Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 I have only one small spot on the back of my head that is P, is that very uncommon to have very little P but have PA? <snip> Thanks -- Diane >> I currently have very little P as well, just on my scalp and it isn't anywhere near totally covered. When the P was at its height, I had it only on my scalp, elbows, one knee and a bit on my face. That was several years ago. I also understand that there are people whose PA arrives before the P, although it may not be recognized as PA because there is no P. How confusing is that?!? Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 1999 Report Share Posted November 30, 1999 Jerry Springer is such a nitwit. Although my part in Malkovich wasn't that long, I believe it was an excellent piece and kudos to Vern too. We, the actors, need more good roles, not one every other year or whatever. I want to portray us so badly in a positive strong light. Maybe even one of us can write a fantastic script. Why not a Bond girl, Bond of course. Or the owner of a strong business corporation, etc. Give us the material and we'll do the best we can to make you all proud of us. Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 1999 Report Share Posted December 1, 1999 Judi, you do have a good idea there gal! I have been writing such a script for over a year now. I missed a huge deadline with my book and had to forfeit some advances, so now I feel this will take less time, and hopefully, get to the right people in less than a year. It is about 1/3 finished, not 1/3 started...LOL Warm ones to everyone, Debi Hoggan Re: Digest Number 203 > From: Outsider AngelSpider <xmaself@...> > > Jerry Springer is such a nitwit. Although my part in Malkovich wasn't that > long, I believe it was an excellent piece and kudos to Vern too. > > We, the actors, need more good roles, not one every other year or whatever. > I want to portray us so badly in a positive strong light. Maybe even one of > us can write a fantastic script. > > Why not a Bond girl, Bond of course. Or the owner of a strong > business corporation, etc. Give us the material and we'll do the best we > can to make you all proud of us. > > Judi > > --------------------------- ONElist Sponsor ---------------------------- > > The Mental Health Practitioner's Instant Resource Library for $5.99! > This concise 4-book set is a time-saving aid for basic clinical tasks. > (a $139.35 value) Order NOW at Behavioral Science Book Service. > <a href= " http://clickme.onelist.com/ad/dblselect1 " >Click Here</a> > > --------------------------------------------------------------- --------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 1999 Report Share Posted December 1, 1999 Debi, write me a role kiddo, you won't regret it. Those of us in the LPA community who are real actors, need some good roles. Don't particularly write them with short-staturedness in mind, after all I am a woman. (smiles) Give me a way to tell the world how we really are. Not the buffoon roles. If you want my resume, to see my other talents too, I'll work with you. Let me help you. If you want names of serious others, I'd be more then happy to accomodate you. I'll be your ear to lean on. There is such an incredible lack of work for the group of us trying to make a living at this. Judi At 08:12 AM 12/1/99 -0700, Hoggan Clan wrote: >Judi, you do have a good idea there gal! I have been writing >such a script for over a year now. I missed a huge deadline with >my book and had to forfeit some advances, so now I feel this will >take less time, and hopefully, get to the right people in less >than a year. It is about 1/3 finished, not 1/3 started...LOL >Warm ones to everyone, Debi Hoggan > Re: Digest Number 203 > > >> From: Outsider AngelSpider <xmaself@...> >> >> Jerry Springer is such a nitwit. Although my part in Malkovich >wasn't that >> long, I believe it was an excellent piece and kudos to Vern >too. >> >> We, the actors, need more good roles, not one every other year >or whatever. >> I want to portray us so badly in a positive strong light. Maybe >even one of >> us can write a fantastic script. >> >> Why not a Bond girl, Bond of course. Or the owner of a >strong >> business corporation, etc. Give us the material and we'll do >the best we >> can to make you all proud of us. >> >> Judi >> >> --------------------------- ONElist >Sponsor ---------------------------- >> >> The Mental Health Practitioner's Instant Resource Library for >$5.99! >> This concise 4-book set is a time-saving aid for basic clinical >tasks. >> (a $139.35 value) Order NOW at Behavioral Science Book >Service. >> <a href= " http://clickme.onelist.com/ad/dblselect1 " >Click >Here</a> >> >> --------------------------------------------------------------- >--------- >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2000 Report Share Posted April 1, 2000 > > I hope you are having your amalgams removed in the approved way. Hi , Yes, I have a dentist that is Mercury Free off the DAMS list. Still he drilled some and I have had some lympy node pain, but Ray S. says that is maybe from the solvents they used. Not doing chelation yet as I have a fortune to spend and more time than money. Just will have to stay sick a little longer till the funds are available to get the dental work done. I have been exposed to so many quacks in the dental profession that my teeth have huge silver fillings that will need caps when the mercury is taken out and replaced with composites....this is a battle for sure. Dr.'s have such huge ego's especially when you want to be a part of your own healing....they do pretty good if you don't ask to many questions or give them any idea that you might know more on a certain subject than they do. AND GAWD FORBID you take them anything off the internet for educational purposes.... Thanks again, Lucinda >There is a protocol for removal of amalgams, and for chelation of metals >after removal. The dentist is supposed to chip out the fillings not >just drill them. You need to be monitored by a doctor for mercury >levels, and DMSA chelation done at no more than 100mg a day. I have >not yet found a dentist or doctor that understands what they are supposed >to do, or that understands to do the protocol properly. I am currently >educating my doctors, and it is a battle, but armed with published NIH >information even these " experts " can learn. LTLDAB1@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2000 Report Share Posted April 1, 2000 Hi , Boy you have a problem here don't you? Maybe soy would be a good protein substitue for the meat, dairy and eggs? I'm allergic to soy but can eat meat. Also I started taking Armour Thyroid about a month ago and do have more energy. Hopefully when we get the mercury outta our mouths and outta out bodies the thyroid will kick in again and alot of the allergic symptoms will also disappear. We can hope ! ) Also beans and rice or potato's in combination are good for protein. Also I am reading a book called " Potato's not Prozac about sugar sensitive people, she has some pretty good information in there to. Just keep asking questions, sooner or later someone will have the info you need...good luck Lucinda >Hi, >I was wondering if there are any vegetarians on the list. The times I've tried to go vegetarian I feel great for maybe a month and then get very tired--now I realize that could be thyroid related. Is there any way to be successful as a vegetarian with hypothyroidism? Dairy is not an option nor are eggs since I am allergic to both. I can eat meats-fish-chicken but prefer not to. > > C-MI >--- >ICQ# 46118702 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2000 Report Share Posted April 1, 2000 Yes what you are saying is very true, and I have found doctors to act in the same fashion as you said. I told them that I had some information for my doctor and they would smile in an understanding fashion to try to appease me and make me feel better, like they were talking to a inquisitive child. They became very sober when shown Ray S's information, and very very very attentive when confronted by my information from NIH, and other government sites, and then I emailed them some more. It is kind of hard for them to ignore the EPA, CDC, FDA, ect., and university studies from around the world. When they hear internet information they are expecting someones opinion, I kind of blind sided them by producing more factual information than they knew. From Dr. Bakers site there are some things that you can do if you can not do chelation yet. http://www.y2khealthanddetox.com selenium, Vit. C, chlorella, fresh uncooked garlic, (keeps vampires away too) multivitamin, probiotics (little microbes for the belly), and MSM sulfer, many large chain drug stores should have what you want, but ask a lot of questions. Please confirm my thoughts with Ray if you can, and go into the mcfsn archives, and also look them up yourself on the other government sites. Also go into the /messages/autism treatment site to review informational addresses there, and also learn more about thimerosal (mercury). I don't know if we can save ourselves, but the least we can do is save the next generation yet unborn. LTLDAB1@... > > I hope you are having your amalgams removed in the approved way. Hi , Yes, I have a dentist that is Mercury Free off the DAMS list. Still he drilled some and I have had some lympy node pain, but Ray S. says that is maybe from the solvents they used. Not doing chelation yet as I have a fortune to spend and more time than money. Just will have to stay sick a little longer till the funds are available to get the dental work done. I have been exposed to so many quacks in the dental profession that my teeth have huge silver fillings that will need caps when the mercury is taken out and replaced with composites....this is a battle for sure. Dr.'s have such huge ego's especially when you want to be a part of your own healing....they do pretty good if you don't ask to many questions or give them any idea that you might know more on a certain subject than they do. AND GAWD FORBID you take them anything off the internet for educational purposes.... Thanks again, Lucinda >There is a protocol for removal of amalgams, and for chelation of metals >after removal. The dentist is supposed to chip out the fillings not >just drill them. You need to be monitored by a doctor for mercury >levels, and DMSA chelation done at no more than 100mg a day. I have >not yet found a dentist or doctor that understands what they are supposed >to do, or that understands to do the protocol properly. I am currently >educating my doctors, and it is a battle, but armed with published NIH >information even these " experts " can learn. LTLDAB1@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2000 Report Share Posted July 2, 2000 Dear Sara: The PCR is a time consuming and costly test, and that's why many do not order it too often. It is also a pain to get the same, because after drawing the blood, you have to spin it down, then open the tube (or use a needle and syringe), and take off the serum only. It then has to be transferred into a plastic container and immediately frozen. It has to remain frozen until the lab is ready to conduct the test. But, from what you have said, if you are really concerned, get an order to another set of PCR-RNA quant and qual. That will tell you what is going on. The LFTs are probably useless to you at this point, and, for peace of mind, only the viral level will help give you what you are looking for. But, again, understand that lab values do change, and can change frequently depending on many factors. Since this is stressing you out, (understandably), then focus on the viral load, because, it sounds like the stress and similar issues are going to cause further problems, and that is not wanted. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2000 Report Share Posted July 2, 2000 Dear Sara: The PCR is a time consuming and costly test, and that's why many do not order it too often. It is also a pain to get the same, because after drawing the blood, you have to spin it down, then open the tube (or use a needle and syringe), and take off the serum only. It then has to be transferred into a plastic container and immediately frozen. It has to remain frozen until the lab is ready to conduct the test. But, from what you have said, if you are really concerned, get an order to another set of PCR-RNA quant and qual. That will tell you what is going on. The LFTs are probably useless to you at this point, and, for peace of mind, only the viral level will help give you what you are looking for. But, again, understand that lab values do change, and can change frequently depending on many factors. Since this is stressing you out, (understandably), then focus on the viral load, because, it sounds like the stress and similar issues are going to cause further problems, and that is not wanted. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2000 Report Share Posted July 2, 2000 Dear : You are experiencing something that many people experience. It is usually caused by one of two things and can be easily dealt with. I have found that most people get this because their sugar levels get too low. I am not talking about measuring it the same way we do diabetics, but, your body is not releasing, or absorbing the sugars as it should. By drinking something sweet, or eating something that has sugar in it, usually relieves the symptoms. Also, to make sure your body is not making up it's own rules, eating smaller, more frequent meals also seems to help. My wife went through this, and, 7 weeks after stopping therapy, she still gets this feeling. The other common cause of symptoms like yours is your blood pressure being too low. This is relative to what you body believes it needs. If your brain does not feel it has enough oxygenated blood to go around. As a protective measure, it will force the blood stream to first make sure the vital organs have what they need. These include the brain, heart, liver, kidneys, lungs, etc. If it suspects you are not getting enough, or that you are not removing enough waste products from your system, it cuts the flow to all the " unnecessary " body parts. These include legs, arms, and other areas with major muscle groups. If you are able to fight it long enough, it will actually make you pass out to protect itself. In the heat, when you are working towards trying to make all your organs happy, it becomes that much more difficult. It's like a room full of teenagers at a party. They all want to be at the party, but some want to dance, the guys are trying to act in a manner to impress, (or be a jerk), for the ladies, the guys have one thought on their minds, and it may not amount to anything. You may have some that want pizza, some want snacks, some may be doing drugs, or whatever. But the fact remains, that as the host you have certain guidelines that will be followed, because it is your house and you make the rules. They can follow them or leave. You know some will try to " bend " them a little, and they are looking to see how far they can go. This is normal and healthy. Everyone can work together towards having fun without any problems. But, if someone(s) are going to cause a problem, you want to calm it down as early as possible to avoid any potential real hassles. That may mean having some go to one part of the house and others to another location. The body is not much different, and if the rules are broken, they can leave, or, you can throw them out. But, someone has to be in control and try to make the majority have a good time. That is what your body will do-it will set up some rules, and if something unusual happens, such as excessive heat, or similar, then it either separate parts out, or ends the party until it has control again. Just make sure you get a lot of fluids. Eat small meals more frequently, and take breaks as you need them. I hope that the fatigue may not get any worse, and that may be reasonable. Where are you, week wise, in therapy? Your body will still have the fatigue to some extent, but, you also may be one of the stronger people that will overcome this easier then others, so you may already have passed the " normal " worse times. Just take one day at a time. By the way, where are you located?, I think you told me once, but I forgot. Please stay in touch and keep up the positive and good work. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2000 Report Share Posted July 2, 2000 Dear : You are experiencing something that many people experience. It is usually caused by one of two things and can be easily dealt with. I have found that most people get this because their sugar levels get too low. I am not talking about measuring it the same way we do diabetics, but, your body is not releasing, or absorbing the sugars as it should. By drinking something sweet, or eating something that has sugar in it, usually relieves the symptoms. Also, to make sure your body is not making up it's own rules, eating smaller, more frequent meals also seems to help. My wife went through this, and, 7 weeks after stopping therapy, she still gets this feeling. The other common cause of symptoms like yours is your blood pressure being too low. This is relative to what you body believes it needs. If your brain does not feel it has enough oxygenated blood to go around. As a protective measure, it will force the blood stream to first make sure the vital organs have what they need. These include the brain, heart, liver, kidneys, lungs, etc. If it suspects you are not getting enough, or that you are not removing enough waste products from your system, it cuts the flow to all the " unnecessary " body parts. These include legs, arms, and other areas with major muscle groups. If you are able to fight it long enough, it will actually make you pass out to protect itself. In the heat, when you are working towards trying to make all your organs happy, it becomes that much more difficult. It's like a room full of teenagers at a party. They all want to be at the party, but some want to dance, the guys are trying to act in a manner to impress, (or be a jerk), for the ladies, the guys have one thought on their minds, and it may not amount to anything. You may have some that want pizza, some want snacks, some may be doing drugs, or whatever. But the fact remains, that as the host you have certain guidelines that will be followed, because it is your house and you make the rules. They can follow them or leave. You know some will try to " bend " them a little, and they are looking to see how far they can go. This is normal and healthy. Everyone can work together towards having fun without any problems. But, if someone(s) are going to cause a problem, you want to calm it down as early as possible to avoid any potential real hassles. That may mean having some go to one part of the house and others to another location. The body is not much different, and if the rules are broken, they can leave, or, you can throw them out. But, someone has to be in control and try to make the majority have a good time. That is what your body will do-it will set up some rules, and if something unusual happens, such as excessive heat, or similar, then it either separate parts out, or ends the party until it has control again. Just make sure you get a lot of fluids. Eat small meals more frequently, and take breaks as you need them. I hope that the fatigue may not get any worse, and that may be reasonable. Where are you, week wise, in therapy? Your body will still have the fatigue to some extent, but, you also may be one of the stronger people that will overcome this easier then others, so you may already have passed the " normal " worse times. Just take one day at a time. By the way, where are you located?, I think you told me once, but I forgot. Please stay in touch and keep up the positive and good work. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2000 Report Share Posted July 2, 2000 Dear Suzy: My wife is doing fairly well, thank you for asking. She completed therapy beginning of May, 2000, her 4 week post treatment viral loads were undetectable, and her regular blood counts are slowly coming back to normal. She is feeling less tired, but is still not back to 100%. Each day is usually better. The normal blood counts, with viral loads are done at the end of therapy; about 4 weeks after the end of therapy, and then 6 months after completion of therapy. After that it will probably be yearly. This is all assuming there are no other abnormalities, or medical problems that need monitoring. Please stay in touch. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2000 Report Share Posted July 2, 2000 Dear Suzy: My wife is doing fairly well, thank you for asking. She completed therapy beginning of May, 2000, her 4 week post treatment viral loads were undetectable, and her regular blood counts are slowly coming back to normal. She is feeling less tired, but is still not back to 100%. Each day is usually better. The normal blood counts, with viral loads are done at the end of therapy; about 4 weeks after the end of therapy, and then 6 months after completion of therapy. After that it will probably be yearly. This is all assuming there are no other abnormalities, or medical problems that need monitoring. Please stay in touch. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2000 Report Share Posted July 3, 2000 Thanks Marty for your input. I live in the Dallas area of Texas HEAT is something I used to enjoy before I got hep! The fatigue and intolerance to heat are not new to treatment for me. I'm in month 2 (forgot the week). Last year I had to rent a car for the summer to go to work cause our car with the a/c, the a/c stopped working. Yes I've found smaller more frequent meals help me feel much better. I will try the morning sugar thing. I guess that is one of my " sides " of treatment, the exhausted fainty feeling in the a.m. Or I may have felt that way before treatment but just hurt so bad I never knew it. But I'll sure take this fatigue over the hurting I did before treatment. Once I'm over the morning fainty thing, I feel fine and enjoy the day Till I wind down, and then it's lites out till I recharge. Thanks again! alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2000 Report Share Posted July 3, 2000 Thanks Marty for your input. I live in the Dallas area of Texas HEAT is something I used to enjoy before I got hep! The fatigue and intolerance to heat are not new to treatment for me. I'm in month 2 (forgot the week). Last year I had to rent a car for the summer to go to work cause our car with the a/c, the a/c stopped working. Yes I've found smaller more frequent meals help me feel much better. I will try the morning sugar thing. I guess that is one of my " sides " of treatment, the exhausted fainty feeling in the a.m. Or I may have felt that way before treatment but just hurt so bad I never knew it. But I'll sure take this fatigue over the hurting I did before treatment. Once I'm over the morning fainty thing, I feel fine and enjoy the day Till I wind down, and then it's lites out till I recharge. Thanks again! alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2001 Report Share Posted January 22, 2001 It is long past 08.01.01 Any chance of deleting this? > Digest Number 203 > > HAPPY CHRISTMAS AND 2001! > I'M ON HOLS UNTIL WEEK OF 8.01.01 SO > UNABLE TO REPLY JUST NOW > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2004 Report Share Posted May 23, 2004 Robin, Great question "Are there any published articles/reports showing when it does NOT work?" I havent ever seen any reports saying that it doesnt work... I would imagine that there would be some articles out there stating its ineffectiveness in correcting structural curves. What ARISE and ISOP are strongly advocating is early treatment with serial corrective plaster casts for progressive non structural scoliosis.. As far as I know, there are no articles published stating that early treatment with casts is ineffective for those cases. For severe curves that havent been treated early, casts will maintain a childs curve far more effectively than any brace EVER could....Until the child is absolutely ready for surgical intervention and has growth on his/her side. About being rejected from 1 Shriners.....I am really not sure on this one?? Does anyone else know Shriners rules on that? HRH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 Hi , I'm in Winter Park (Orlando FL). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Hey Gang: I don't know about the rest of you guys, but in addition to the yearly flu shot, my Doctors also recommend that I am current on the Pneumonia Vaccine. I am at risk for Pneumonia as I have had 3 bouts. . . but this might be something that the 'Older and At Risk' brother and sister survivors need to check into. As always. . . you Guys are in my prayers. " K " " I AIN'T FINISHED YET " !!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Yep not sure if you have had that Pneumonia shot but its once only and you carry a card around that you have had it my Hem Doc and GP both reommend those shots and to get them early as this years flu has already started it appears SkipD --- IAintFinishedYet <kttweety@...> wrote: > Hey Gang: > > I don't know about the rest of you guys, but in > addition to the yearly flu shot, my Doctors also > recommend that I am current on the Pneumonia > Vaccine. > > I am at risk for Pneumonia as I have had 3 bouts. . > . but this might be something that the 'Older and At > Risk' brother and sister survivors need to check > into. > > As always. . . you Guys are in my prayers. > > > > > " K " > " I AIN'T FINISHED YET " !!! > > > > [Non-text portions of this message have been > removed] > > ______________________________________________________ for Good Donate to the Hurricane Katrina relief effort. http://store./redcross-donate3/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Skip, I believe that the pneumonia vaccine is only good for 5 years. I had one when I was diagnosed 6 years ago, and just had another one recently. Skip Duffie <skipd_2002@...> wrote: Yep not sure if you have had that Pneumonia shot but its once only and you carry a card around that you have had it my Hem Doc and GP both reommend those shots and to get them early as this years flu has already started it appears SkipD --------------------------------- for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
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