Re: new member looking to meet other leukemia folks

[Guest guest]

Jayne, when I was first diagnosed I, too, was a single mom with two

daughters, and found it an enormous struggle. Back then, most of us did not

have

Gleevec yet, and had to be treated with Interferon, injecting ourselves with

shots that made us so sick, feverish. When Gleevec came I was able to do more,

and be with my girls more. I don't know what kinds of side effects you are

having? I was on Gleevec for 3 years before the side effects became disabling,

but I still get around enough to go see my daughter's soccer games, cook

meals, and go shopping with them.

I hope you can find solace in the fact that there are many of us out here

who can help get you through difficult times, answer questions and be there for

you. Sorry you have to be here, but it is comforting to have others to talk

to. CML is scary and I can only imagine what you are feeling....Lynne s

[Guest guest]

Hey Jayne,

I hope you are able to continue on the gleevec despite the side effects. With

any luck you will get over them quickly and be able to get back to living your

life. Hang in there and big hugs!

:}

View our family's newest photos at webshots

The time goes by so fast..

[Guest guest]

Hi Jayne,

Welcome to the club that nobody really wants to be a member of.

You might want to join us on a live chat on Tuesday evenings on

Messenger. Write me for details.

Zavie

>From: " jaynecml " <jaynecml@...>

>Reply-

>

>Subject: [ ] new member looking to meet other leukemia folks

>Date: Thu, 27 Oct 2005 12:33:24 -0000

>

>Hi my name is Jayne. I was diagnosed with CML in Feb. 2005. I am

>currently on Gleevec and struggling with the side effects. I am not in

>remission as of yet. I am a single mom with a 5 year old daughter. I am

>hoping to meet other people who are fighting the same battle, for

>support, friendship and hope. Jayne

>

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[Guest guest]

Hi Jayne,

Sorry to hear of your diagnosis...it is not where any of us want to

be, but here we are anyway. I was diagnosed in May of 2005. I have

two girls (ages 1 and 4). I am sorry to hear you are dealing with

side effects of Gleevec. How many mg are you taking? I have been

fairly lucky in not having many. They come and go. This is a great

group of people and are always willing to answer your questions?

>

> Hi my name is Jayne. I was diagnosed with CML in Feb. 2005. I am

> currently on Gleevec and struggling with the side effects. I am not

in

> remission as of yet. I am a single mom with a 5 year old daughter.

I am

> hoping to meet other people who are fighting the same battle, for

> support, friendship and hope. Jayne

>