Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 , This is a great idea! I am continually blessed and astounded by the ideas that you women come up with to fight the good fight! We may be sick, but we are not going down! Heh, heh. No matter what the manufacturer's say to try to convince the FDA and the public that implants don't cause our illnesses, there is one thing that is never going to happen. Women are never going to shut up about what has happened to them. Like a bad dream, women are going to keep coming forward to speak out about their implant nightmares--because women are continuing to get implants, and continuing to get sick, and we are not stupid. We have the brains to figure it out. (Hmmm, how come the doctors don't?) You go ...I wish you the best in your endeavor. Best wishes on your explant too! You are in great hands with Dr. Feng! She's awesome! Hugs, Patty > Hello everyone! Yesterday I was having a really bad day, horrendous > headache, bodyaches, and twitching. So I picked up my video camera > and started documenting my symptoms as I was resting in bed. I want > to be able to have something that shows me at my worst since those > are the times that I hibernate at home. Also, I want to have this > for future use on a documentary if I end up doing one. So I wanted > to ask each of you to pick up a camera on a bad day and film > yourselves if you haven't already. I may not be able to travel in > order to create a documentary for this, but what I can do is take a > collection of videos and edit them together to get something > started. If you tape yourself, you will have total control over what > is or isn't shown or said. Please keep in mind that the more you > show and tell the better your chance of reaching someone with the > truth of our sufferng! I plan on taking the camera with me to Dr. > Feng's and documenting everything that she will allow up there also. > My husband and I will film the entire process of explanting and > dealing with the drains etc. I will send each of you that submit a > tape a formal release form etc. And of course I will include you all > in whatever it is that I am able to do with this. I have a really > big plan that I would rather not say here and now, but I am very > serious about this, and about becoming the Brochovich of our > cause! I especially want to see videos of those of you who are , > like me, down to the last few weeks before explant, and soon > thereafter. > > Feel free to email me offlist! > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Thank you Patty! Of course if it wasn't for women like you who create his type of forum, women like me would still be in the dark! So anything that I am able to accomplish through this will be in large part because of you!!!! : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 that is a great idea. I wish that I thought of it. When I was sick I wouldn't allow anyone to take pictures of me, I just looked so bad. Since I thought I was dying I didn't want anyone to remember me that way. Good luck with your explant, ToniToni Frampton toni_frampton@... Discover Find restaurants, movies, travel more fun for the weekend. Check it out! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 What a great idea! And that is wonderful that your husband is helping!! I also wanted to mention that you should consider being tested for gluen sensitivity. MY headaches got so much better when I cut out gluten. I stuck to my gluten free diet for seven months and then cheated in a small amount while I was in texas 2 weeks ago. As soon as I ingested wheat, I started back up with headaches again. That settled it for me! Hugs kathy > Hello everyone! Yesterday I was having a really bad day, horrendous > headache, bodyaches, and twitching. So I picked up my video camera > and started documenting my symptoms as I was resting in bed. I want > to be able to have something that shows me at my worst since those > are the times that I hibernate at home. Also, I want to have this > for future use on a documentary if I end up doing one. So I wanted > to ask each of you to pick up a camera on a bad day and film > yourselves if you haven't already. I may not be able to travel in > order to create a documentary for this, but what I can do is take a > collection of videos and edit them together to get something > started. If you tape yourself, you will have total control over what > is or isn't shown or said. Please keep in mind that the more you > show and tell the better your chance of reaching someone with the > truth of our sufferng! I plan on taking the camera with me to Dr. > Feng's and documenting everything that she will allow up there also. > My husband and I will film the entire process of explanting and > dealing with the drains etc. I will send each of you that submit a > tape a formal release form etc. And of course I will include you all > in whatever it is that I am able to do with this. I have a really > big plan that I would rather not say here and now, but I am very > serious about this, and about becoming the Brochovich of our > cause! I especially want to see videos of those of you who are , > like me, down to the last few weeks before explant, and soon > thereafter. > > Feel free to email me offlist! > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 Hi Group, I'm just checking in with all of you. I've been following the posts, but I haven't had much to post myself. My PCRs seem stable now at COH at 8.3 x 10E5. Since I've previously been PCRU there, I'm not sure what that means, but I am in the process consulting with MDACC through my hem-onc at COH. Maybe an increased to 600mg or 8oo mg is on the horizon. Quote Link to comment Share on other sites More sharing options...
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