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Bob W's update..........long

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Hello dear friends,

Sorry I have been remiss in posting....too much happening in our lives.

Bob will be having open heart surgery on Thur 7/28, to replace the aortic heart

valve. I'm sure he'll be fine. Should be in the hospital for 5-6 days, I'm

told. His son and my two daughters will be there with us, so I am thankful for

that.

Bob is still having to have transfusions. He was in the hospital last week

overnight and was given 3 units of blood. His HGB was at 4.2 and HCT was 13.3!

The transfusions put him up to 10 and 33.1. The dr said this is being caused by

the meds he takes for the high platelets. Since they suppress the platelets,

they also suppress other blood making factors. He is currently on 8 mg

Anagrylide and 1000 mg Hydroxyurea. When he was at UCLA on 7/11, his platelets

were 1381, so that's when Dr Sawyers added the HU. He also had 2 units

transfused on 7/6, when he was hospitalized because of another small stroke. So

our hope is that once his heart is fixed and there is enough oxygen getting to

his brain these small strokes will cease. They last about 24-30 hrs, and he

cannot remember his name or mine and has difficulty walking, etc. Not really

full blown strokes, but all the symptoms are there. So that's where we are at

this point. All prayers welcome!! And we do know that they

help.

Another thing going on in our lives is his daughter, Connie, who has colon

cancer metastasized to the liver. We took her to UCLA and they admitted her for

10 days and tried everything to help her, but nothing could be done. The tumors

are too great in the liver, so they cannot do surgery or anything. She has a

drainage tube in her stomach and another one in the abdominal cavity, because

her liver is non functioning, and she is very swollen. She cannot eat anything

except liquids, ice and popcicles. She is home now (at her brother's) and is on

Hospice Care, which has been fantastic. Our daughter-in-law, , has been

Connie's caregiver and I'm going to recommend her for saint hood. She has given

her all to take care of Connie. I'm kind of glad that Bob's mind is in the

condition it is because maybe it won't hurt so much when Connie is gone. She is

his little baby girl. I tell him everything that is going on but I'm not sure

how much is getting through.

So that's how it is with us. I will try to let you know how the surgery goes

when we get back home. It's taking place in Bakersfield, about 2 hrs from here,

so I'll be staying in a hotel near the hospital with no internet!

So congratulations to all who have had good news lately and hang in there to all

the others! I'm sorry that I don't have time to respond to all the emails that

I would like to.

blessed be love and hugs to all nancy w inyokern ca

temp 116 deg!!!

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