Guest guest Posted August 15, 2005 Report Share Posted August 15, 2005 Hi Nance My name is Judy, I live in Melbourne Australia. I was diagnosed with cml in 1992. I had a bmt from my brother in 1993. I went back to work as a teacher 18 months later and although I was dependant on " intragam " for 7-8 years, I was otherwise healthy and lived a " normal " life. I had a routine blood test last July which confirmed relapse, and change from 100% my brother's marrow to mostly mine again, and 85% ph+. This was a great shock, and with it I became very ill. My oncologist first talked about dli's, but decided to try gleevec first. I started 400 mg of Gleevec in July last year, initially my marrow didn't cope very well and I had to stop therapy twice, but eventually I was able to become established on Gleevec. now I take 400mg per day, with very few side effects, my blood counts are all within the normal range and I feel terrific. My last bmb failed but the blood test showed 0.03% ph, a huge reduction from the 85% at diagnosis. I am happy to give you more details if you wish to email me privately, and perhaps put your oncologist and my oncologist in touch. My oncologist is thrilled with my progress, as am I and is writing a paper about this treatmeent for patients who relapse after transplant. The most promising aspect of this has been the return of my brother's marrow to be dominant. I now have almost 100% male marrow again, and there is some possibility I may be able to trial off Gleevec at some stage. I am 53 years old. I hope this gives you hope, I certainly turned to this list and the wonderful people on it for help last year. judy_telford@... wrote: Send instant messages to your online friends http://au.messenger. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.