Thank you

[Guest guest]

Dear ,

It seems like on a regular basis people are   writing to the group rather than

to the individuall. I think that individual members need to be reminded that

they are not following the purpose of the group and to stop wasting other

member's time who are focused on the original purpose.

 

In fact that person when writing outside the  original purpose needs an email

stating that the information  is not related to the original purpose and to

stop doing it. It may take that to enforce it.

 

Thany you for all your effort.

 

Sincerey,

Bev Lutrell

 

From: <jb50192@...>

Subject: On or off topic

Date: Sunday, March 20, 2011, 1:49 PM

 

Folks - coming back and browsing through the postings I find that we seem

frequently to have abandoned our original purpose, as listed below:

" This is a group soliciting postings of general and serious medical interest to

patients with CLL or SLL. We look for and discuss information of an educational

and medically informative nature, and encourage postings from individuals with

medical issues and problems relating to CLL or SLL. "

I believe that, with the help of the doctors on our group and with a well

informed patient body, we have become a leading group in the dissemination of

CLL medical information.

We should try to stay on-topic and stay away from politics, alternate medicine,

being a " support group " .....There are groups that deal with many various aspects

and do a great job of it (CLL Forum is an example). Our scope is intended to be

more focused.

We will be looking a little harder at postings, discouraging the " off-topic "

stuff, and returning the group to the high level of medical excellence that it

was intended to be and that it became.

Thank you,