Re: Still Off Gleevec

[Guest guest]

Hope your new year is better Susie.

I seem to be having the same trouble, I guess. Not

sure where we are going from here. My counts are all

low. Seems like 400 mils a day is too strong for my

system. I am on weekly blood tests. I go on Tue next

week, and we will know then.. If my WBC goes much

lower than its present 3.1k and my platlets at 17k

and with low Hem I am cold all the time. I do not

know if they will keep me on Gleevec or tansfuse me..

I guess with me having CML so long they are playing

around.. I am on two month PCR testing..Interesting

ride I must say.. So I await your next post to see how

thngs are going with you ... To you and all the rest

of the group a very happy healthy new year from Nova

Scotia

Skipd

--- Susie <leechys@...> wrote:

> Hi all well here we are at the end of 2005. Well for

> all who new that

> i went off Gleevec at the end of November, i spoke

> to Tim this

> morning and he mentioned that my qpcr went from .174

> to .2 in three

> days and he is alittle concern what its done for the

> month that ive

> been off. Im having

> a blood test on tuesday and he is gonna push it

> through and hopefully

> ill have results in two weeks. He said ive got two

> options. one is I

> can stay off Gleevec and go up to 35% and be

> avaliable for the new

> drug or he has spoken to a american friend of his

> who is a doctor with

> cml and he also cant tolerate the drug so he has two

> months on and one

> month off. Ill have to see not really sure what i

> want to do at this

> stage. Fingers X but im gonna put it at the back of

> my mind and enjoy

> the rest of 2005 and survive the New Year without

> side effects of

> Gleevec. Ill keep you posted.

> Merry Christmas to all and hope you all have a happy

> and safe New Year.

>

> Susie Off Gleevec

> Dx Nov 02

>

>

>

>

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