a joy to have otherwise just a pleasant > personality and so loving. Ok. Talk to you all soon! > > Thanks > Tami > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Hi Tami!! Welcome to the list. ) I didn't know about my dd's DS before either, but then I declined the tests...well we did a level 2 ultra sound, but they never noticed her heart defects, let alone the DS... I would have liked to know about the heart defects.. anyway I digress. :-) I can tell you how I was able to get Missy Chrissy to eat more solid foods. I poured baby food on her tray, then added soft bits of foods into the baby food. I put her hands in this goo and then put them in her mouth. :-) ( after 7 kids it just seemed natural <g>) She would like the stuff off her hands and get the bits and pieces at the same time. This also enabled her to feed herself, which she really enjoyed and hadn't been able to manage. If that starts things off, then just increase the amounts of soft foods and decrease the baby foods. Start out with a baby food he LOVES . --Carol in IL -------------- Original message -------------- From: "tamihostetter" <tami@...> HiI just joined the group today. I go the list serve off of the down syndrome bulletin board off of BAbycenter.com which is a great board by the way. I am a SAHM to three boys and a little girl on the way (due in September). Collin is 16 months old with the designer genes. I didn't know prenatally that he had downs and remember those early days just walking around in a fog not knowing where to go or what to do but i am much better these days. He has an ASD defect which is being watched but other than that he is great. He just recently started sitting up and he is getting up on his knees. We are working on getting him onto table food which is a challenge let me tell you but he takes baby food. Any hints would be wonderful about how to manage that. He is a joy to have otherwise just a pleasant personality and so loving. Ok. Talk to you all soon!ThanksTami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Welcome to the group, Tami! My brother with Down Syndrome is also 16 months old. For trying to get your son to eat table food - does he have any oral sensitivity problems? Is he having a hard time eating because of the texture, etc? If so, or anything like that . . . I'd suggest going to Sara Rosenfeld-'s site - www.talktools.net . Qadoshyah *Got Down Syndrome? www.gotdownsyndrome.net From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of tamihostetterSent: Monday, June 12, 2006 4:20 PMDown Syndrome Treatment Subject: Hi! I am new here! HiI just joined the group today. I go the list serve off of the down syndrome bulletin board off of BAbycenter.com which is a great board by the way. I am a SAHM to three boys and a little girl on the way (due in September). Collin is 16 months old with the designer genes. I didn't know prenatally that he had downs and remember those early days just walking around in a fog not knowing where to go or what to do but i am much better these days. He has an ASD defect which is being watched but other than that he is great. He just recently started sitting up and he is getting up on his knees. We are working on getting him onto table food which is a challenge let me tell you but he takes baby food. Any hints would be wonderful about how to manage that. He is a joy to have otherwise just a pleasant personality and so loving. Ok. Talk to you all soon!ThanksTami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hi Kathy R Collin either gags or he pushes it out with his tongue. The OT wants me to grind up pears and slowly add it to his food. So that is what I am going to do when I get the grinder. Any other suggestions would be great Tami Re: Hi! I am new here! Hi Tami- Welcome to the listserv. thanks for joining us. How does Collin react when you try to give him table food? KathyR (mom to Danny, almost 8 yrs and his 6 older sibs) > > Hi > > I just joined the group today. I go the list serve off of the down > syndrome bulletin board off of BAbycenter.com which is a great board > by the way. I am a SAHM to three boys and a little girl on the way > (due in September). Collin is 16 months old with the designer genes. > I didn't know prenatally that he had downs and remember those early > days just walking around in a fog not knowing where to go or what to > do but i am much better these days. He has an ASD defect which is > being watched but other than that he is great. He just recently > started sitting up and he is getting up on his knees. We are working > on getting him onto table food which is a challenge let me tell you > but he takes baby food. Any hints would be wonderful about how to > manage that. He is a joy to have otherwise just a pleasant > personality and so loving. Ok. Talk to you all soon! > > Thanks > Tami > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hi Tami, I am new to this group, but thought I'd jump right in to see if I can help you. It is tough to get these little ones to eat. Sometimes adding two different textures makes it even more difficult for these little ones to transition to table food. Instead of grinding up pears, have you tried waiting until they are really ripe and mash them up, so they are just a little chunky? Is pears something he really likes? Have you tried a nice ripe watermelon? I haven't seen all of your messages, but are you doing oral motor exercies with him? Here are two links that may help you http://www.speechville.com/helping-at-home/oral-motor-excercises.html and the talktools website is http://shopping.netsuite.com/c.586881/site/web-content/index.html Good luck and keep us posted! Blessings, Caroline (mom to Isabella 4 and her 4 siblings) Hi Kathy R Collin either gags or he pushes it out with his tongue. The OT wants me to grind up pears and slowly add it to his food. So that is what I am going to do when I get the grinder. Any other suggestions would be great Tami -----Original Message-----From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of k_ratkiewiczSent: Tuesday, June 13, 2006 12:26 AMDown Syndrome Treatment Subject: Re: Hi! I am new here! Hi Tami-Welcome to the listserv. thanks for joining us.How does Collin react when you try to give him table food?KathyR (mom to Danny, almost 8 yrs and his 6 older sibs)>> Hi> > I just joined the group today. I go the list serve off of the down > syndrome bulletin board off of BAbycenter.com which is a great board > by the way. I am a SAHM to three boys and a little girl on the way > (due in September). Collin is 16 months old with the designer genes. > I didn't know prenatally that he had downs and remember those early > days just walking around in a fog not knowing where to go or what to > do but i am much better these days. He has an ASD defect which is > being watched but other than that he is great. He just recently > started sitting up and he is getting up on his knees. We are working > on getting him onto table food which is a challenge let me tell you > but he takes baby food. Any hints would be wonderful about how to > manage that. He is a joy to have otherwise just a pleasant > personality and so loving. Ok. Talk to you all soon!> > Thanks> Tami> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 We went to a feeding therapist for a summer and his method was to make your own purees and then slowly adjust the texture/thickness of them. Start out with full puree- pears are agood choice for this. I personally find is much easier to bake fruits cause I tend to forget and burn things a lot. ;-) Just chunk up your fruit into a nice baking dish, can grease it with a little butter, cover and bake about 30 mins. Most fruits don't need added moisture, but watch just to be sure and then add juice if needed. Once the fruit is baked, you simply put it in the blender. You have total control over the thickness by adding or not adding juice at this point. It's much easier to add liquid then remove it, and you can add liquid right before you eat it, so can have lots of feedom from one meal to the next as to texture. Once you have a basic puree, freeze it in ice cube trays and transfer to ziplocs. Another trick he had in the very beginning was to play with the food. All sorts of silly games that invovled getting the food one step closer to the mouth. Very sneaky LOL We were putting food all over our faces- on the nose, the lip, kissing it, licking it.. you name it. Anything BUT eating it. One of the final games was to bite the food but not to swallow it, spit it out instead. My older boys LOVED playing this game with ;-) and we did it away from high chairs or the table so the child felt NO pressure to actually eat the food. Once we got this far, we switched to game involving reward for actually eating, if you think that might help, I can post about that as well. As he progresses, you begin to puree it a little less so it's a bit chunkier, then start adding tiny bits of mashed cooked pears, then larger pieces... you get the picture. :-) Another reason pears are a good choice for this is a ripe pear mashes very nicely with out cooking too!! And it makes a very easy to chew raw fruit. --Carol in IL -------------- Original message -------------- From: "Tami" <tami@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hi Caroline The problem is he does not tolerate at all anything that’s not smooth. So I am not sure that will work for him. I recently started adding some oatmeal to his food. Just 1 teaspoon with his food. I just don’t know what else to do. Then I am supposed to gradually increase it until he is on chunkier food. Re: Hi! I am new here! Hi Tami- Welcome to the listserv. thanks for joining us. How does Collin react when you try to give him table food? KathyR (mom to Danny, almost 8 yrs and his 6 older sibs) > > Hi > > I just joined the group today. I go the list serve off of the down > syndrome bulletin board off of BAbycenter.com which is a great board > by the way. I am a SAHM to three boys and a little girl on the way > (due in September). Collin is 16 months old with the designer genes. > I didn't know prenatally that he had downs and remember those early > days just walking around in a fog not knowing where to go or what to > do but i am much better these days. He has an ASD defect which is > being watched but other than that he is great. He just recently > started sitting up and he is getting up on his knees. We are working > on getting him onto table food which is a challenge let me tell you > but he takes baby food. Any hints would be wonderful about how to > manage that. He is a joy to have otherwise just a pleasant > personality and so loving. Ok. Talk to you all soon! > > Thanks > Tami > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hi I vwas looking for the Sara Rosenfeld oral motor book and all I could find was the Oral Motor Exercises for Speech Clarity. Is that what I need for feeding issues? Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 One suggestion that I would have is to make sure that his thyroid status is normal. When my son Danny was a baby, we had a horrible time getting him to take table foods, for several months, all he would eat was Allsoy formula and strained sweet potatoes. Period. He would gag on anything else. We tried everything..oral motor therapy, pureed everything….nothing worked for him. He was past due for his thyroid labs, and when we got the results, I was stunned to see that his TSH was over 23 (normal range at that time was up to 10, now the upper limit of normal has been revised to a much lower level) the only signs that he had of hypothyroidism(underactive thyroid) was a slowdown in his height..he hadn’t grown for several months. Once we started him on thyroid replacement meds, he stopped with the gagging...I remember being amazed, when 2 weeks after we started the meds, he was able to eat chili w/meat…table style…I hadn’t ground it up for him, PLUS it was a food that he would never try before. We talked it over with his doc, and in retrospect ! figured out that his thyroid must have been enlarged, making him gag whenever he tried to swallow anything lumpy. I am hyrothyroid, too, and when my TSH levels get whacky, I can feel pressure in my throat. SO…not saying that this IS what is going on w/Collin….there are many other things that could be causing his problem…BUT thyroid issues(especially hypothyroidism) are very common in people w/Ds, so it wouldn’t hurt to rule that out if he hasn’t had his levels checked lately. KathyR From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Tami Sent: Tuesday, June 13, 2006 7:59 AM Down Syndrome Treatment Subject: RE: Re: Hi! I am new here! Hi Kathy R Collin either gags or he pushes it out with his tongue. The OT wants me to grind up pears and slowly add it to his food. So that is what I am going to do when I get the grinder. Any other suggestions would be great Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 We have worked with Lori Overland who is partnered with Sara. She is big on the feeding/oral motor. Here is a suggestion that we have used. I would place some of the childs food in a straw and freeze them. Then let the child chew it. As he chews it, the food pushes out. We noticed that with the cold, it was a shock (in a good way) to his mouth and got him to use the chewing motion. Our son has been diagnosed with exterior facial Hypersensitivity and Interior Hypo sensitivity. We have done some stretches prior to eating for both in and outside of his mouth. We also have ordered the casper vibrating item from talktools and let him play with it all day. He then began to put it in his mouth with gave him new sensations and input and thats helped alot. He is now eating mac and cheese. Mostly whole but if something gets stuck he gags it up chews it right and swallows again. It is alot of work and he is 2.5 years old now but hopefully he will be eating reg food in no time. Let me know if you want to know anything further B --- Tami <tami@...> wrote: > Hi > > I vwas looking for the Sara Rosenfeld oral > motor book and all I > could find was the Oral Motor Exercises for Speech > Clarity. Is that > what I need for feeding issues? > > Tami > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Wow that is BRILLIANT!!! I LOVE these lists.. where else would you pick up such helpful ideas???? Thanks for posting this. :-) --Carol in IL -------------- Original message -------------- From: and Behnke <behnkesw@...> We have worked with Lori Overland who is partneredwith Sara. She is big on the feeding/oral motor. Here is a suggestion that we have used. I would placesome of the childs food in a straw and freeze them. Then let the child chew it. As he chews it, the foodpushes out. We noticed that with the cold, it was ashock (in a good way) to his mouth and got him to usethe chewing motion. Our son has been diagnosed withexterior facial Hypersensitivity and Interior Hyposensitivity. We have done some stretches prior toeating for both in and outside of his mouth. We alsohave ordered the casper vibrating item from talktoolsand let him play with it all day. He then began toput it in his mouth with gave him new sensations andinput and thats helped alot. He is now eating mac andcheese. Mostly whole but if something gets stuck hegags it up chews it right and swallows again. It isalot of work and he is 2.5 years old now but hopefull yhe will be eating reg food in no time.Let me know if you want to know anything further B--- Tami <tamithehostetters (DOT) net> wrote:> Hi> > I vwas looking for the Sara Rosenfeld oral> motor book and all I> could find was the Oral Motor Exercises for Speech> Clarity. Is that> what I need for feeding issues?> > Tami> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 SRJ teaches a lot that they refuse it because they can't do it --they don't know how or they don't have the right skills in place. That's why her exercises are so great --her colleague Lori Overland has been a big help to many of those with infants with feeding problems. I didn't know anything about SRJ or any of this when Evan had his feeding problems so I just persevered and kept trying and trying. We had a breakthru on his first birthday though --first thing he ever went after--you got it--chocolate cake. The cardiologists told us to make everything chocolate if we had to to get it down him --cholcolate pediasure went pretty good. Find out if there's anything he likes and try to expand upon it but oh so slowly and it takes a LOT of patience. We started Evan out drop by drop with a 3 cc syringe of breastmilk/formula --just like you do baby animals that lose their mother. But I didn't have any success at all till we pulled the NG tube. And for weeks feeding Evan was my full-time job --he would eat for no other and it took 3 hours to get a feed down and then it was time to begin the next feed. Priscilla K --- Tami <tami@...> wrote: > Hi Kathy R > > Collin either gags or he pushes it out with his tongue. The OT > wants me > to grind up pears and slowly add it to his food. So that is what I > am > going to do when I get the grinder. Any other suggestions would be > great > > Tami > > Re: Hi! I am new here! > > Hi Tami- > Welcome to the listserv. thanks for joining us. > How does Collin react when you try to give him table food? > KathyR (mom to Danny, almost 8 yrs and his 6 older sibs) > > > > > > Hi > > > > I just joined the group today. I go the list serve off of the > down > > syndrome bulletin board off of BAbycenter.com which is a great > board > > by the way. I am a SAHM to three boys and a little girl on the > way > > (due in September). Collin is 16 months old with the designer > genes. > > I didn't know prenatally that he had downs and remember those > early > > days just walking around in a fog not knowing where to go or what > to > > do but i am much better these days. He has an ASD defect which is > > > being watched but other than that he is great. He just recently > > started sitting up and he is getting up on his knees. We are > working > > on getting him onto table food which is a challenge let me tell > you > > but he takes baby food. Any hints would be wonderful about how to > > > manage that. He is a joy to have otherwise just a pleasant > > personality and so loving. Ok. Talk to you all soon! > > > > Thanks > > Tami > > > > Priscilla Kendrick, married 28 years to Darrel and parents of 9 kids including Evan, 10, born with Down Syndrome and Spina Bifida " My strength is made perfect in weakness. " " My grace is sufficient. " II Corinthians 12:9 KJV __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Tami - Sounds like he has some oral sensitivity issues. SRJ has several things and ways to help work on that. Sorry I don't have much more help in that area, since my brother will eat anything. Qadoshyah *Got Down Syndrome? www.gotdownsyndrome.net From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of TamiSent: Tuesday, June 13, 2006 7:44 AMDown Syndrome Treatment Subject: RE: Re: Hi! I am new here! Hi Caroline The problem is he does not tolerate at all anything that’s not smooth. So I am not sure that will work for him. I recently started adding some oatmeal to his food. Just 1 teaspoon with his food. I just don’t know what else to do. Then I am supposed to gradually increase it until he is on chunkier food. -----Original Message-----From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Caroline SkalskySent: Tuesday, June 13, 2006 9:36 AMDown Syndrome Treatment Subject: Re: Re: Hi! I am new here! Hi Tami, I am new to this group, but thought I'd jump right in to see if I can help you. It is tough to get these little ones to eat. Sometimes adding two different textures makes it even more difficult for these little ones to transition to table food. Instead of grinding up pears, have you tried waiting until they are really ripe and mash them up, so they are just a little chunky? Is pears something he really likes? Have you tried a nice ripe watermelon? I haven't seen all of your messages, but are you doing oral motor exercies with him? Here are two links that may help you http://www.speechville.com/helping-at-home/oral-motor-excercises.html and the talktools website is http://shopping.netsuite.com/c.586881/site/web-content/index.html Good luck and keep us posted! Blessings, Caroline (mom to Isabella 4 and her 4 siblings) Hi Kathy R Collin either gags or he pushes it out with his tongue. The OT wants me to grind up pears and slowly add it to his food. So that is what I am going to do when I get the grinder. Any other suggestions would be great Tami -----Original Message-----From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of k_ratkiewiczSent: Tuesday, June 13, 2006 12:26 AMDown Syndrome Treatment Subject: Re: Hi! I am new here! Hi Tami-Welcome to the listserv. thanks for joining us.How does Collin react when you try to give him table food?KathyR (mom to Danny, almost 8 yrs and his 6 older sibs)>> Hi> > I just joined the group today. I go the list serve off of the down > syndrome bulletin board off of BAbycenter.com which is a great board > by the way. I am a SAHM to three boys and a little girl on the way > (due in September). Collin is 16 months old with the designer genes. > I didn't know prenatally that he had downs and remember those early > days just walking around in a fog not knowing where to go or what to > do but i am much better these days. He has an ASD defect which is > being watched but other than that he is great. He just recently > started sitting up and he is getting up on his knees. We are working > on getting him onto table food which is a challenge let me tell you > but he takes baby food. Any hints would be wonderful about how to > manage that. He is a joy to have otherwise just a pleasant > personality and so loving. Ok. Talk to you all soon!> > Thanks> Tami> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hey Tami, Are you working with a speech-language pathologist? A SLP should be able to help you with feeding problems and oral motor issues and even implement Sara Rosenfeld- 's program or oral motor techniques. I highly recommend you look into working with a SLP, & if you are working with one, voice your concerns about feeding. If the SLP does not address the concerns or oral motor needs of your son, you may want to look into getting a different SLP! Good luck! > > Hi > > I just joined the group today. I go the list serve off of the down > syndrome bulletin board off of BAbycenter.com which is a great board > by the way. I am a SAHM to three boys and a little girl on the way > (due in September). Collin is 16 months old with the designer genes. > I didn't know prenatally that he had downs and remember those early > days just walking around in a fog not knowing where to go or what to > do but i am much better these days. He has an ASD defect which is > being watched but other than that he is great. He just recently > started sitting up and he is getting up on his knees. We are working > on getting him onto table food which is a challenge let me tell you > but he takes baby food. Any hints would be wonderful about how to > manage that. He is a joy to have otherwise just a pleasant > personality and so loving. Ok. Talk to you all soon! > > Thanks > Tami > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 We also use peppermint or cinnamin liquid flavoring during the interior stretches to help " warm up " his mouth.... B --- doihavtasay@... wrote: > Wow that is BRILLIANT!!! > > I LOVE these lists.. where else would you pick up > such helpful ideas???? > Thanks for posting this. :-) > > -- > Carol in IL > > > > -------------- Original message -------------- > From: and Behnke <behnkesw@...> > > We have worked with Lori Overland who is partnered > with Sara. She is big on the feeding/oral motor. > Here is a suggestion that we have used. I would > place > some of the childs food in a straw and freeze them. > Then let the child chew it. As he chews it, the food > pushes out. We noticed that with the cold, it was a > shock (in a good way) to his mouth and got him to > use > the chewing motion. Our son has been diagnosed with > exterior facial Hypersensitivity and Interior Hypo > sensitivity. We have done some stretches prior to > eating for both in and outside of his mouth. We also > have ordered the casper vibrating item from > talktools > and let him play with it all day. He then began to > put it in his mouth with gave him new sensations and > input and thats helped alot. He is now eating mac > and > cheese. Mostly whole but if something gets stuck he > gags it up chews it right and swallows again. It is > alot of work and he is 2.5 years old now but > hopefully > he will be eating reg food in no time. > > Let me know if you want to know anything further > B > > --- Tami <tami@...> wrote: > > > Hi > > > > I vwas looking for the Sara Rosenfeld oral > > motor book and all I > > could find was the Oral Motor Exercises for Speech > > Clarity. Is that > > what I need for feeding issues? > > > > Tami > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 No, she addresses feeding issues too. Here's the link to the feeding/sensory section of her site - http://shopping.netsuite.com/s.nl/c.586881/sc.2/category.5/.f . Qadoshyah *Got Down Syndrome? www.gotdownsyndrome.net From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of TamiSent: Tuesday, June 13, 2006 9:02 AMDown Syndrome Treatment Subject: RE: Re: Hi! I am new here! Hi I vwas looking for the Sara Rosenfeld oral motor book and all I could find was the Oral Motor Exercises for Speech Clarity. Is that what I need for feeding issues? Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 …I added this to the files section under “therapy helps” Thanks! If anyone has anything that they have found to be especially helpful for their children/students/clients…please feel free to add it to the files section. We have folders there for different topics, but if you don’t see a folder that is appropriate for your information, feel free to start another;-) kathyR -------------- Original message -------------- From: and Behnke <behnkesw@...> We have worked with Lori Overland who is partnered with Sara. She is big on the feeding/oral motor. Here is a suggestion that we have used. I would place some of the childs food in a straw and freeze them. Then let the child chew it. As he chews it, the food pushes out. We noticed that with the cold, it was a shock (in a good way) to his mouth and got him to use the chewing motion. Our son has been diagnosed with exterior facial Hypersensitivity and Interior Hypo sensitivity. We have done some stretches prior to eating for both in and outside of his mouth. We also have ordered the casper vibrating item from talktools and let him play with it all day. He then began to put it in his mouth with gave him new sensations and input and thats helped alot. He is now eating mac and cheese. Mostly whole but if something gets stuck he gags it up chews it right and swallows again. It is alot of work and he is 2.5 years old now but hopefull y he will be eating reg food in no time. Let me know if you want to know anything further B --- Tami <tamithehostetters (DOT) net> wrote: > Hi > > I vwas looking for the Sara Rosenfeld oral > motor book and all I > could find was the Oral Motor Exercises for Speech > Clarity. Is that > what I need for feeding issues? > > Tami > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hi Tami I am probably not much help, but I do understand your frustration! Faith is 8 years old. Her diet is extremely limited. She will not eat mixed textures and will not even try anything she doesn't like the look of. When we tried going from the smooth baby foods to some with texture she gagged and threw up. About Colin's age I began giving her noodles, cheerios, pieces of Ritz craker, she ate yogurt, too. She doesn't eat a whole lot more now! She lives on mac and cheese(I make organic), pizza(homemade), spagetti, canned peas or corn, canned peaches, yogurt, and she recently added bananas, although gagging a bit. She would eat bread all day if I let her and loves cheetos. I like the book "Just take a bite" by Lori Ernsperger, Ph.D and Tania Stegen-Hanson OTR/L. Might as well buy it now, I'm still using it!! ette -------------- Original message from "Tami" <tami@...>: -------------- Hi Caroline The problem is he does not tolerate at all anything that’s not smooth. So I am not sure that will work for him. I recently started adding some oatmeal to his food. Just 1 teaspoon with his food. I just don’t know what else to do. Then I am supposed to gradually increase it until he is on chunkier food. -----Original Message-----From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Caroline SkalskySent: Tuesday, June 13, 2006 9:36 AMDown Syndrome Treatment Subject: Re: Re: Hi! I am new here! Hi Tami, I am new to this group, but thought I'd jump right in to see if I can help you. It is tough to get these little ones to eat. Sometimes adding two different textures makes it even more difficult for these little ones to transition to table food. Instead of grinding up pears, have you tried waiting until they are really ripe and mash them up, so they are just a little chunky? Is pears something he really likes? Have you tried a nice ripe watermelon? I haven't seen all of your messages, but are you doing oral motor exercies with him? Here are two links that may help you http://www.speechville.com/helping-at-home/oral-motor-excercises.html and the talktools website is http://shopping.netsuite.com/c.586881/site/web-content/index.html Good luck and keep us posted! Blessings, Caroline (mom to Isabella 4 and her 4 siblings) Hi Kathy R Collin either gags or he pushes it out with his tongue. The OT wants me to grind up pears and slowly add it to his food. So that is what I am going to do when I get the grinder. Any other suggestions would be great Tami -----Original Message-----From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of k_ratkiewiczSent: Tuesday, June 13, 2006 12:26 AMDown Syndrome Treatment Subject: Re: Hi! I am new here! Hi Tami-Welcome to the listserv. thanks for joining us.How does Collin react when you try to give him table food?KathyR (mom to Danny, almost 8 yrs and his 6 older sibs)>> Hi> > I just joined the group today. I go the list serve off of the down > syndrome bulletin board off of BAbycenter.com which is a great board > by the way. I am a SAHM to three boys and a little girl on the way > (due in September). Collin is 16 months old with the designer genes. > I didn't know prenatally that he had downs and remember those early > days just walking around in a fog not knowing where to go or what to > do but i am much better these days. He has an ASD defect which is > ; being watched but other than that he is great. He just recently > started sitting up and he is getting up on his knees. We are working > on getting him onto table food which is a challenge let me tell you > but he takes baby food. Any hints would be wonderful about how to > manage that. He is a joy to have otherwise just a pleasant > personality and so loving. Ok. Talk to you all soon!> > Thanks> Tami> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 No --that book doesn't cover feeding issues --it is mainly her program of using straws, gum, biteblocks, horns, etc. to build up muscles to bring about speech clarity. You'll need it in a little while but you need some of the other suggestions folks have given for now. Priscilla K --- Tami <tami@...> wrote: > Hi > > I vwas looking for the Sara Rosenfeld oral motor book and > all I > could find was the Oral Motor Exercises for Speech Clarity. Is > that > what I need for feeding issues? > > Tami > Priscilla Kendrick, married 28 years to Darrel and parents of 9 kids including Evan, 10, born with Down Syndrome and Spina Bifida " My strength is made perfect in weakness. " " My grace is sufficient. " II Corinthians 12:9 KJV __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 great minds think alike :-) You are way ahead of me! I was out enjoying the sun and you were here obvoiusly slaving away. ;-) --Carol in IL -------------- Original message -------------- From: "Kathy Ratkiewicz" <Kathy_R@...> …I added this to the files section under “therapy helps” Thanks! If anyone has anything that they have found to be especially helpful for their children/students/clients…please feel free to add it to the files section. We have folders there for different topics, but if you don’t see a folder that is appropriate for your information, feel free to start another;-) kathyR -------------- Original message -------------- From: and Behnke <behnkesw@...> We have worked with Lori Overland who is partneredwith Sara. She is big on the feeding/oral motor. Here is a suggestion that we have used. I would placesome of the childs food in a straw and freeze them. Then let the child chew it. As he chews it, the foodpushes out. We noticed that with the cold, it was ashock (in a good way) to his mouth and got him to usethe chewing motion. Our son has been diagnosed withexterior facial Hypersensitivity and Interior Hyposensitivity. We have done some stretches prior toeating for both in and outside of his mouth. We alsohave ordered the casper vibrating item from talktoolsand let him play with it all day. He then began toput it in his mouth with gave him new sensations andinput and thats helped alot. He is now eating mac andcheese. Mostly whole but if something gets stuck hegags it up chews it right and swallows again. It isalot of work and he is 2.5 years old now but hopefull yhe will be eating reg food in no time.Let me know if you want to know anything further B--- Tami <tamithehostetters (DOT) net> wrote:> Hi> > I vwas looking for the Sara Rosenfeld oral> motor book and all I> could find was the Oral Motor Exercises for Speech> Clarity. Is that> what I need for feeding issues?> > Tami> __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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