Years in W&W (was: Question about cbc result)

[Guest guest]

In spite of having a number of negative prognostic factors

(ZAP-70 positive, diagnosed young, being male, 6d deletion,

unmutated, etc.) I managed to stay in watch and worry for 8

years.

All I did in those days was to take zinc to keep my copper

level lower, to watch my diet, exercise, and to drink lots

of green tea.

I consider myself quite fortunate to avoid treatment for so

long. I know 1/3 of patients never need treatment, but few

of them have my negative factors.

Add to that now an 11q deletion (which I probably had before

HDMP+R revealed it), and the last four years hasn't been as

smooth. But I did have a wonderful 8 years.

Oh, and seeing a top CLL doc early on didn't hurt either.

Robin wrote:

I am still W & W, it's now been almost 7 years.

The only reason I would want to treat now would be if

someone could guarentee that I'd have a bit more energy

(which to the best of my knowledge isn't possible)and I

wouldn't mind not having the night sweats, but I can live

with these.

BTW, what are the options, if any, for treating my anemia?