MDACC followup and 100 day biopsy results.

[Guest guest]

Return Visit to MDACC and 100 day biopsy results.

Had a very frustrating trip to Houston today to discuss the results of my last

biopsy, because some of the information is missing and some of the test results

contradict other test results.

I will compare the results of my 60 day biopsy with my 100 day biopys.

60 Day biopsy:

Peripheral Blood PCR 5.6

Bone Marrow PCR 13.5

100% Donor Cells

100 Day Biopsy:

Peripheral Blood PCR 1.8 (good decline)

Bone Marrow PCR: info missing, test was never completed.

Bone Marrow shows 100% donor cells, but the peripheral blood shows only 79%

donor cells. (very bad)

My onc thinks this is donor cell discrepancy is an anomally and spoke with the

head of the lab, who agrees. They are running the test again on the same sample

they took two weeks ago. Hopefully, it will confirm that I am still 100% donor

cells, and that the peripheral blood reading was an error. As it stands right

now, the onc does not no for sure if I am getting better (the drop in Peripheral

Blood PCR value indicates that, my blood counts indicate that), or if I am

getting worse (he has to clear up this donor discrepancy first)

Talk about a rock and a hard place!

Good news is the central line was yanked out today! Yay....that thing gets to be

a real ball and chain after a while.

We decided to reduce the tacrolimus as planned even though the discrepancy

exists...so now I am on 1mg every other day. Half of what I was originally

taking in the beginning. I also remain on 600mgs of Gleevec.

So, although the signs are good that things are improving, we have to wait for

retesting results to disprove the anomally.

I go back down in two weeks for another test (just peripheral blood)

We drove all the way down there, spent a night at the Rotary, spent the whole

day at the hospital, and came back with questionable and partial information.

Frustrating.

That's all the info I have now...will update again when I know more.

Regards and Prayers, DT