now supplements and whateverRE: Re: Hi. (when best ti

[Guest guest]

Hello ,

When I was still new in the DS world I found following website was

very good reading concerning DS biochemistry and the rationale for

supplementing with heaven knows what all :-)

http://www.einstein-syndrome.com/

/Switzerland

> >

> > We started Danny on NVD when he was 16 months old..he had always

> been on

> > some sort or vitamin (prescription) but he was always sick with one

> upper

> > respiratory infection/ear infection after another. We were at the

> doc's

> > office at LEAST every two weeks after Danny finally came home from

> the

> > hospital (at 4 months of age) Once we started him on NVD, he had

> one more

> > ear infection, but he really was a changed kid. He wasn't sick all

> the time,

> > so he had a lot more energy to actually be able to DO things. We

> started DHA

> > when he was 20 months old, and he has had (maybe) a couple of ear

> infections

> > since..he is one of the healthiest of my kids, ,,if we happen to

> get a cold

> > or the flu, danny is usually the one who is least affected by it.

> And that

> > was certainly not the case before. His doctor and his early

> intervention

> > therapists were all amazed at the changes in him, because he was

> healthier

> > and his development (cognitive and physical) just took off

> >

> > I have to make a special point in the last several years to

> schedule well

> > child checkups for him, because he rarely needs to go to the doctor

> for

> > illnesses anymore. So. I do think that nvd has helped him. BUT I

> also know

> > lots of kids in our local group who do not use the supplements, and

> they are

> > very healthy and doing well in school, etc..I personally think that

> giving

> > Danny supplements will help him in the long term as well as short

> term,

> > however, I have also thought for a long time that there are a lot of

> > biochemical variations in people w/Ds, and NVD can't possibly be

> *right* for

> > everyone.but I DO believe that it can be helpful to many people

> w/Ds.the

> > science behind the need for targeted supplementation is sound, I

> think. So

> > even if your child is not on nvd, I personally think that it would

> be a good

> > idea to learn about antioxidants, because we know that there is a

> lot of

> > oxidative stress in Ds, and it does cause damage.

> >

> >

> >

> > When we(Carol, and I) started this listserv, we wanted to

> have a place

> > where parents could talk honestly about a lot of different subjects,

> > including some that are considered controversial. We all feel

> strongly that

> > in order to make informed decisions about what is best for their

> child,

> > parents need to have access to information..both pro and con. It

> has never

> > been our intention to make anyone feel defensive about choices that

> they

> > make for their kids, and I hope that everyone here recognizes

> that. .so

> > please don't hold back from expressing an opinion here, because we

> can all

> > learn from one another. No one is helped if we can't be honest

> about what

> > our experiences have been.

> >

> >

> >

> > And if you don't understand the abstracts, join the crowd.I can

> understand

> > them better now than I used to, but it is still hard for me to make

> sense of

> > some of the more ( " I'm a doctor and you're not " language in some of

> the

> > abstracts.) Ask questions if you want to understand something

> better.I can

> > guarantee you that there will be others who have the same

> questions, but may

> > not feel comfortable posting to ask. So you would be doing them a

> favor;-)

> >

> > kathyR(mom to Mr.Dan who will be 8 on Monday and had his first

> dental x-rays

> > yesterday..took it like a champ;-) and his 6 older sibs)

> >

>