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Re: Digest Number 118

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Aloha, Everyone,

thanks to everyone who replied to my questions about Kutapressin and also

B-12. I think mentioned that he mixes Kutapressin with B-12. I'm

sorry that I can't remember everyone's names tonight--I'm not having the

best day.

It would be great if there were some way of systmatically comparing all our

histories, symptoms and treatments to date. That would be quite a project.

I did some searching of my files today--they're a mess. But I did find

most of my test results and reports from my visits to Dr. Cheney. As soon

as I feel up to it, I'm going to study it all and try to relate it to the

info/expriences I've been reading on the net. I saw one report that

mentioned that I have high levels of alpha interferon. would that mean

that I'm a poor candidate for treatment with oral interferon? I'll have to

quote the sentence for you all next time and maybe some of you can help me

figure it out.

Did I mention that I got the name of a doctor over here from one of the

CFIDS websites (I don't remembe which one)? It said that she was very

knowledgeable and supportive of CFIDS patients. I called her office and

was told that she only takes referrals from other doctors (she's a

rheumatologist). I said, okay, I don't understand that, because I was

initially diagnosed by a rheumatologist and was self-referred, but I'll get

a referral. Then the receptionist said that she'd spoken to the doctor and

the doctor said she didn't want to take any CFIDs/FMS patients! I asked if

she couold refer me to someone else and they said to ask the Hawaii Medical

Association. The HMA does not give out referrals--I tried that route

before.

After i hung up I felt depressed, hurt and angry for a time. I don't know

who recommended this woman as a great doc, but I sure got the brush-off. I

pay cash and have Medicare too, but they didn't even ask about my

insurance. I guess my pride was hurt--I've never had a dr. refuse to see

me because I have a certain kind of condition. Does this seem weird to

anyone else?..

I am going away for a week, on Saturday, to try out a job I've been offered

(nothing very lucrative or exciting). I really need the money, but I'm

worried about my disability benefits, etc. I have to give it a try,

though. Keep the list coming, and I'll try to wade through it when I get

back. Wish me luck.

I'll keep you all in my thoughts and prayers, if that's okay.

Love and peace,

Teeza

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  • 5 months later...

In a message dated 9/17/99 4:13:56 AM Eastern Daylight Time,

candidiasisonelist writes:

<<

Steve,

In answer to your question about garlic...as much as I know about garlic, it

is quite effective against candidiasis expecially when ingested raw. I have

never heard of candida becoming resistent to it.

You may want to try monolaurin instead. That's what I take--there are a

number of studies (I have seen some on the web, too) re: monolaurins unique

ability to deal with virus, fungus, and bacteria, a wide-spectrum effect,

and even if a strain mutates it cannot become resistent to monolaurin.

Also, it does not have the liver damage that allo treatments often incur.

I would use and do use garlic a lot in my food, but I don't feel its strong

enough in causing the 95% die-off that is necessary to cure systemic

candidiasis.

Feel free to email me if you need more info on monolaurin

Hope this is of some help!

Judith Preston

jlpresto@...

Nagoya, Japan

>>

judith,

hi saw your message to steve and i was wondering if i could get the info on

monolaurrin i have so many troubles with yeast looking for more ways to kick

it in the bum to put it nice

raven

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I would also like this information. How is this on your tummy. Myra

Re: Digest Number 118

> From: GRREENGRRL@...

>

> In a message dated 9/17/99 4:13:56 AM Eastern Daylight Time,

> candidiasisonelist writes:

>

> <<

> Steve,

>

> In answer to your question about garlic...as much as I know about garlic,

it

> is quite effective against candidiasis expecially when ingested raw. I

have

> never heard of candida becoming resistent to it..

>

> You may want to try monolaurin instead. That's what I take--there are a

> number of studies (I have seen some on the web, too) re: monolaurins

unique

> ability to deal with virus, fungus, and bacteria, a wide-spectrum effect,

> and even if a strain mutates it cannot become resistent to monolaurin..

> Also, it does not have the liver damage that allo treatments often

incur..

>

> I would use and do use garlic a lot in my food, but I don't feel its

strong

> enough in causing the 95% die-off that is necessary to cure systemic

> candidiasis..

>

> Feel free to email me if you need more info on monolaurin

>

> Hope this is of some help!

>

> Judith Preston

> jlpresto@...

> Nagoya, Japan

> >>

> judith,

> hi saw your message to steve and i was wondering if i could get the info

on

> monolaurrin i have so many troubles with yeast looking for more ways to

kick

> it in the bum to put it nice

> raven

>

> > _

>

> Subscription URL: /subscribe.cgi/candidiasis

>

>

> Send blank message to this e-mail address if you want to:

>

> TO UNSUBSCRIBE !!!!!!!!! :

>

> candidiasis-unsubscribeonelist

>

> To change status from normal to digest:

> candidiasis-digestonelist

>

> To change status from digest to normal:

> candidiasis-normalonelist

>

> To subscribe:

> candidiasis-subscribeonelist

>

>

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  • 6 months later...
Guest guest

In a message dated 4/16/00 3:45:53 PM Pacific Daylight Time,

egroups writes:

<< Abilitations catalog has great sensory things. >>

Leah:

Let me know if you need one.....I get these all the time.....

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Guest guest

laura, send it on, we all know how long it takes to get catalogs when you

order and are a new customer......heheh they dont have my money yet so dont

feel obligated to send me one...lmao leah

ps YOU DO STILL HAVE THE ADDRESS????

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  • 1 month later...
Guest guest

Digest Number 118

> ------------------------------------------------------------------------

> Enjoy the award-winning journalism of The New York Times with

> convenient home delivery. And for a limited time, get 50% off for the

> first 8 weeks by subscribing. Pay by credit card and receive an

> additional 4 weeks at this low introductory rate.

> 1/3102/0/_/619765/_/956118073/

> ------------------------------------------------------------------------

>

>

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Guest guest

Digest Number 118

> ------------------------------------------------------------------------

> Enjoy the award-winning journalism of The New York Times with

> convenient home delivery. And for a limited time, get 50% off for the

> first 8 weeks by subscribing. Pay by credit card and receive an

> additional 4 weeks at this low introductory rate.

> 1/3102/0/_/619765/_/956118073/

> ------------------------------------------------------------------------

>

>

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  • 1 year later...
Guest guest

SJ,

I drank occasionally, just socially, about 5 years ago and then I found out

I had hepatitis c.

Thank God I had a doctor that cared and told me to not drink any alcohol at

all with this and that it is a deadly combination.

I have stayed away from the alcohol since then, I have a husband and 4

children, ranging in age from 6 years old to 18. They are more important to

me than an occasional drink or two.

At the time I found out, I was feeling very tired and couldn't figure out

what was wrong with me.

I knew that something was going on in my body.

Since then, no alcohol, a few supplements and I am doing great!

My last viral load was 195,000 and I don't have the other figures right now,

they are all great, though. All tests are normal, no elevations whatsoever

and my hepatologist said I am not even a candidate for treatment!!!!

I'm curious if anyone has ever heard that?

My viral load dropped when I quit drinking all together and has stayed that

way since.

Do we have to have bad blood test results in order to receive treatment?

I am not wanting to receive treatment for many reasons, but I try to

encourage other friends whom are.

I know why my blood tests are so good, it's because I have cut the alcohol

out.

Take care,

Sher

-----------------------------------------------------

Click here for Free Video!!

http://www.gohip.com/free_video/

[ ] Digest Number 118

>

>

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Guest guest

--- Mark & Sherry DeBoer <deboerm@...> wrote:

All tests are normal, no

> elevations whatsoever

> and my hepatologist said I am not even a candidate

> for treatment!!!!

> I'm curious if anyone has ever heard that?

> My viral load dropped when I quit drinking all

> together and has stayed that

> way since.

> Do we have to have bad blood test results in order

> to receive treatment?

No. You can have normal blood tests and still have

damage occurring in your liver. In fact, it is fairly

common to have normal liver function tests even when

you have cirrhosis. Also, it is a characteristic of

this virus for the ALT and AST to be only slightly

elevated, and never get really high, although they do

sometimes. They will also fluctuate frequently.

However, if your LFT are consistantly normal that is

USUALLY a fairly good indication that things are good.

The viral load also has no real correlation with how

much damage is occurring in the liver. It is how much

damage there is in your liver that determines if you

are a candidate for treatment or not. The only way to

know that is to have a biopsy.

Claudine

__________________________________________________

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  • 1 year later...

For traditional Biofeedback (BFB), I have used www.bio-medical.com in Warren Michigan for years. They have very sophisticated EMG (and other units) as well as EMG home trainers that are inexpensive

Bob

wrote:

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3701 National Drive, Ste 222, Raleigh, NC 27612

(V) 919-783-8411; (F) 919-571-8041

WWW.CarolinaCNS.COM

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  • 1 year later...

I actually do still use it a bit. It's about 30 years old now. I really

don't use a blender for much stuff and didn't like having to clean up

the extra jar and the transferring of stuff. For about 20 years I have

been using a hand held " stick " blender that you use right in the working

bowl or pot. For about 20 years I had a " Bamix " stick blender, but a few

years ago the switch went bad. Now I use a Braun stick blender. I make

my smoothies in a wide mouth qt jar with it. The stick blenders are nice

but won't get stuff as finely ground as a blender or Vitamix. And they

don't do ice very well unless you pre break it into smaller chunks first.

My sister got a newer Vitamix about a year ago and loves it. But she

does more cooking and baking than I do. She made ice cream and ground

flour with it.

I have heard that if you go to the Vitamix web site, there is a way to

get them at a discount. I heard this a couple of years ago, so I'm not

sure if I remember it absolutely right. I believe you have to get a

phone # and call the factory directly and ask for the refurbished

items. The discount can be $50 - 100 +-, but you may have to wait a

month or longer for one to be available.

Carol K

>Message: 2

> Date: Wed, 24 Dec 2003 09:58:08 -0500

> From: " Patti Mount " <Patti@...>

>Subject: Re: Re: Raw Eggs

>

>Hi Carol,

>

>I am considering purchasing a Vitamix... can I ask what happened to yours that

you make mention of it in the past

>tense?

>

>Thanks for any feed-back, Patti

>

>

>

>>I also use the whole egg and when I had a Vitamix I used the shell too.

>>

>>Carol K

>>

>>

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>I have heard that if you go to the Vitamix web site, there is a way to

>get them at a discount. I heard this a couple of years ago, so I'm not

>sure if I remember it absolutely right. I believe you have to get a

>phone # and call the factory directly and ask for the refurbished

>items. The discount can be $50 - 100 +-, but you may have to wait a

>month or longer for one to be available.

This is true, they sell reconditioned (but fully guaranteed) models

at a bit of a discount. You don't have to call the factory directly,

just order normally as the reconditioned models are one of the

choices. But when I ordered a month or so ago their website ordering

wasn't working so you do have to call the customer service number to

order. It came faster than promised. www.vitamix.com.

Jeanmarie

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Just call and ask for a re-furbished one. I ordered them for several of my

family that way.

I use mine regularly, and the Omega juicer from Dr. Mercola which makes

uncooked applesauce!

Best Regards,

Lorenzo

" The reason computer chips are so small is computers don't eat much. "

Re: Digest Number 118

>I have heard that if you go to the Vitamix web site, there is a way to

>get them at a discount. I heard this a couple of years ago, so I'm not

>sure if I remember it absolutely right. I believe you have to get a

>phone # and call the factory directly and ask for the refurbished

>items. The discount can be $50 - 100 +-, but you may have to wait a

>month or longer for one to be available.

This is true, they sell reconditioned (but fully guaranteed) models

at a bit of a discount. You don't have to call the factory directly,

just order normally as the reconditioned models are one of the

choices. But when I ordered a month or so ago their website ordering

wasn't working so you do have to call the customer service number to

order. It came faster than promised. www.vitamix.com.

Jeanmarie

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.554 / Virus Database: 346 - Release Date: 12/20/03

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  • 11 months later...

I'm too new at this to be an expert, but had my second fill last Monday

before Thanksgiving. I think we've about hit the sweet spot. I can eat even

small pieces of turkey and anything else I've tried since going back on

solids yesterday. But can't eat a whole lot. Nothing hurts; nothing gets

stuck, but I fill up on what's considered a reasonable amount with the band.

I know we all react differently, though. I'm personally thankful that this

is not painful. It's the easiest, least painful way I've EVER lost weight.

Maybe you should check with your doctor?

Banded 10-8-2004

255/227.5/135 or less

8 PM 11/29/2004 +0000, you wrote:

>no matter how

>much I chew, how small the bites are, it always hurts for the first few

>bites. I assumed this was normal. I think I thought wrong??

" In God We Trust " - Motto of the United States of America

" Congress shall make no law respecting an establishment of religion, or

prohibiting the free exercise thereof... " First Amendment to the US

Constitution

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  • 7 months later...
Guest guest

C,

Hello! I have another appointment with the ONC on the 27th. By then all the

results and numbers should be in. I have never been PCR neg but I was hoping

for a continued downward trend. The way he talked there was no improvement.

I guess we'll see.

He isn't really pushing for a BMT but he is pushing to line everything up for

one just in case. I have a lot of confidance in this ONC and trust his

judgement but that doesn't make the possibility of a bad future any less scary.

I'll kepp you all posted!

Smile,

Herring

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