Guest guest Posted July 9, 2005 Report Share Posted July 9, 2005 Thank you, Kris and Cheryl, That information is very interesting. Bob has ET along with CML, takes 8 mg of Agrylin daily and has suffered strokes. He also needs a heart valve replacement which is a cause of insufficient oxygen to his brain at times. But perhaps the Agrylin was part of the cause of the initial strokes last year. I will discuss this with Dr Sawyers on Monday and also bring copies of what you both have posted. Thank you so very much. If it weren't for sites like this and folks like you, so many of us would still be in the " dark ages " when it comes to these diseases. Dr Sawyers is always appreciative of the information I bring him from the various sites and on various subjects. I also go to the MPD site and it has a great deal of info on ET, which is very helpful. In fact, UCLA is testing Bob for the JAK2 gene which is mentioned in your articles. Again, thank you....................blessed be nancy w Quote Link to comment Share on other sites More sharing options...
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