RE: Re: Quick Check In - G.

[Guest guest]

Hi all,

I was trying to do homework but the darn Web site I need to do some

practice stats calculations has been down, so here I am.

Thanks for your kind words. I'm sorry in advance for trying to address

everyone in one email, but you know how it goes.

Someone had asked me about the PCR tests that came back with different

results. They were run on the same sample, not different samples. Yet

the results were different. One, from what I can recall, was a several

log increase, while the other was negative. Yeah, that helps. (Not.)

Cheryl, I do think the technology is lagging. Or maybe it's good enough

but we want it to be better, as good enough isn't good enough anymore.

Lynne A., you probably don't remember this, but I have broken ribs

twice, coincidentally (?) since starting Gleevec. They still bother me

sometimes, and that was probably a good four years ago now.

L., did you get your results yet? Isn't it amazing that the BMS

drug is in phase III trials already? We did have a " soft " frost last

night -- early even for Minnesota. Hard frost is expected this coming

week. I refuse to turn the dang heat on this early in the season!

, what exciting news. We have several adoptions in my family from

around the world, and those children are pure joy.

Regardless of what happens, I don't think of my life as being on hold

anymore.

jennifer g.

www.cmlsupport.com

p.s. Cheryl, hey, you spelled " trouper " right in this use! Woo-hoo. No

one *ever* does that. :-) And my new dog is doing great.

[ ] Re: Quick Check In - G.

Hey ,

Nice to hear from you. Sorry to read you are still having problems

with the DVT and clotting issues. It is quite amazing that in spite

of all this you still keep a busy routine going!. You are quite a

trouper!

Congratulations on the new addition to your family. It is always so

nice to hear that people rescued animals from shelters. My french

poodle, Napoleon Bonnaparte (well after all he is quite small and

dictatorial)was rescued from a horrible puppy mill just about nine

years ago. He means a great deal to me and has been a great source

of comfort on this CML journey. May you have many wonderful moments

with your new friend.

Sorry you're PCR is bouncing around a bit. Suzan McNamara had a bit

of a scare recently, but all additional tests including mutation

testing came back negative. As time goes by I hope we will find our

experience with PCR testing to be less frustrating. The problem is of

course that much like INR testing for the coumadin you are on, PCR

testing isn't standardized either. Additionally, I like to believe

that a majority of us are pushing the limites of detection with PCR.

I am looking forward to when the testing technology catches up to the

drugs!