Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 Hi Sue, What a good question. Below is Zavie's initial email for the start up of the Zero Club dated Mar. 4th 2001. There are now over 880 known zeros on his list. He has been busy which makes us all happy and we so appreciate his work. It's so encouraging to see the list grow. Like you I wonder how Zero Club members are doing. How many have stayed at zero? How many via Gleevec? BMT? BMS? Etc. It'll be great to see what follow up information Zavie can generate for us. Hope you are doing well, Blessings, dx 11/98 From: " zavie miller " <zmiller@...> Date: Sun Mar 4, 2001 2:36 pm Subject: ZERO CLUB zmiller@... Send Email I am attempting to create a list of Zero Club members, and I need your help. So far I have identified a total of 18 members. There are many more out there. If you are a lurker, or know of someone who has achieved pH- while on STI could you please let me know. I would like to contact these people personally concerning The Project. Gale's website was helpful in getting names. I need help with some of the names at the end of the list. Thanks, Zavie ----------------------------------------------------- Bob s email: Bandgandrews@... Bartlett email: lbartlt@... Margie Bovee email: msbovee@... Duty email: kduty@... Dorothy Emery email: doemery@... Jane Graham email: GSGroup@... Greenberg email: myvety2k@... Jill email: richardlj@... Dan McNab email: sheila@... Suzan McNamara email: suzanmcnamara@... Marilyn email: phillipst@... Laurie Posades email: lkposadas@... Jeanelle Street email: Streetjean@... ---------------------------------------------------------------- Can anyone help with the following I could use names and addresses Vinny Carrasco email: sherrycarrasco@h ??? Daughter email: briant@s ??? Tracey wrote that his daughter was a zero Rob Gebauer email: rgebauer@n??? Sabitha Reddy Mother email: mamjack@j??? Daughter Ellen wrote that her mother was a zero. Zavie Ottawa, Canada dxd 8/99 INF 10/99 to 2/00, CHF No meds until 01/01, Hydrea 1g Starting STI March 27 at OHSU > QUESTION....HOW LONG HAS ZAVIE BEEN KEEPING TRACK OF THE ZERO NUMBERS AND IS THERE AN;Y FOLLOWUP INFORMATION ON HOW THE ZERO CLUB MEMBERS ARE DOING LONGTERM? > > THANKS, > SUE > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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