Re: Another quick check-in

[Guest guest]

At 12:16 AM 9/28/05 +0000, you wrote:

>So we have lots of exciting news that four years ago seemed

>impossible.

Hi ,

You do have lots of exciting things going on. I always love the way you

describe your daughter....you can tell she is the light of your life....and

the next baby will be lucky to join your family. I have upgraded rental

houses (mostly the cosmetics) and it is a lot of fun....actually I like doing

the landscaping. Best wishes for all your ventures and your goals for the

next year.

C.

[Guest guest]

,

It is always so good to hear from you. Congratulations on all your

good news. Wow, house, growing family and your lovely daughter

growing up before our very eyes it seems!

Yes, your doctor does have a controversial view of things. Many

doctors have thought about stopping FISH all together. It would

force the absolute need for standardization of PCR testing. However,

I think there will always be different " camps " for everything. Those

who wish to embrace the challenging and new, with those who like to

take things on a steady easier route. We should all be lucky that

there are so many options for us all to chose from. I'm very happy

having my QPCR's done on a regular basis by the same tech's and

equipment. More than 17% of the " normal " population will test

positive for the BCR ABL transcripts, this tells me that there is so

much to learn from QPCR's however frustrating they are.

All this to say, I hope you can tell us how it goes for your doctor

in Italy. I hear it is quite a well attended meeting - the debate

will be interesting.

All the best to you,

Cheers and love,

Cheryl-Anne

> Hello friends,

> Good to read up and hear from old friends. I have been out of touch

a

> while too, mostly because I have also put the CML on the backburner

in

> order to focus on the busy-ness of life (a wonderful luxury that I

> don't take for granted). I am almost 4 years since being dx'd with

my

> then 3-month old in my arms. She just turned four last

month

> and has the most incredible imagination I have ever witnessed. I

know

> I have said this about every age, but this one is really the best!

> This weekend we are off to Seattle where she will be the flower

girl

> in my cousin's wedding. I am sure I'll cry.

>

> I am still PCRU (since 9/02). My Dr. still insists that being CCR

(in

> Zavie's Zero Club) is really all we need to worry about though. He

> thinks that because PCR's so often bounce around, the tests cause

more

> worry than necessary. He is going to Italy to discuss this

unpopular

> point of view with the experts there. I wanted to mention that for

> those of you who are concerned about the ups and downs of the PCR

> tests.

>

> I am still working from home in international sales and may

eventually

> have an opportunity to start my own business. That has been put on

the

> backburner too though, in the interest of maintaining a steady

salary.

>

> My husband and I bought a little old ugly (understatement) house on

a

> beautiful lot in a great school district. We are working with a

> builder to gut it, revamp it, and add a second story to it. Should

be

> done in about 6 months. It is a very exciting project! We'll be

> settled into it by the time starts kindergarten.

>

> And..last but not least, our biggest news of all. We have made the

> decision to pursue adoption to expand our family. We have always

> wanted multiple children. A few weeks from now, we will have

completed

> our profile and home study and will be waiting for a birthmother to

> choose us for her child. It will probably take a year or more, but

you

> never know! Incidentally, my oncologist wrote a very emphatic

letter

> about the state of my health - using stats on Gleevec, etc., making

it

> clear that he supports our belief that we are more than capable of

> parenting again. That felt good to read!

>

> So we have lots of exciting news that four years ago seemed

> impossible. I miss being in constant touch with you all, and wish

you

> the very best of everything.

> xoxo-

> in MI

> dx'd Hodgkins 1994

> Radiation treatment

> dx'd CML 12/01

> 400mg Gleevec

> CCR 05/02

> PCRU since 09/02

[Guest guest]

Hi ,

So glad to hear from you. It's just great how many of us have put

CML on the backburner because we are doing so well. I wish you the

best in your new " ugly " house and I hope the adoption process won't

be to long and maybe soon you'll be blessed with a new addition to

your family.

Cheers,

Lowson

> Hello friends,

> Good to read up and hear from old friends. I have been out of

touch a

> while too, mostly because I have also put the CML on the

backburner in

> order to focus on the busy-ness of life (a wonderful luxury that I

> don't take for granted). I am almost 4 years since being dx'd with

my

> then 3-month old in my arms. She just turned four last

month

> and has the most incredible imagination I have ever witnessed. I

know

> I have said this about every age, but this one is really the best!

> This weekend we are off to Seattle where she will be the flower

girl

> in my cousin's wedding. I am sure I'll cry.

>

> I am still PCRU (since 9/02). My Dr. still insists that being CCR

(in

> Zavie's Zero Club) is really all we need to worry about though. He

> thinks that because PCR's so often bounce around, the tests cause

more

> worry than necessary. He is going to Italy to discuss this

unpopular

> point of view with the experts there. I wanted to mention that for

> those of you who are concerned about the ups and downs of the PCR

> tests.

>

> I am still working from home in international sales and may

eventually

> have an opportunity to start my own business. That has been put on

the

> backburner too though, in the interest of maintaining a steady

salary.

>

> My husband and I bought a little old ugly (understatement) house

on a

> beautiful lot in a great school district. We are working with a

> builder to gut it, revamp it, and add a second story to it. Should

be

> done in about 6 months. It is a very exciting project! We'll be

> settled into it by the time starts kindergarten.

>

> And..last but not least, our biggest news of all. We have made the

> decision to pursue adoption to expand our family. We have always

> wanted multiple children. A few weeks from now, we will have

completed

> our profile and home study and will be waiting for a birthmother

to

> choose us for her child. It will probably take a year or more, but

you

> never know! Incidentally, my oncologist wrote a very emphatic

letter

> about the state of my health - using stats on Gleevec, etc.,

making it

> clear that he supports our belief that we are more than capable of

> parenting again. That felt good to read!

>

> So we have lots of exciting news that four years ago seemed

> impossible. I miss being in constant touch with you all, and wish

you

> the very best of everything.

> xoxo-

> in MI

> dx'd Hodgkins 1994

> Radiation treatment

> dx'd CML 12/01

> 400mg Gleevec

> CCR 05/02

> PCRU since 09/02