tests

[Guest guest]

To all who asked me about test I send this to all to

avoid many eamil. I was to Hematology clinic

yesterday, My gleevec was increased to 300 from two

hundred my counts were plat=39,000 Hem=129,000 and

wBC=5,000. In the next week or so my platlets will

either go up or down. We will allow the Platlets to

go down to 20,000 before they make up their minds.

They would love to get me to the 400m mark. So again

I wait. Now I know how an elevator operator feels.

Thanks for your e-mail, I do appreciate your concern.

Skip

" It is only with the heart one sees rightly- What is

essential is invisible to the eyes "

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

If he takes 300 one day and 400 the next and continues this

alternating pattern, it's considered to be a dose of 350mg which I

believe is now considered to be the minimum effective dose.

Tracey

> how do you propose for Skip to take 350mg?? just curious.

> There is the 400mg that can be split.......and a 100mg..........

> I suppose just make another cut??

> I will tell you, when I sometimes cut my 400mg in 1/2 on the score

line,

> the exposed end does give a bitter taste...but doable.

>

> C.

[Guest guest]

Thanks Tracey! I am hoping to be able to get the dose to 400 mg soon. I go see

a new doctor in a few weeks and I will discuss it with him.

Tracey <traceyincanada@...> wrote:Hi ,

300mg used to be the minimum effective dose but I believe in the last

teleconference that the L & L Society put on, Dr. Mauro said they now

believe that 350mg is the minimum effective dose. I'll try to find

something concrete for you.

Take care,

Tracey

--- In , jennifer bosse <jenniferabosse@y...>

wrote:

> So, 350mg is the minimum effective dose? I thought that 300 was.

Where can I get a hold of that information? Thanks, B

>

]

[Guest guest]

Hi Tracey

Thanks for the succinct reply to Kathy's question. Somehow I have

battled to find that information and I have been doubtful about the

way my oncologist is handling things - you cleared that up for

me...we are on track appropriately so that makes me feel better.

Kathy...thinking about you and hoping everything comes right for you.

Jane

> >

> > What are all these tests that you talk about? The only test

I've

> had

> > since finding out that I had CML last July is the BMB and CBC

> blood

> > work. Should I have been having other tests that I don't know

> about?

> > Please enlighten me. My head is spinning from all this and last

> night

> > I went to CML Hope and realized there was more that should be

done

> that

> > hasn't. I am thinking of changing Oncologists again, seems

she's

> not

> > doing what needs to be done. My white count stays in normal,

red

> count

> > is below normal, I've been given 3 pints of blood already. But

> the

> > Gleevec since having gastric bypass eats up my potassium, and

has

> > caused errosions in my new pouch. There is no way you can take

> the

> > Gleevec with a meal. One we aren't allowed to drink 30 minutes

> prior

> > to eating or 30 minutes after eating. We can't drink down an 8

oz

> glass

> > of water with the pills, we have to sip. Had I known this would

> be the

> > problem, I would never have had the weightloss surgery that Amy

is

> > getting ready to have. Don't get me wrong, I have no regrets

> having

> > the surgery, but I wish I had known more before I even

considered

> the

> > surgery. But I didn't know and now I am paying for it being

sick

> > constantly. Thank you Kathy

> >

>