UP Date - CHOP + R Diffuse Large B Cell Lymphoma/CLL

[Guest guest]

I have

been doing just. fine. Had 3rd chemo yesterday & changed up the dosage a

little. Dropped

to

Cytoxin to 700, and the “red drug” to 700 I was having white counts

dropping fast to nothing. Have taken Neupron (sp?) shots and have had two

Neulestra shots ( one today). Main problem I’m having with

CHOP+R

is the mouth sore thing. It is bad – and lasts a good 7 days. Take

all the

anti fungals (mouthwashes – soda water – diflucan, etc– It is

just

going to last 7-10 days regardless. Makes eating difficult. When white count

gets doc he puts me

on

Levaquin antibiotic . Red counts staying up 10 – 12 so that’s good.

Have had

a wonderful Christmas feeling well, and eating – Had one extra week off

this

time because of Holidays, so enjoyed the extra “well” week.. Gained

3 of the 5

pounds I

had lost back – so that was good. Children came home so we had a nice

Christmas.

Had cat

scans last week. He said there was still a spot where they took out the

lymph

node in groin area. Talking about some radiation after chemo, but said

it might

leave my leg in one big mess (swelling) - so will decide later. I think it

would

be a

good idea. Discussed just having 4 chemos

vs 6. Don’t

know how I feel about that. Have you ever heard of this? Protocol calls

for 6.

Said we

were making progess. Said some other nodes were showing up,

but he seems

to think they are CLL related.

Treatment

hasn’t been as bad as I thought it would. Have had lots of energy, of

course

taking

all the prednisone makes you hyper, but I sleep good at night naturally, for I

stay

busy

most of the time.

Good

wishes to all for a Wonderful 2008/

Barb N.

“CLL transformed poster child”- Arkansas