Re: Suzan & ,

[Guest guest]

!

So nice to hear from you and so happy that you've been able to

achieve PCRU on 300mg. I remember you always had difficulty with the

rash, sorry to hear that its still around.

I've been at 400mg for 5 yrs and my PCR results have been hovering at

3 log for the longest time then suddenly jumped up 1 log in 3

months. Due to the sudden increase, a mutation analysis was

performed, its just part of the protocol. Of course this sent me into

a frenzy, although I felt positive you just never know what life has

in store for you. Thankfully the results came back negative. My

doctor and I still felt it was time to up my dose to try to achieve

PCRU (4 log reduction).

I've been at 800mg for a week now, the first few days I felt fine

but in the last few days I've felt a bit of nausea and bloating. I

think I just may have to adjust my lifestyle and eating habits a bit.

Great hearing from you and all the best.

Suzan

> So good to see a post from you two. I don't post much anymore, but

am

> still out here. I am doing well for the most part and am still

PCRU

> on a lower dose than most. Dr. Sawyers has me on 300 mg. of

gleevec

> and says I respond to the 300 mg. like most respond to 600mg. I

still

> have fatigue, the rash, fluid retention, cramping, & a few other

side

> effects that pop up. Most of the side effects don't affect me at

the

> same time, altho' the fluid retention, rash and fatigue are with me

> most of the time. I ignore them as much as possible and enjoy life

at

> a leisurely pace.

>

> My best to everyone.

>

> Hugs from Wyoming,

> Bartlett

> diag. Oct. 97

> Gleevec beginning Aug. 99, Phase one trial, 600 mg.

> now PCRU on 300 mg.

[Guest guest]

Dear Suzan:

It is nice to see your name on this list. I hope the increased dose

will work for you.

I'm on 800 a day, and these days I do not make excuses not to take

it. I've only had a 1.5 log reduction in all this time. Right now,

perhaps because of the summer and heat, I'm feeling the side effects

of the drug, not like interferon, but still definite.

I hope that you'll get the 0 PCR. MJHodor

- In , " suzanmcnamara " <suzmcnamara@s...> wrote:

> !

>

> So nice to hear from you and so happy that you've been able to

> achieve PCRU on 300mg. I remember you always had difficulty with

the

> rash, sorry to hear that its still around.

>

> I've been at 400mg for 5 yrs and my PCR results have been hovering

at

> 3 log for the longest time then suddenly jumped up 1 log in 3

> months. Due to the sudden increase, a mutation analysis was

> performed, its just part of the protocol. Of course this sent me

into

> a frenzy, although I felt positive you just never know what life

has

> in store for you. Thankfully the results came back negative. My

> doctor and I still felt it was time to up my dose to try to achieve

> PCRU (4 log reduction).

>

> I've been at 800mg for a week now, the first few days I felt fine

> but in the last few days I've felt a bit of nausea and bloating. I

> think I just may have to adjust my lifestyle and eating habits a

bit.

>

> Great hearing from you and all the best.

>

> Suzan

>

>

>

>

> > So good to see a post from you two. I don't post much anymore,

but

> am

> > still out here. I am doing well for the most part and am still

> PCRU

> > on a lower dose than most. Dr. Sawyers has me on 300 mg. of

> gleevec

> > and says I respond to the 300 mg. like most respond to 600mg. I

> still

> > have fatigue, the rash, fluid retention, cramping, & a few other

> side

> > effects that pop up. Most of the side effects don't affect me

at

> the

> > same time, altho' the fluid retention, rash and fatigue are with

me

> > most of the time. I ignore them as much as possible and enjoy

life

> at

> > a leisurely pace.

> >

> > My best to everyone.

> >

> > Hugs from Wyoming,

> > Bartlett

> > diag. Oct. 97

> > Gleevec beginning Aug. 99, Phase one trial, 600 mg.

> > now PCRU on 300 mg.