Newbie - Introduction

[Guest guest]

Hey all,

I am only reading posts on the group site right now. I am pretty

busy trying to keep awake and educated and keeping up with real life

but I wanted to post since I just joined.

I am a 29 year old woman. I was diagnosed 1 1/2 weeks ago with

CML. My WBC was 250,000 at diagnosis and 183,000 one week later.

My spleen was 18 inches below my lungs at diagnosis and 12 inches

one week later. I had 2 blasts at diagnosis and none one week

later. I am on Hydroxyurea 500 mg 2 caps 2xdaily, gleevec 400 mg 1

cap 1xdaily and Allopurinol, 300 mb 1 cap 1xdaily. I have one son,

20 months old and a loving husband.

My concerns right now are survival, of course first and foremost but

also, we do not feel that our family is complete and had planned to

have 3 children. I know that right now I should not get pregnant

but I was wondering what you know regarding possible future

fertility of patients with CML. I know right now my first concern

should be my health and it is but I need to know and prepare myself

if I will not be able to have more children.

Thank you,

[Guest guest]

Hi and welcome to the group. Sorry about your diagnosis but as you

may have gathered in this short time almost all of us on this support group

Also have CML or are caregivers for persons with CML.

This group is a wonderful group. Know that any questions you have regardless

of how irrelevant you may think they are there's almost always someone that

will answer you and or direct you to the best possible resource.

I cannot personally answer you question about pregnancy but I have seen this

topic arise on way more than one occasion. But I can offer a little about

myself when you ask the survival question.

I was 35 years old at diagnosis, mother of 4.

My first form of therapy was Hydrea with daily Interferon and ARC injections

for one year. (Horrible side affects to say the least) and although my CML

had not progressed with these drugs, it had not put me into remission

either.

After one year on that treatment, I started Gleevec 400 mgs. After only 60

days on Gleevec, My biopsy results showed no evidence of CML.

I have been on Gleevec for 4 and half years and I am a 5 and half year

survivor. I for the most part am very fortunate as I do not suffer from any

major side affects.

There are so many new treatments on the horizon that I live with CML as a

chronic disease and I hope that you will too!

ez

Tampa Florida

Dx 5-2000

Interferon/arc/hydrea

6-2001 Gleevec 400 mgs

8-2001 PCRU

essage: 1

Date: Sun, 16 Oct 2005 05:31:12 -0000

From: " Jaromin " <lunaemica@...>

Subject: Newbie - Introduction

Hey all,

I am only reading posts on the group site right now. I am pretty

busy trying to keep awake and educated and keeping up with real life

but I wanted to post since I just joined.

I am a 29 year old woman. I was diagnosed 1 1/2 weeks ago with

CML. My WBC was 250,000 at diagnosis and 183,000 one week later.

My spleen was 18 inches below my lungs at diagnosis and 12 inches

one week later. I had 2 blasts at diagnosis and none one week

later. I am on Hydroxyurea 500 mg 2 caps 2xdaily, gleevec 400 mg 1

cap 1xdaily and Allopurinol, 300 mb 1 cap 1xdaily. I have one son,

20 months old and a loving husband.

My concerns right now are survival, of course first and foremost but

also, we do not feel that our family is complete and had planned to

have 3 children. I know that right now I should not get pregnant

but I was wondering what you know regarding possible future

fertility of patients with CML. I know right now my first concern

should be my health and it is but I need to know and prepare myself

if I will not be able to have more children.

Thank you,

[Guest guest]

Thank you ! I appreciate your positive experience!

:}

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