Re: More problems

[Guest guest]

Sorry that things are going haywire, Colleen. I will hold good thoughts for

your husband (what did he have surgery for, and is he OK now?), and I will

also pray that you get more babies to watch so that you can increase your

income! Best wishes to you ... I'm here if you ever need to vent!

~nne

[Guest guest]

Thanks for the good thoughts coming my way nne! 's surgery

was something a little embarrasing to him, so I promised I wouldn't

post to the list about it. He is in some pain, but doing better. He

went back to work Wednesday.

As for the babies, I'm hoping to find someone to replace her soon!

Just found out that Thursday of next week is her last day, very sad!

Colleen

[Guest guest]

Dave,

I have had problems with my knees locking up and it kind of feels

like a pop. It usually happens if I move my knee the wrong way and

when it does, oh God, I can't move. I just have to sit there until

it finally " pops " back. My rheumy said that it is a sign of

deterioration in the joint (woo hoo, what great news!). My hands and

knees were where the first place that I had pain and one of my knees

swells up like a basketball sometimes. When that happens, I have to

go in to see the rheumy and he tries to drain the fluid and gives me

a cortisone shot (another painful experience!) but without it, I

wouldn't be able to work because I can't bend my knee. I'm sorry

that you are having such pain and frustration. I hope that your new

meds work out. A lot of people are having great success with the

biologics. I have had mixed results. I had a severe site reaction

with Enbrel, Remicade just quit working, and now I am trying Humira

combined with mtx. Throughout the years I have tried every NSAID they

have come out with to no avail and I was on mtx by itself before the

biologics. I use a topical steroid for the P but it never fully goes

away. I hate it! Anyway, I have good days and bad but at least I am

having some good ones now. I would check with the insurance company

and see if they cover the biologics and how much they cover because

they are unbelievably expensive. I am lucky that I only have to pay

a $20 copay but my insurance is through my job so if something ever

happened and I couldn't work, I'd be screwed. I just got turned down

by our long term disability insurance because of the the arthritis.

What a drag. Anyway, hope you are having a good day today - it's

Friday so I can rest tomorrow and that's what keeps me going!!

PS: To all: I think it's so cool that some of us are only living a

few hours away from each other and then there are those of you guys

that are halfway around the world - all with the same problem (and

answers or at least help

Cheryle

> I want to ask has anyone had problems with there joints poping and

> causing extreme pain. Well about five weeks ago I had a Baker's

cyst

> behind my right knee and it ruptured I had to go into the hospital

> for a night mainly to get a MRI. Well I was off of work and on

> crutches for about a week. While I was getting better I was getting

> in my car and I was sitting in the seat I had put my right leg in

> and was bringing my left leg which had very little pain into the

> car. I am still not sure what happened but I think my foot(shoe)

> caught the cement and caused a twisting action in my knee which

made

> a poping sound and sensation. Also extreme pain for a while like 15

> minutes I could not move. Well I bit the bullet and went on my way

> but it did not get any better over night this was before I had seen

> my Rheumatologist so I went to my family doctor which said just to

> stay off of it and see if it gets better( I could move it but it

> hurt like hell). Well in a couple of three days it got better and

> everything was fine.

> Guess what I did it again today but it was my right knee and a

> little different. I was at work (I work nights) I was getting out

of

> my car which is kind of low and I have trouble just standing up if

> you know what I mean. So I had turned to the side both of my feet

> were out of the car I grabbed the top of the door with one hand and

> the seat with the other like I always do. When I went to stand up

a

> loud pop( I think I felt it more than heard not sure because of the

> pain) and then the extreme pain in my right knee. I laid back in

the

> car for about 15 or 20 minutes then got the courage to try to get

up

> again. This was at 1:00pm today and I am still at work and very

> painful to get up and down or walk. The pain is on the side of my

> knee and by the knee cap. I have my knee and foot out to the side

> which feels better but if I try to put my foot straigt it really

> hurts. If anyone has had anything like this please comment.

>

> Thanks,

[Guest guest]

Hi ,

Sorry to hear of your problems.

Back before I began taking MTX, I did have a couple episodes like you

descibed. I popped my knee twice. Both times, no injury, no damage,

just a heck of alot of pain. My Rheumy told me that the inflammation

and slight deterioration of the bone were likely the culprit. Also

that the more deterioration, the more likely this would occur.

Thankfully my weekly dose of MTX stops the inflammation, stops my

pain AND I haven't had my knee pop since.

You don't mention if you are treating your PA, but hopefully whatever

drug treatment or method you are using has stopped the inflammation,

thus the the deterioration of the bones, or you could be looking at a

regular event. If your treatment already does stop the inflammation,

You MAY have too much bone deterioration and MAY need to have some

reconstruction to stop this problem. As always, consult your doctors.

Stay Well

[Guest guest]

Hi ,

I have not had anything like that happen to me but I am currently having

problems with my right knee. It is painful but not as bad as some of my joints

just now. The thing is though, that is exactly the way I have been describing

it to people, like it is going to just pop out if I move the wrong way. The

problem is on the inside of my leg just beside my kneecap. I am due to see my

Rheumy next month so I will ask about it. Maybe he will X-ray it. I will let

you know as soon as I do.

Cheers,

[Guest guest]

In a message dated 6/23/2004 1:19:23 PM Eastern Standard Time,

martincoyless@... writes:

The

problem is on the inside of my leg just beside my kneecap. I am due to see

my

Rheumy next month so I will ask about it. Maybe he will X-ray it. I will

let

you know as soon as I do.

I have had that problem with both of my knees and ended up with a torn

meniscus. I felt a pop with both knees when they tore. I hope that is not

the

case with yourself. This will now show on an xray and you will have to get

an MRI if the xrays are negative. I ended up having arthroscopic surgery on

each knee at different times.

Janet

[Guest guest]

Thanks Janet,

I will certainly ask my Rheumy. I said that I was to see him early next

month but I have just realised that the appointment made was for his Enbrel

clinic. Only problem is......I'm not on Enbrel.......yet. They were going to

start

me on it and changed their mind at the last minute but the appointment was

made by that time. I think I will just go anyway.

Thanks again,

[Guest guest]

At 05:39 PM 8/5/05 +0000, you wrote:

>Sorry for the lack of participation lately, I've been busy.

>Remeber the leg pain I was complaining of, well it flared up bad and

>that got the diagnosis work moving, seems I have some sort of

>growth/tumour on my shin bone that I think developed from the inside

>of the bone through to the outside. I had a surgical biopsy done a

>week ago and am still anxiously awaiting the results. Please keep

>your fingers crossed for me.

Hi ,

Definitely let us know what you find out....and we will keep our

fingers crossed for good news for you.

C.

[Guest guest]

> Sorry for the lack of participation lately, I've been busy.

> Remeber the leg pain I was complaining of, well it flared up bad

and

> that got the diagnosis work moving, seems I have some sort of

> growth/tumour on my shin bone that I think developed from the

inside

> of the bone through to the outside. I had a surgical biopsy done a

> week ago and am still anxiously awaiting the results. Please keep

> your fingers crossed for me.

Dear ,

I have my fingers crossed for you. The waiting is tough -- and you

have to be tougher. Please keep us posted.

Kathy

dx 5/03