Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 Hi Wally, Sorry that you had to go through so much! Fortunately, you seem to able to keep up your spirit. That makes a lot of difference. It takes time to recover after a chemo. What are your Hgb and platelet counts? Low RBC can cause the fatigue. Wishing you the best, Andy Reply to Andy > Hi Andy; > Well, I just was in the middle of telling you my CLL story when I > I got cut off and wound up back on AOL. There might be a limit on the > number of characters.Here's my quick version. > 1. 1994 Colo-rectal cancer; 2 very complicated surgeries. No recurance. > 2. 2002 Treated with prednisone for ITP for almost 1 year. My numbers, > which were very low climbed back to normal right about the time that my > spleen was due to be removed.(numbers referred to were Platelets. > 3. 2004 Moved to New York state and visited every type of MD that I > had visited in the past. > 4. 2005 January; Set up routine visits with 6 or so specialists. My > oncologist is Dr. Diamond in Cornwall, NY.They diagnosed me as > having CLL and I watched and waited until August of that year. In late > August my WBC went to 133,000. My jaws puffed up and the cancerous > cells were a week or less away from invading my left eye. My Doctors > dropped everything and started chemo on Friday and continued the chemo > on Saturday and Sunday and into the next week. The WBC dropped like a > rock and still is there! I finished up my chemo in February of 2006 and > am still in that mode.I have researched both ITP and CLL and there > appears to be a link, although rare, between the two. I'm still > visiting my Doctor every 2 weeks. I've had some strange things happen > to me that must be side effects from the: fludarabine, cxtoxan, and > rituxin that I received. My energy is not what it was. I live on the > 3rd floor and when I hit my door, I'm pooped! > > Regards to Everyone; > > Wally > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 > > Hi Wally, > > Sorry that you had to go through so much! Fortunately, you seem to able to > keep up your spirit. That makes a lot of difference. > > It takes time to recover after a chemo. What are your Hgb and platelet > counts? Low RBC can cause the fatigue. > > Wishing you the best, > > Andy > > > Reply to Andy > > > > Hi Andy; > > Well, I just was in the middle of telling you my CLL story when I > > I got cut off and wound up back on AOL. There might be a limit on the > > number of characters.Here's my quick version. > > 1. 1994 Colo-rectal cancer; 2 very complicated surgeries. No recurance. > > 2. 2002 Treated with prednisone for ITP for almost 1 year. My numbers, > > which were very low climbed back to normal right about the time that my > > spleen was due to be removed.(numbers referred to were Platelets. > > 3. 2004 Moved to New York state and visited every type of MD that I > > had visited in the past. > > 4. 2005 January; Set up routine visits with 6 or so specialists. My > > oncologist is Dr. Diamond in Cornwall, NY.They diagnosed me as > > having CLL and I watched and waited until August of that year. In late > > August my WBC went to 133,000. My jaws puffed up and the cancerous > > cells were a week or less away from invading my left eye. My Doctors > > dropped everything and started chemo on Friday and continued the chemo > > on Saturday and Sunday and into the next week. The WBC dropped like a > > rock and still is there! I finished up my chemo in February of 2006 and > > am still in that mode.I have researched both ITP and CLL and there > > appears to be a link, although rare, between the two. I'm still > > visiting my Doctor every 2 weeks. I've had some strange things happen > > to me that must be side effects from the: fludarabine, cxtoxan, and > > rituxin that I received. My energy is not what it was. I live on the > > 3rd floor and when I hit my door, I'm pooped! > > > > Regards to Everyone; > > > > Wally > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2006 Report Share Posted October 29, 2006 > > Hi Wally, > > Sorry that you had to go through so much! Fortunately, you seem to able to > keep up your spirit. That makes a lot of difference. > > It takes time to recover after a chemo. What are your Hgb and platelet > counts? Low RBC can cause the fatigue. > > Wishing you the best, > > Andy > > > Reply to Andy > > > > Hi Andy; > > Well, I just was in the middle of telling you my CLL story when I > > I got cut off and wound up back on AOL. There might be a limit on the > > number of characters.Here's my quick version. > > 1. 1994 Colo-rectal cancer; 2 very complicated surgeries. No recurance. > > 2. 2002 Treated with prednisone for ITP for almost 1 year. My numbers, > > which were very low climbed back to normal right about the time that my > > spleen was due to be removed.(numbers referred to were Platelets. > > 3. 2004 Moved to New York state and visited every type of MD that I > > had visited in the past. > > 4. 2005 January; Set up routine visits with 6 or so specialists. My > > oncologist is Dr. Diamond in Cornwall, NY.They diagnosed me as > > having CLL and I watched and waited until August of that year. In late > > August my WBC went to 133,000. My jaws puffed up and the cancerous > > cells were a week or less away from invading my left eye. My Doctors > > dropped everything and started chemo on Friday and continued the chemo > > on Saturday and Sunday and into the next week. The WBC dropped like a > > rock and still is there! I finished up my chemo in February of 2006 and > > am still in that mode.I have researched both ITP and CLL and there > > appears to be a link, although rare, between the two. I'm still > > visiting my Doctor every 2 weeks. I've had some strange things happen > > to me that must be side effects from the: fludarabine, cxtoxan, and > > rituxin that I received. My energy is not what it was. I live on the > > 3rd floor and when I hit my door, I'm pooped! > > > > Regards to Everyone; > > > > Wally > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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