Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 Hey there, once again im posting a message, something i dont do very often but im in a tug of war at moment and could do with some help and encouragement. Ive been on Gleevec for three years now. The Onc (Tim ) says im in ok range but he wants me lower so I can have better risistance. But my problem is I suffer so much even after three years with diareah, vomiting, joint ache, loss of vision, many days walking like a 60 year old (im only 42) 5 out of 7 days my feet feel like im walking on glass. Theyve checked me out for many things but have just come down as side effects to Gleevec. My delemia is...even though im havning many side effects Gleevec is working for me...But hey, sometimes we have to choose quality not quantity of life. Tim tried hard to get me on one of the two new drugs that is coming to Australia but with all the red tape Tim said he can't get me on there. So when Tim told me that I lost it..ive now taken myself off Gleevec to give my body a break. Tim isnt happy about it but he is i must say just the best Onc and very supportive. Im wondering if any of you guys have had my same delema and how did you cope with it. My emotions are up and down so much...HELP..(please remember when you reply that australia is behind other countries so at this stage Gleevec is the only avaliable new drug avaliable to us) Susie DX Nov 2002 Quote Link to comment Share on other sites More sharing options...
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