Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 Hi , Many people on Gleevec do have larger red cells. Do you know what your RDW, MCV, MCH and MCHC were? For many of us these counts are on the high side or slightly above the normal limits and there's nothing to be concerned about. I guess what I would want to know in your case is, how big is big? Try not to worry (I know easier said than done), Tracey > Hi everyone -- > > I was just in for my three-month check on the fish test and am still fish negative. There was a change, however, in my red blood cells -- apparently they are enlarged. They have taken a thyroid test and will be doing an abdominal ultrasound on Thurs. Was wondering if anyone else has had anything like this. > > The question they are rolling around in their heads is whether or not I may have another myeloproliferative disease in addition to the cml. > > I am quite concerned, altho, they did say it could just be bounce back from an earlier bout of anemia, or perhaps caused by the gleevec. I am still worrying, tho. > > any thoughts on any of this? anyone?? > > thanks > > chris in minn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 Hi Do you keep old blood test results to compare with? good idea if you don't. I am on 800mg of IM.........and my RBC is suppressed........so I have Gleevec induced anemia. To compensate for this the red cells are larger....this is normal is this situation. My MCV is almost always about 100-101...........vs 85-94 being the normal range. Dr. D I think also said this happens if you were initially treated with hydrea. We were actually concerned when my dropped lower, but then it came back up. Look at your past results and see if this is something totally new? C. At 01:36 PM 7/19/05 -0500, you wrote: >Hi everyone -- > >I was just in for my three-month check on the fish test and am still fish >negative. There was a change, however, in my red blood cells -- >apparently they are enlarged. They have taken a thyroid test and will be >doing an abdominal ultrasound on Thurs. Was wondering if anyone else has >had anything like this. > >The question they are rolling around in their heads is whether or not I >may have another myeloproliferative disease in addition to the cml. > >I am quite concerned, altho, they did say it could just be bounce back >from an earlier bout of anemia, or perhaps caused by the gleevec. I am >still worrying, tho. > >any thoughts on any of this? anyone?? > >thanks > >chris in minn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 Dear Please do not be alarmed. My red blood cells have been enlarged for over 3 years now. At first the doctors thought I had MDS (??) but now they dont know why they are enlarged. It is just normal for me. I think it probably has something to do with the gleevec, but who knows. Anyway, try and not be worried and just keep getting your regular tests done. I am sure the doctors will keep a close eye on it for you! Stay well, Trisha--age 41 Parsons, KS dx 9/99 --- Finsand <chrisfinsand2@...> wrote: > Hi everyone -- > > I was just in for my three-month check on the fish > test and am still fish negative. There was a > change, however, in my red blood cells -- apparently > they are enlarged. They have taken a thyroid test > and will be doing an abdominal ultrasound on Thurs. > Was wondering if anyone else has had anything like > this. > > The question they are rolling around in their heads > is whether or not I may have another > myeloproliferative disease in addition to the cml. > > I am quite concerned, altho, they did say it could > just be bounce back from an earlier bout of anemia, > or perhaps caused by the gleevec. I am still > worrying, tho. > > any thoughts on any of this? anyone?? > > thanks > > chris in minn > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 Thanks, tracey. I have no idea how big. good question. when I next talk to the doc, I'll ask that. appreciate your input chris [ ] Re: enlarged red blood cells Hi , Many people on Gleevec do have larger red cells. Do you know what your RDW, MCV, MCH and MCHC were? For many of us these counts are on the high side or slightly above the normal limits and there's nothing to be concerned about. I guess what I would want to know in your case is, how big is big? Try not to worry (I know easier said than done), Tracey > Hi everyone -- > > I was just in for my three-month check on the fish test and am still fish negative. There was a change, however, in my red blood cells -- apparently they are enlarged. They have taken a thyroid test and will be doing an abdominal ultrasound on Thurs. Was wondering if anyone else has had anything like this. > > The question they are rolling around in their heads is whether or not I may have another myeloproliferative disease in addition to the cml. > > I am quite concerned, altho, they did say it could just be bounce back from an earlier bout of anemia, or perhaps caused by the gleevec. I am still worrying, tho. > > any thoughts on any of this? anyone?? > > thanks > > chris in minn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 Thanks, . unfortunately I haven't kept past results, but you can bet I'll start to now. chris Re: [ ] enlarged red blood cells Hi Do you keep old blood test results to compare with? good idea if you don't. I am on 800mg of IM.........and my RBC is suppressed........so I have Gleevec induced anemia. To compensate for this the red cells are larger....this is normal is this situation. My MCV is almost always about 100-101...........vs 85-94 being the normal range. Dr. D I think also said this happens if you were initially treated with hydrea. We were actually concerned when my dropped lower, but then it came back up. Look at your past results and see if this is something totally new? C. At 01:36 PM 7/19/05 -0500, you wrote: >Hi everyone -- > >I was just in for my three-month check on the fish test and am still fish >negative. There was a change, however, in my red blood cells -- >apparently they are enlarged. They have taken a thyroid test and will be >doing an abdominal ultrasound on Thurs. Was wondering if anyone else has >had anything like this. > >The question they are rolling around in their heads is whether or not I >may have another myeloproliferative disease in addition to the cml. > >I am quite concerned, altho, they did say it could just be bounce back >from an earlier bout of anemia, or perhaps caused by the gleevec. I am >still worrying, tho. > >any thoughts on any of this? anyone?? > >thanks > >chris in minn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 thanks so much for the reassurance. I really appreciate it. chris Re: [ ] enlarged red blood cells Dear Please do not be alarmed. My red blood cells have been enlarged for over 3 years now. At first the doctors thought I had MDS (??) but now they dont know why they are enlarged. It is just normal for me. I think it probably has something to do with the gleevec, but who knows. Anyway, try and not be worried and just keep getting your regular tests done. I am sure the doctors will keep a close eye on it for you! Stay well, Trisha--age 41 Parsons, KS dx 9/99 --- Finsand <chrisfinsand2@...> wrote: > Hi everyone -- > > I was just in for my three-month check on the fish > test and am still fish negative. There was a > change, however, in my red blood cells -- apparently > they are enlarged. They have taken a thyroid test > and will be doing an abdominal ultrasound on Thurs. > Was wondering if anyone else has had anything like > this. > > The question they are rolling around in their heads > is whether or not I may have another > myeloproliferative disease in addition to the cml. > > I am quite concerned, altho, they did say it could > just be bounce back from an earlier bout of anemia, > or perhaps caused by the gleevec. I am still > worrying, tho. > > any thoughts on any of this? anyone?? > > thanks > > chris in minn > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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