Re Proprolactic medicins post RF

[Guest guest]

I know Dr. Furman has weighed in on this topic but I just wanted to

say my oncologist Dr Strair agrees with him. I am on prophylactic

meds every day and he says I will continue until my counts improve. I

can't take bactrim, it seems I had a reaction to that when I was in

the hospital for electrolyte imbalance so I take mepron and acyclovir

and fluconazol.

I had dental surgery so I have to take amoxicillin 4 x 500 mg before

surgery and three times a day for the week after the surgery. This is

mostly because I still have my port.

My doctor is very cautious. I completed four rounds of RF in March

and now I have to see him in two months instead of the usual three

months. I don't mind because he has my best interest in mind.

Also wanted me to introduce myself to the group although I note

that most of you know me from ACOR and the CLL forum. I live in New

Jersey, I was diagnosed with possible b cell lymphoma in November 2003

which was changed to CLL in January 2004 although Dr. Castro

my second opinion doctor calls it CLL/SLL my doctor doesn't, but that

is semantics. I was watch and wait until November 2007 and started

treatment because of enlarged lymph nodes so bad that they thought I

had breast cancer! They went down almost immediately after treatment

and have not yet returned so my doctor says I am in remission although

I have not yet had another ct/pt scan because there was some issues

with the insurance, which has been resolved. I am starting a self

help support group in central New Jersey in the fall.

Jeannette Brown