Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 Hello All, Here is a simple update on where I have been and what has been going on. I started the summer semester off with a bang on the 13th of June. I attended classes on the 13th and 14th. The evening of the 14th I came in from school with a spliting headache. I have had headaches in the past but nothing like this one. My wife took my temp and I was running near 103. She saw me through the night and the next morning called my ONC. He said to get the ball rolling and get me to an emergency room. So off we went. Several hours later we were seen by the doctors and after pumping me full of various pain meds and running many test it was determined that I had viral minigitus. I was placed on a ward and soon developed pneumonia on top of the minigitus. After a hard battle and 11 days in the hospital I was released to the house. I was told that I would be weak for several weeks and I would gradually build my strength back up. I am proud to say that today I cut the grass. I still am not 100% but I feel stronger everyday. I had to drop all classes this summer which puts me almost a year behind but at this point I really don't care. The fact that I am well is more important than school right now. A few days ago I went for my monthly with the ONC. He had some bad news. Last month we ran the FISH and PCR test. The resuls came in while I was in the hospital. I didn't get the FISH results yet but the PCR came back positive. He said that a number wasn't sent and he is contacting the company for the actual numbers. He also told me that as soon as all of this other stuff is cleared up he is bumping me up to 600mg of Gleevic. He is also once again pushing for a transplant. I hate to hear that! Anyway, that is where I have been and what has been going on. I hope life finds you all well and cared for. I will update you as I get more info myself. Smile, Herring Quote Link to comment Share on other sites More sharing options...
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