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Re: Digest Number 184

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> The WHO

> recommends delayed clamping unlesss there is a complication.

>

> Cory

>

I can not help but comment here!

The W.H.O. is not high on my list of objective information.

The W.H.O. is behind the the campaign to vaccinate the world against everything.

And does anyone know just " who is the W.H.O. ? "

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In a message dated 4/6/99 2:52:32 AM Eastern Daylight Time, marcy@...

writes:

<< I can not help but comment here!

The W.H.O. is not high on my list of objective information.

The W.H.O. is behind the the campaign to vaccinate the world against

everything.

And does anyone know just " who is the W.H.O. ? "

>>

So does the AAP!! Oh yeah, and the AMA. The World Health Organization is

by far one of the more intelligent agencies...although it still does its

share of harm. At least they advocate healthy initiatives like extended

breastfeeding and midwifery, they do not bow down to the pharmaceutical

companies and the AMA the way we do in the US. Money is the only reason why

all those poor formula fed babies are given such a lousy start in life, and

the drugged births and c-section rates!! Grrrrr. I could go on and on about

how W.H.O. is a far better organization than anything we have in the states.

Just my not so humble opinion,

~~G

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  • 2 weeks later...
Guest guest

Hello everyone, the following is from Bill. Bill and took a trip up

to Ed's property, and found some flood damage in his home that will have to

be dealt with. So, if anyone was thinking about contributing to his fund

(which again, all monies will be returned upon the sale of his property)

please feel free to do so.

Ed is now in a much nicer, minimum security facility. It has a good

reputation. We hope he will be staying there, and that he will be as

comfortable as possible for the remainder of his time in prison.

Again, he is always so happy to receive any letters.

Thank you for everything,

Tangerine

Greetings everyone!

Ed was finally transferred. Below is the mailing address to be used

" exactly as given " when corresponding with Ed.

We can still use additional financial help for those willing to help, or

those who have 'considered' to help.

The fund raising campaign for his mortgage was a huge success, as I have

noted in a prior message to the list. So we have THAT covered for now.

But... there are still expenses we need and are going-to-need to cover,

such as repairs to the plumbing system in his house which was damaged by

the winter freeze, painting, general repairs, etc.

You can also mail Ed money for his commissary and phone account.

In this new facility, Ed can once again make " direct " phone calls, as

opposed to COLLECT calls which where required in the prior facility.

Ed's current address:

J. McCabe 08536-052

Unit " B "

P.O. Box 1000

Montgomery, PA 17752

Once again everyone, thanks!, for your continuing support for Ed.

Bill Galkowski

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  • 1 year later...
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Hi ,

I was also told to take a multivitamin without iron until just this past

visit when the doctor said to switch to the multi with iron because of the

problem with ribavarin. I have been taking a multi without iron since

diagnosed with hep c in 98. I haven't tried B-12 but will check into it.

Thank you.

Beth

_______________________________________

________________________________________________________________________

Message: 4

Date: Tue, 13 Jun 2000 22:26:36 EDT

From: CCampb3234@...

Subject: Re: Digest Number 183

Hi beth,

I was told only take a multivitamin without iron, did you

ever try B-12 shots? I take them once a month, still working full time, (not

that I want to) so I think they are helping, how much, I don't know?

________________________________________________________________________

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Hi ,

I was also told to take a multivitamin without iron until just this past

visit when the doctor said to switch to the multi with iron because of the

problem with ribavarin. I have been taking a multi without iron since

diagnosed with hep c in 98. I haven't tried B-12 but will check into it.

Thank you.

Beth

_______________________________________

________________________________________________________________________

Message: 4

Date: Tue, 13 Jun 2000 22:26:36 EDT

From: CCampb3234@...

Subject: Re: Digest Number 183

Hi beth,

I was told only take a multivitamin without iron, did you

ever try B-12 shots? I take them once a month, still working full time, (not

that I want to) so I think they are helping, how much, I don't know?

________________________________________________________________________

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Hi ,

I was also told to take a multivitamin without iron until just this past

visit when the doctor said to switch to the multi with iron because of the

problem with ribavarin. I have been taking a multi without iron since

diagnosed with hep c in 98. I haven't tried B-12 but will check into it.

Thank you.

Beth

_______________________________________

________________________________________________________________________

Message: 4

Date: Tue, 13 Jun 2000 22:26:36 EDT

From: CCampb3234@...

Subject: Re: Digest Number 183

Hi beth,

I was told only take a multivitamin without iron, did you

ever try B-12 shots? I take them once a month, still working full time, (not

that I want to) so I think they are helping, how much, I don't know?

________________________________________________________________________

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Guest guest

Hi ,

I was also told to take a multivitamin without iron until just this past

visit when the doctor said to switch to the multi with iron because of the

problem with ribavarin. I have been taking a multi without iron since

diagnosed with hep c in 98. I haven't tried B-12 but will check into it.

Thank you.

Beth

_______________________________________

________________________________________________________________________

Message: 4

Date: Tue, 13 Jun 2000 22:26:36 EDT

From: CCampb3234@...

Subject: Re: Digest Number 183

Hi beth,

I was told only take a multivitamin without iron, did you

ever try B-12 shots? I take them once a month, still working full time, (not

that I want to) so I think they are helping, how much, I don't know?

________________________________________________________________________

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  • 10 months later...
Guest guest

Hi ,

I don't want to rain on your parade, but I to went to a pain management Dr.,

and he suggested S.I. joint injections, and or epidural steroid injections.

I had 2 S.I. injections, one week apart, as an out-patient, on the x-ray

table. I had no relief whatsoever from either one. Then the Dr. decided

that we should switch to the epidural steroid injections. We did that, and

the first one brought no relief either. He kept telling me that three times

was the charm. Well, I came back for a 2nd. one, (which was my 4th.

injection), and when that did nothing either, I said it was time to call it

quits. He tried to talk me into having one more. Why? was my question, as

I already had all that steroid in me, and it didn't make any difference.

The injections are somewhat painful, but if it had taken my pain away, it

would have been worth it. When I asked him what else we could try, he said

that injections are all that he does. When I asked about pain medications,

he said I should ask my family Dr. Some helpful guy, huh? Maybe you'll be

a lot more lucky than I was in the relief dept., but that's my story.

Bonnie K.

At 02:42 PM 4/15/01 -0000, you wrote:

>

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In a message dated 4/15/2001 12:55:59 PM Eastern Daylight Time, dabon@...

writes:

> Some helpful guy, huh? Maybe you'll be

> a lot more lucky than I was in the relief dept., but that's my story.

>

That seems to be the impression that I am getting. I have seen several

doctors and they all want to operate again. I got the feeling that this was a

last ditch effort more than anything. So far, I have not talked to anyone

that has had any great success with them. Plus the pain and discomfort level

has ranged from, uncomfortable to unbearable. I think at this point they do

not have a clue as to what to do about my pain and I am at the point that I

am not letting anyone touch me.

Thanks for the answer though!

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In a message dated 4/15/2001 3:05:05 PM Eastern Daylight Time,

zjcole@... writes:

> My pain management doctor never even suggested

> anything other than medication.

He did give me a script for pain meds but was pretty much saying that this

would be all that he could do for me and if it did not work then I could

return to my ortho and set up something surgical.

Thanks,

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Bonnie, Long before my surgeries, I tried the

injections. I only had one because it made the pain

much, much worse. It seemed like he hit the bone.

Anyhow, he hurt me so much and it took so long to get

over, I refused to return for the other injections

too. That was an referral by a GP and done in the

operating room as an out-patient.

My pain management doctor never even suggested

anything other than medication. He knows, I've

already tried many options which failed and has no

problem with the drugs in my case. I suggest you

locate another doctor.

Good luck.

=====

Jeanette

__________________________________________________

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  • 2 weeks later...
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Hi Shari!

you mentioned a computer called EAROBICS. I was wondering if you have

their website informaton or the manufacturer's name? thanks for any help!

C.S.

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  • 3 years later...
  • 10 months later...

Hey Group:

CONGRATS!!! To everyone that's doing better, I am so proud of us, and I don't

hestitate to let people know either. On the other hand, I always share the

negative also.

What I need to know, however. . . Is the PCR a blood test or BMB??? I haven't

had a BMB since diagnosis and I am not looking forward to another one. It didn't

hurt during, as they used lidocaine, but several hours later. . . I WAS ON

FIRE!!! I have an appointment in a few days, and I can't ask my doctor, because

he told me that a FISH and PCR are the same. I have to educate him on that when

I go in. Let me know, I believe PCR is a blood test.

You guys, as always, are in my prayers.

" K "

" I AIN'T FINISHED YET " !!!

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Hi K,

No, the FISH and PCR tests are completely different however they do

look for the same thing so maybe that's the confussion you're having

with your doctor?

Either test can be done on peripheral blood or marrow but as I've

said, they now prefer to do the PCR on peripheral blood because they

can get a bigger sample of cells to examine.

The main differences in the two tests are their sensitivity. The

FISH test typically examines 200-500 cells whereas the PCR has the

capability to examine a million. Obviously the more cells you look

at, the better the picture will be regarding disease status. There

are also differences in the techniques used to actually examine the

cells but I won't bore you with the technical side of it. Suffice

to say that the two tests are different and one should not replace

or substitute the other.

Take care,

Tracey

> Hey Group:

>

> CONGRATS!!! To everyone that's doing better, I am so proud of us,

and I don't hestitate to let people know either. On the other hand,

I always share the negative also.

>

> What I need to know, however. . . Is the PCR a blood test or

BMB??? I haven't had a BMB since diagnosis and I am not looking

forward to another one. It didn't hurt during, as they used

lidocaine, but several hours later. . . I WAS ON FIRE!!! I have an

appointment in a few days, and I can't ask my doctor, because he

told me that a FISH and PCR are the same. I have to educate him on

that when I go in. Let me know, I believe PCR is a blood test.

>

> You guys, as always, are in my prayers.

>

>

> " K "

> " I AIN'T FINISHED YET " !!!

>

>

>

>

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