Re: Diagnosed/Undiagnosed

[Guest guest]

- your lymphocytes being in the 4 to 6 range with a WBC of 10 means that you have 40 - 60% lymphocytes. There si nothing alarming about this. I have no idea why they even think that you might have CLL. Have your CBC checked in 6 months, keep alert for swollen lymph nodes or other "clinical" symptoms (that's what it says in the report, sweating, wait loss, fatigue).

And relax!

Nothing going on to be alarmed about. In my opinion, a second doc would be a waste of time. What was your hemoglobin and red cell count?

Probably not what you wanted to hear....

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[Guest guest]

Thanks, .

My haemoglobin was 118 and my red blood cell was 3.86.

I would like someone to answer all of the questions I asked at the end

of my post.

[Guest guest]

- I do not know all the answers to the detailed questions you asked, many are too obscure to be of significance. Petrhaps someone else might pick up on it. I tent to worry only about the important numbers. I still believe that you are fine, just keep checking once in a while.

Re: Diagnosed/Undiagnosed

Thanks, .

My haemoglobin was 118 and my red blood cell was 3.86.

I would like someone to answer all of the questions I asked at the end of my post.

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[Guest guest]

I thought there was a doctor who answered questions. I would

appreciate that.

>

> - I do not know all the answers to the detailed questions

you asked, many are too obscure to be of significance. Petrhaps

someone else might pick up on it. I tent to worry only about the

important numbers. I still believe that you are fine, just keep

checking once in a while.

>

>

> Re: Diagnosed/Undiagnosed

>

>

>

> Thanks, .

>

> My haemoglobin was 118 and my red blood cell was 3.86.

>

> I would like someone to answer all of the questions I asked at the

end

> of my post.

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

Hi,

Maybe a follow up blood test will shed light. Immune cell counts can

rise in response to an infection, for example. ... sometimes

identifying a trend is more important than the reading from any single

test.

All the best,

Karl

[Guest guest]

Thanks, Karl. They were looking at two years of blood tests.

[Guest guest]

I see, . So with the next test we can hope the numbers will

return to normal levels. I'm not a doctor but that's probably the

reason for the follow up.

All the best,

Karl

>

> Thanks, Karl. They were looking at two years of blood tests.

>

[Guest guest]

Karl, I will be seeing my GP on Tuesday. Maybe she will have some

answers for me, although she did not understand the flow cytometry.

Anwyay, I appreciate your help.

[Guest guest]

GPs do not understand flow cytometry, only immunologists, hematologists, and pathologists. Where do you live, , I'm not on my home machine so I do not have the info here. Perhaps I could refer you to someone, but I still think a follow up in six months is all you need.

Re: Diagnosed/Undiagnosed

Karl, I will be seeing my GP on Tuesday. Maybe she will have some answers for me, although she did not understand the flow cytometry. Anwyay, I appreciate your help.

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[Guest guest]

, thanks again for your help. I live in Toronto. I have a follow-

up visit scheduled for March with the haematologist/oncologist who

seemed so sure that I had CLL. Anyway, I don't. But I'm wondering

what's causing the elevated lymphocyte count. And, I have the names of

two other doctors in Toronto who deal with CLL.

[Guest guest]

Hello Friends: I have been an infrequent and silent participant of the group for past 3 yrs. Even tho' I am a physician, I must admit, that I am probably the least read CLLer about my own disease.

I was diagnosed with CLL in 2/2002 on the basis of Blood, bone marrow & lymph node BX. I had lymph nodes enlargement all over my body except in pulmonary region. At Dana Farber Cancer Institute in Boston, I had been on W & W till 3/07. In 3/07, Due to increase in lymph nodes size and WBC to 17K, a suggestion was made last yr by my Onco to take Chemo.

? too busy to take care of myself, or I suppose, in total denial about my disease, I did not go back to my Hem/Onc after 18 months till Sept 08. Due to extreme tiredness when I saw my doc in Sept o8, I was found filled with much larger lymph nodes including some pulmonary too, WBC count was 288K with 83% lymphs, PLT 151, HCt 25%, LDH 255. I was started on FCR immediately. 2 wks after the first cycle, Blood was absolutely normal & has remained so. Lymph nodes have disappeared also - at least clinically. I have finished 3 cycles, 4th one will start on Dec 17. I have been given Procrit twice, and Neulasta after all 3 cycles. I my energy recovers to some extend after 2 wks of the Chemo cycle.

Questions?

1. Who is/are the best CLL Oncologists in Boston area?

2. What is the opinion on 4 Cycles VS 5 or 6?

3. Any negative effects on bone marrow for taking Neulasta/Procrit?

Suggestions? Any suggestions from anyone.

Thank you all.

Purnima

CLL 2/2002, FCR 9/08-3 cycles done so far.

ATM (11q) deletion in 90% cells, and IGH deletion in 7%

Re: Diagnosed/Undiagnosed

Karl, I will be seeing my GP on Tuesday. Maybe she will have some

answers for me, although she did not understand the flow cytometry.

Anwyay, I appreciate your help.

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