Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 Hi Jackie: Sorry you had to join our group but a warm welcome to you. Being scared is just part of the disease and we have all been there. Today, with Glivec and two other wonder drugs, the future looks bright for a long normal life for you and all of us with CML. When you begin Glivec, be sure and take it with plenty of water and food. For most folks the side effects are pretty mild, and for many, such as myself, barely noticeable. You might feel tired and experience some bone pain, while the Glivec kills the leukemic cells in your marrow-akin to growing pains really and for most people not terribly bad. These pass. You may have a little peripheral edema. Be sure to drink lots of fluids throughout the day and if you develop chronic heartburn, see your doctor and ask to be put on Prevacid or another heartburn medication. I see Dr. Druker and he is a great believer in treating any chronic heartburn aggressively, to prevent ulcers. He was the one that put me on Prevacid. I take it once a day- 12 hours apart from the Glivec, as it can affect the amount of GLivec in your bloodstream and slow down absorbtion (not a good thing). This group has a great deal of information and support and there are members in Australia, who will be posting, I am sure. Take care and don't worry! Best regards, Fred Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2005 Report Share Posted November 30, 2005 Thanks Fred :-) seems I'm also going to have to get a grip with all these technical terms as well! fwj3200 <fred@...> wrote: Hi Jackie: Sorry you had to join our group but a warm welcome to you. Being scared is just part of the disease and we have all been there. Today, with Glivec and two other wonder drugs, the future looks bright for a long normal life for you and all of us with CML. When you begin Glivec, be sure and take it with plenty of water and food. For most folks the side effects are pretty mild, and for many, such as myself, barely noticeable. You might feel tired and experience some bone pain, while the Glivec kills the leukemic cells in your marrow-akin to growing pains really and for most people not terribly bad. These pass. You may have a little peripheral edema. Be sure to drink lots of fluids throughout the day and if you develop chronic heartburn, see your doctor and ask to be put on Prevacid or another heartburn medication. I see Dr. Druker and he is a great believer in treating any chronic heartburn aggressively, to prevent ulcers. He was the one that put me on Prevacid. I take it once a day- 12 hours apart from the Glivec, as it can affect the amount of GLivec in your bloodstream and slow down absorbtion (not a good thing). This group has a great deal of information and support and there are members in Australia, who will be posting, I am sure. Take care and don't worry! Best regards, Fred Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.