Re: how many of you DO not take Gleevec regularly

[Guest guest]

> Could you please assist me in a little survey?

>

> How many of you are not " religious " about taking your Gleevec?

> According to Novartis, about 33% of all patients are not consistent.

I

> will explain later why I am asking this question!

>

> Rosenthal

> dx 1/08/2003

> undetectable!~

I take Gleevec religiously. To my knowledge I have only forgotton

1 day in 2 years.

Joan Porter

Gleevec 400 mg

dx'd 8/2003

ccr 4/2004

pcru 6/2005

Zavie's #662

[Guest guest]

This is my 118 week to be on Gleevec, and I think out of that time I

have probably missed 6 doses. Each time due to N/V before taking

them. Certainly didn't want to waste a dose! I figure it isn't going

to help if it stays in the bottle!

Amy B.

[Guest guest]

Which is 826 doses, and if you calculate it out, I have missed < 1% of

my doses!

Amy B.

> This is my 118 week to be on Gleevec, and I think out of that time I

> have probably missed 6 doses. Each time due to N/V before taking

> them. Certainly didn't want to waste a dose! I figure it isn't

going

> to help if it stays in the bottle!

>

> Amy B.

[Guest guest]

RELIGIOUSLY!!!! Missed one dose in 21 months......

Zavie's #838

DX'D 10/2003

CCR 4/2005

> Could you please assist me in a little survey?

>

> How many of you are not " religious " about taking your Gleevec?

> According to Novartis, about 33% of all patients are not

consistent. I

> will explain later why I am asking this question!

>

> Rosenthal

> dx 1/08/2003

> undetectable!~

[Guest guest]

I would not dare to forget.

But had to stop taking Gleevec for two weeks as adviced by my oncologist

> Gleevec 400 mg

> dx'd 3/2005

my best wishes to all

Ursula

[Guest guest]

,

I've missed, on average, about 1 dose (400mg) every two months or so.

If I miss a dose, usually because I was sick, or didn't eat enough that

day, then I make sure to take 600mgs sometime the next day or the day

after.

Regards, Gale Bacon

[Guest guest]

At 06:31 PM 6/30/05 +0000, you wrote:

>Could you please assist me in a little survey?

>

>How many of you are not " religious " about taking your Gleevec?

>According to Novartis, about 33% of all patients are not consistent. I

>will explain later why I am asking this question!

>

> Rosenthal

Hi ,

I have been on IM since Feb 2000...........

on 400mg for 1.5 years (1 dose per day)

on 800mg for 4 years (2 doses a day)

for a grand total of approx. 3,500 doses!!!

Taking Gleevec twice a day is hard, because I often have to eat

when I am not hungry, just to take my dose....so it has dictated my

life a bit. I have missed very few doses......once when I was hospitalized

I was off for 17 days.....and occasionally when the meals

do get goofed up, I may only take it once a day (but then will take 600mg

to split the difference). This doesn't even happen once a month.

So, I am a Gleevec faithful.

C.

[Guest guest]

,'

If I skip 2 - 3 times a year it is a big deal.

<Educatorsusan@...> wrote:

Could you please assist me in a little survey?

How many of you are not " religious " about taking your Gleevec?

According to Novartis, about 33% of all patients are not consistent. I

will explain later why I am asking this question!

Rosenthal

dx 1/08/2003

undetectable!~

---------------------------------

Sports

Rekindle the Rivalries. Sign up for Fantasy Football

[Guest guest]

---

Hi ,

I have forgotten to take the pills several times and the first

time realized i did, I Freaked OUT!! And telling the group when I

did, I was told by the group, not to worry , !! My Fish and cbc are

fine!! There have been times I wanted to NOT take the pills,because

of the sudden diarrhea it gives and it would be so embarassing to

run to the men's room!! I have had this problem when I was on

interferon when several months after taking this ,I had this

problem! NOt sure if it triggerd an incontinence problem as well as

a slight impotence problem too!!

I dont freak out any more when I forget and I think I missed

it no more than 5 times since bein gon gleevec in 2000!!

jeffrey c

In , " " <Educatorsusan@a...> wrote:

> Could you please assist me in a little survey?

>

> How many of you are not " religious " about taking your Gleevec?

> According to Novartis, about 33% of all patients are not

consistent. I

> will explain later why I am asking this question!

>

> Rosenthal

> dx 1/08/2003

> undetectable!~

[Guest guest]

Unfortunately, I have to skip days because of nausea, and that is why I have

had near-relapse situations lately. I cannot believe that I miss my dose

some days, seeing as how I lucky I have been with my most recent qPCR results.

A holiday weekend, such as the Fourth, finds me very busy with activities

and at night, as I drift off to sleep the realization dawns that I have

forgotten to take my Gleevec. After 5 years, you'd think it would be ingrained

in

my daily pattern, but it is not. I think subconsciously I'd rather not take

it due to the resulting side effects, but I know I have to in order to stay in

remission. I get too lax, perhaps a sign of the lazy life I know lead.

Only time will tell if my dosing breaks are beneficial or harmful. - Lynne A.

[Guest guest]

:

I take my Gleevec every day with my dinner. I don't think I have

missed a dose in 3 years.

K