Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 Charlie: Dr. Hamblin has already answered your question, but I thought I would chime in. Dr. Hamblin is a CLL expert. Reading his and Dr. Furman's posts on another board has kept me from getting unnecessary treatment more than once. I was told I needed treatment in late 06. I was told by my next Doctor that I needed treatment in 08. I then got a Doctor who is not a CLL expert, but consults with Dr. Byrd who is one. I didn't get those previous treatments and am still not close to needing treatment according to the guidelines. Our bodies will only withstand a limited number of treatments. Why waste one if we don't need it. I did have my initial treatment with RF in 05 and although it didn't hold long as I have the 17p deletion, it has given me 6 years of almost symptom free CLL. I would definitely get a second opinion and perhaps consult with one of the CLL experts. However you just received a response from Dr. Hamblin right here. And he is one of the best in the world. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2011 Report Share Posted June 5, 2011 May I ask what other boards Dr Furman and Dr Hamblin are on. Jan On Sun, Jun 5, 2011 at 2:14 PM, Dave wrote: > Charlie: > > Dr. Hamblin has already answered your question, but I > thought I would chime in. Dr. Hamblin is a CLL expert. > Reading his and Dr. Furman's posts on another board has > kept me from getting unnecessary treatment more than once. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 My husband, , was diagnosed as having CLL in June of 2004, stage 0. 's oncologist said that he did not need treatment at the present but would probably need treatment within approximately 6 months. Even I knew that was not so. We fired the oncologist and found another who cared enough to inform himself concerning the guidelines for treatment. When the time looked inevitable 3 1/2 years later, he asked if we would like to see a specialist first. What a relief, as I was not looking forward to bringing it up. The oncologist's office made arrangements for to see O'Brien, and he and she worked together on 's behalf. First Cyclosporin and then FCR. remains in remission, CR. My hero. Warm wishes, Jan Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.