Re: new to the club

[Guest guest]

Lay,<br><br>Welcome to the club.I'm really new to

hypothyroidism,but I hope we do get the chance to chat sometime.I'm

just learning about all the things that come along

with having hypothyroidism,but I'm always open to

talking and learning new things.Take care.<br>Tracey )

[Guest guest]

Hi Jeannine,<br><br>Just to say welcome to the club!<br><br>Joe

[Guest guest]

Jeanine,<br><br>I think your inclincation to cut

back while your injury is in the early stages is a

good one. If I were you, I would do that immediately

and concentrate on building up the medial muscles of

your bad knee with what a knee orthopedic surgeon told

me were the two best exercises for

tracking/CP:<br><br>short arc extensions (extending the knee the last 20-30

degrees) and straight leg lifts. If you hold your position

for ten seconds at the top of the movement, you can

get a good effect in a short time.<br><br>I would

also take glucosamine sulphate long term. (See a

recent post on study published in prestigious Lancet in

Britain.)<br><br>When you knee is no longer painful you can ease back

into some of your more vigorous activities while

continuing the knee exercises.<br><br>I believe an ounce of

prevention is equivalent to about 50 ounces of treatment for

CP. Would that I and many of us here had taken better

care of our knees before our conditions became

serious.<br><br>Tom

[Guest guest]

Deb-

Welcome!!

My son just turned 3, is also non-verbal and babbles a lot!

It's nice to " meet " you, and I'm excited to meet a mom of another non-verbal 3

yr. old!!

amy

>I'm new to this club and have a 3 1/2 year old son diagnosed with CP.

>I heard about this group from a friend and after reading about

>apraxia it sounds a lot like my son. Zakary is not saying anything

>yet, just babbling and does have some feeding difficulties. I have

>ordered ProEFA and am hoping to see some results with it. I do not

>know much about apraxia so any insight that you can give me will be

>greatly appreciated!! TIA

[Guest guest]

Hi ! It really is draining on a parent at times with what our

kids are going through, and putting US through a lot of times. Even

our " normal " kids! How old is your daughter, in the teenage years??

Is she just diagnosed with depression only and in therapy for that?

Or is the therapist trying to treat her for her " obsession " with

you? I know I'm full of questions! But do you two talk about this

problem at all? (If she's a teenager, I know that's not easy!) OK,

I guess that was enough questions, LOL! Here's one link I happened

to have to a site with articles, and one is on obsessive love but it

doesn't really deal with a child/parent; however, it might help to

read to decide if it's an OCD thing or something else.

http://www.homestead.com/westsuffolkpsych/Articles.html

I was thinking, if she just began the Prozac at Christmas, maybe

she'll start showing improvement soon. Seems I've read it can take 4-

6 weeks before the meds even BEGIN to help for a lot of people. If

you don't mind saying, where do you live (state)? If you know of

someone who has experience with treating OCD, I would think they'd be

able to help with your daughter better than just a case manager or

even the psychiatrist depending on his/her expertise!

Feel free to vent away here and ask questions. I'm a single mom, 3

sons: twins that just turned 13; one has OCD and also reminds me of

Aspergers. The other twin has separation anxiety but is doing

better. And a 16 y/o; he's apparently normal, but that's not easy

either lots of the time!

> I think my daughter has ocd and i have read all the material i

could

> in order to better understand ocd. If there is anyone who has

> infromation on how to parent a child who is obessive over a person.

> My daughter wants to look like me, feel like me, and she tries to

> mother me and the other children. I really need help. She is in

> therapy and recieves case mannagment but nobody is listening to me

> when i say she is obessive. We saw a phychiatrist for her

depression

> which she was sucidal at christmas time they refused to put her in

> the hospital but gave her prozac. she also takes buspar. Her

obession

> with me is draining. (not to say i suffer from depression, anxiety,

> and ocd myself. which create more problems).

>

> Please I am needing someone to talk to about her and where i live

> there is nothing.

>

> Thank you,

>

[Guest guest]

Hi Crystal, and welcome to the club. Sounds like you are doing great!

Alys

[Guest guest]

-Crystal,

I'm starting week 3 of my 1st challenge today as well. I have also

noticed a change in how my clothes are fitting...a bit looser. Good

luck to you on your progress. Are you taking supplements? As of yet,

I'm not. I may begin though as 6 meals a day is rather hard to eat.

Maureen

[Guest guest]

Hi Kim -

I had trouble when I first started with getting 6 meals in, but I turned

that last meal into a Myoplex Lite Shake of some sort and that helped out a

lot. I also kind of time my mid-morning and mid-afternoon meals to certain

events... like 9am is when Sesame Street is over so the kids and I usually

have a " snack " together. Then at 3pm Dr. Phil is on TV so I sit down and

have my apple/PB and Burger then. Sometimes it's 2 hrs between meals,

sometimes more like 3-1/2 to 4 hrs, but they all get in.

Good luck and let us know how you're doing!

in WI, USA

New to the club

> Hi all - my name is Kim and I live in Auckland, New Zealand. I am 35

> with 2 children 2 & 5. My hubby is my biggest supporter as well as

> all the friends I have made doing this challenge. This is my first

> challenge and I have just finished week 8. I have not had any

> amazing results ---Y_E_T ---- but I am still hopefull. I also know

> that I am on this for life and I think for me to be where I want to

> it will take me more like a year to get there. I have been looking

> at the photo's and wow these results are amazing. I am 197lbs now I

> was 205lbs and only 5ft 3. I would love to end up with results like

> Rainey's or Park - they are fantastic. I still have trouble with my

> food, but overall my eating is 200% better than it was. I have

> trouble getting in my 6 meals some days and also on the weekends. My

> PT said that my Metabolism has to speed up more then I will see more

> results. I do feel heaps better in myself and heaps more energy to

> do things with the kids. I found this club through links at the BFL

> web site. Thanks for reading. ANY input on eating would be

> excellent. Kim

>

>

>

>

[Guest guest]

,

Welcome and I'm sorry but It could be a lot worse. As to your location, I have

family in St. Louis but I would say to check w/your provider list. It's going to

be trial by feel. I found, and I hope you don't, that a few doctors are not up

on the new protocols (simply because there new) and they don't read much due to

schedules (many patients, family, etc.,). This is still so very new to you and I

applaude you for coming to grips with it so suddenly (it took me some time to

get out of denial). I found that many doctors deal in gloom and doom so I had to

shop around to find a young energetic doctor that shared (or appeared to share)

my enthusisium. So, hang in there and keep checking even if someone suggests a

doctor in your area, he/she may be good for them but not for you.

Again, sorry for your diagnosis but you got it early and hopefully you can

eradicate it. I'm a firm believer that if it goes away, it 'won't' come back.

Key

jenniferabosse <jenniferabosse@...> wrote:

Hello!

My name is and I was diagnosed on May 2, 2005. I am currently

on 300 mg of Gleevec, hoping to get to 400 mg. I have not had a BMB

yet, and will have another FISH in early Nov. I have chatted with a

few of you from the group already....thanks for all of your input so

far. I am still learning all of the lingo and what everything means.

Just when I think I get it figured out, I learn something new.

Question though? Does anyone know any good dr.'s in the st. louis

area. This is where I live close to and am needing to find a new dr.

I don't know if my current dr. is up on all the current research and

have been doubting a little of what he is doing. Also, does anyone

know much about myelosupression? Supposedly, I have that. Anyway,

just wanted to introduce myself. Hope to get to know everyone better.

[Guest guest]

Hi

well do not feel bad about the lingo

I have had CML for over 27 years and just started

Gleevec last January 2004. been on dosages up and down

started 400 stopped restarted 400 stopped started 100

stopped started 100 started 200 that is where I am

today.. just learning this lingo.. myself... all I

know is white count hem count and plat count..

just learned what PCRis and fish are .. had many BMB

(which I just learned the abbrivation of) over the

years.. so welcome and lots of luck ..I am a lucky

guy..as they say ignorance is bliss.. and boy have I

been blissful over the years..

SkipD

--- jenniferabosse <jenniferabosse@...> wrote:

> Hello!

>

> My name is and I was diagnosed on May 2,

> 2005. I am currently

> on 300 mg of Gleevec, hoping to get to 400 mg. I

> have not had a BMB

> yet, and will have another FISH in early Nov. I

> have chatted with a

> few of you from the group already....thanks for all

> of your input so

> far. I am still learning all of the lingo and what

> everything means.

> Just when I think I get it figured out, I learn

> something new.

>

> Question though? Does anyone know any good dr.'s in

> the st. louis

> area. This is where I live close to and am needing

> to find a new dr.

> I don't know if my current dr. is up on all the

> current research and

> have been doubting a little of what he is doing.

> Also, does anyone

> know much about myelosupression? Supposedly, I have

> that. Anyway,

> just wanted to introduce myself. Hope to get to

> know everyone better.

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Hi

well do not feel bad about the lingo

I have had CML for over 27 years and just started

Gleevec last January 2004. been on dosages up and down

started 400 stopped restarted 400 stopped started 100

stopped started 100 started 200 that is where I am

today.. just learning this lingo.. myself... all I

know is white count hem count and plat count..

just learned what PCRis and fish are .. had many BMB

(which I just learned the abbrivation of) over the

years.. so welcome and lots of luck ..I am a lucky

guy..as they say ignorance is bliss.. and boy have I

been blissful over the years..

SkipD

--- jenniferabosse <jenniferabosse@...> wrote:

> Hello!

>

> My name is and I was diagnosed on May 2,

> 2005. I am currently

> on 300 mg of Gleevec, hoping to get to 400 mg. I

> have not had a BMB

> yet, and will have another FISH in early Nov. I

> have chatted with a

> few of you from the group already....thanks for all

> of your input so

> far. I am still learning all of the lingo and what

> everything means.

> Just when I think I get it figured out, I learn

> something new.

>

> Question though? Does anyone know any good dr.'s in

> the st. louis

> area. This is where I live close to and am needing

> to find a new dr.

> I don't know if my current dr. is up on all the

> current research and

> have been doubting a little of what he is doing.

> Also, does anyone

> know much about myelosupression? Supposedly, I have

> that. Anyway,

> just wanted to introduce myself. Hope to get to

> know everyone better.

>

>

>

>

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

At 02:52 PM 9/22/05 +0000, you wrote:

> Also, does anyone

>know much about myelosupression? Supposedly, I have that. Anyway,

>just wanted to introduce myself. Hope to get to know everyone better.

Hi ,

Nice to meet you.

Myelosuppresion......we all have that! to some degree. Gleevec suppresses the

bone marrow.....so we can have fewer of any of the blood cells, not just

the white

leukemia cells. Some people have a low red count, caused anemia and may

even take

a shot to increase the red cells (Procrit is one). Some people end up with

low platelets

which are for blood clotting. Also, the over-all % of cells in the bone

marrow, the cellularity,

can be affected......like being hypocellular (low cells). So, if your

doctor mentioned that

you have myelosuppression, ask him just what he is referring to. When you

start sounding

like you know what you are talking about (and you will pick that up

quickly).....your doctor

should be more specific with you about his findings.

Take care,

C.

Eugene, Oregon

an old timer....with CML x 7 years, on Gleevec for 5.5 years

[Guest guest]

Hi ,

Here's a synopsis taking from this website:

http://www.411cancer.com/syndication/veContent.jsp?ArticleTypeID=TNPV & ArticleID=\

supportive_myelosuppression & lid=1 & clinicid=1

Myelosupression

One common side effect of chemotherapy is myelosuppression, which is a reduction

in the ability of the bone marrow to produce blood cells. The bone marrow

produces three main types of mature blood cells: platelets, red blood cells and

white blood cells. Each of these cell types has a distinct and important

function. Myelosuppression means that any or all of the three main types of

blood cells that are normally produced in the bone marrow are decreased in

number and/or may take a prolonged period of time to return to " normal levels " .

During the period of myelosuppression, patients may be at an increased risk of

infection or bleeding or may experience symptoms from anemia. Additionally,

myelosuppression is the most common side effect that causes chemotherapy

treatment delays or chemotherapy treatment dose reductions. Fortunately, several

drugs have been approved by the Food and Drug Administration to prevent or

decrease the severity of myelosuppression resulting from chemotherapy. To

receive the greatest benefit from chemotherapy, it is important to receive your

chemotherapy treatment on time in the prescribed dose according to your

treatment plan. In order to learn more about the treatment or prevention of

myelosuppression, select the following:

Sorry, hope this explains it..

Key

Cogan <ncogan@...> wrote:

At 02:52 PM 9/22/05 +0000, you wrote:

> Also, does anyone

>know much about myelosupression? Supposedly, I have that. Anyway,

>just wanted to introduce myself. Hope to get to know everyone better.

Hi ,

Nice to meet you.

Myelosuppresion......we all have that! to some degree. Gleevec suppresses the

bone marrow.....so we can have fewer of any of the blood cells, not just

the white

leukemia cells. Some people have a low red count, caused anemia and may

even take

a shot to increase the red cells (Procrit is one). Some people end up with

low platelets

which are for blood clotting. Also, the over-all % of cells in the bone

marrow, the cellularity,

can be affected......like being hypocellular (low cells). So, if your

doctor mentioned that

you have myelosuppression, ask him just what he is referring to. When you

start sounding

like you know what you are talking about (and you will pick that up

quickly).....your doctor

should be more specific with you about his findings.

Take care,

C.

Eugene, Oregon

an old timer....with CML x 7 years, on Gleevec for 5.5 years

[Guest guest]

Thanks <

I plan to ask my doctor about it next time I go in. He did give me a shot last

week (Aranesp) and I will get another next week (for my red count). He said I

was anemic. I do need to work on knowing what I am talking about (I hope to get

better at that)!!

Cogan <ncogan@...> wrote:

At 02:52 PM 9/22/05 +0000, you wrote:

> Also, does anyone

>know much about myelosupression? Supposedly, I have that. Anyway,

>just wanted to introduce myself. Hope to get to know everyone better.

Hi ,

Nice to meet you.

Myelosuppresion......we all have that! to some degree. Gleevec suppresses the

bone marrow.....so we can have fewer of any of the blood cells, not just

the white

leukemia cells. Some people have a low red count, caused anemia and may

even take

a shot to increase the red cells (Procrit is one). Some people end up with

low platelets

which are for blood clotting. Also, the over-all % of cells in the bone

marrow, the cellularity,

can be affected......like being hypocellular (low cells). So, if your

doctor mentioned that

you have myelosuppression, ask him just what he is referring to. When you

start sounding

like you know what you are talking about (and you will pick that up

quickly).....your doctor

should be more specific with you about his findings.

Take care,

C.

Eugene, Oregon

an old timer....with CML x 7 years, on Gleevec for 5.5 years

[Guest guest]

At 08:48 AM 9/23/05 -0700, you wrote:

>I plan to ask my doctor about it next time I go in. He did give me a shot

>last week (Aranesp) and I will get another next week (for my red

>count). He said I was anemic. I do need to work on knowing what I am

>talking about (I hope to get better at that)!!

Hi ,

I also have low red cells and I use Procrit (similar to Aranesp). This is

considered to be a chemotherapy induced anemia.....so eating more foods

with iron or taking iron supplements does not usually help.....you just

have less red cells causing the anemia. It is a pretty common side effect

of using Gleevec. You will get very knowledgeable just reading the list.

Take care,

C.