Guest guest Posted December 9, 2008 Report Share Posted December 9, 2008 I am off the revlimid, after almost 2 months. It seems I didn't really have enough p17. My white count went up to 200,000. My onc said, it just wasn't working. The next game plan is leukerin, small pill doses. I have had a mouth sore, that has effected the nerves in my jaw. The onc didn't know if it was t cell or cll. I had one similiar when I saw Byrd and its was not virial. I called the onc on call and my druggist Sat. and I found something that seems to be helping it. Its a steroid mouth swish. The place in my mouth hurt to walk or move. I was to start the leukerin last Monday. I haven't thought about it enough and I wanted to get all of the revlimid out of my system. I am so weak, I am spending most of my time on the bed or couch. It is certainly miserable. Dr Furman if you have anything on the leukerin, I would like to hear from you. I am on valtrex. Fran Bullock Quote Link to comment Share on other sites More sharing options...
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