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Re: Re: Low counts

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and Tracey,

You are so correct. I too had to change form being treated as just another

number to a doctor who really gets it. Heck, my doctor didn't even know of the

side effects of Gleevec. I found that if you assist doctors and let them know

that you're in control, they'll work with you. Then more we know the more

they'll learn and want to get things right...

Keyon

Tracey <traceyincanada@...> wrote:

HI ,

Good for you for finding another doctor when the one you originally

saw wasn't up to par on CML. So many of us are so vulnerable at the

beginning and I think it takes some amount of courage to take

control over your life and demand better.

Unfortunately there are plenty of crazy stories out there about some

doctors and how they're treating their patients. Like you said,

these sites are important so that people can know when they're being

gipped of a good service and make the effort to find better.

I'd hazzard a guess that very few of us knew anything about blood

cells or blood tests before we were diagnosed so how else could we

know if we were being treated with competance. These sites are

invaluable as far as I'm concerned.

Take care,

Tracey

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