Re: chronic infections - a question

[Guest guest]

>Marietta - I had endless infections before diagnosis and they

continued after I was finally diagnosed. Mine were for the most part

sinus (two surgeries because none of the antibiotics could clear

things up), kidney, and bladder. I get IVIG (gamma globulin) infusions

every 4 to 6 weeks depending on my labs. In addition to a CBC + a chem

panel my doctor tests for IgG IgA and Igm every 4 weeks. The IgG count

determines how often I have the infusions.I also take Macrobid

(Nitrofurantoin - 100mg) nightly to prevent further kidney/bladder

problems per my nephrologist. According to him it does not cause the

body to build up a resistance to antibiotics like some of the others

can.I have been fairly infection free recently - much better than

before in this regard. Pat (another newcomer)

> Happy New Year, all. A question along the lines of infections.

>

> Over the past 7-8 months I've had one infection after another,

starting with an asymptomatic low-grade fever that lasted several

months and resulted in weight loss, extreme fatigue and musle wasting

(I lost 20 pounds). I started to feel better generally, but then soon

followed a stream of annoying infections on fingers (very painful)

or mouth sores (ditto). My oncologist said my bloods were okay, and

that sometimes people with CLL have these oddball infections. But it

didn't really start happening until 4 years AFTER diagnosis (Stage IV)

and treatment with Rituxan and Fludarabine. Why should I suddenly get

these infections? Would IgG be good for me?

>

> Thanks!!

>

> Marietta

>

[Guest guest]

Pat, Thank you so much for your answer to Marietta. I found it very informative since I've been getting so many infections lately. It seems as if I'm on antibiotics every couple of months. Arlene - Diagnosed 2001--on W & Wpkenn16 <pkennedy16@...> wrote: >Marietta - I had endless infections before diagnosis and theycontinued after I was finally diagnosed. Mine were for the most partsinus (two surgeries because none of the antibiotics could clearthings up), kidney, and bladder. I get

IVIG (gamma globulin) infusionsevery 4 to 6 weeks depending on my labs. In addition to a CBC + a chempanel my doctor tests for IgG IgA and Igm every 4 weeks. The IgG countdetermines how often I have the infusions.I also take Macrobid(Nitrofurantoin - 100mg) nightly to prevent further kidney/bladderproblems per my nephrologist. According to him it does not cause thebody to build up a resistance to antibiotics like some of the otherscan.I have been fairly infection free recently - much better thanbefore in this regard. Pat (another newcomer)> Happy New Year, all. A question along the lines of infections. > > Over the past 7-8 months I've had one infection after another,starting with an asymptomatic low-grade fever that lasted severalmonths and resulted in weight loss,

extreme fatigue and musle wasting(I lost 20 pounds). I started to feel better generally, but then soonfollowed a stream of annoying infections on fingers (very painful)or mouth sores (ditto). My oncologist said my bloods were okay, andthat sometimes people with CLL have these oddball infections. But itdidn't really start happening until 4 years AFTER diagnosis (Stage IV)and treatment with Rituxan and Fludarabine. Why should I suddenly getthese infections? Would IgG be good for me?> > Thanks!! > > Marietta>

[Guest guest]

Hi Pat - Many thanks for your response. I'm sorry you've gone

through so much! It's heartening to hear that the IVIG seems to be

working well for you. I saw my oncologist yesterday who took bloods

to see if I'm eligible for IVIG. He says it's no picnic, but that

side effects were minimal if anything. Did you experience any?

Marietta

>

> > Happy New Year, all. A question along the lines of infections.

> >

> > Over the past 7-8 months I've had one infection after another,

> starting with an asymptomatic low-grade fever that lasted several

> months and resulted in weight loss, extreme fatigue and musle

wasting

> (I lost 20 pounds). I started to feel better generally, but then

soon

> followed a stream of annoying infections on fingers (very painful)

> or mouth sores (ditto). My oncologist said my bloods were okay, and

> that sometimes people with CLL have these oddball infections. But

it

> didn't really start happening until 4 years AFTER diagnosis (Stage

IV)

> and treatment with Rituxan and Fludarabine. Why should I suddenly

get

> these infections? Would IgG be good for me?

> >

> > Thanks!!

> >

> > Marietta

> >

>