Guest guest Posted January 5, 2011 Report Share Posted January 5, 2011 RIGHT NOW !!! There is legislation in Congress to Change procedure with the FDA. It is called the Compassionate Access Act designated H.R. 4732. The compassionate act will remedy many of the complaints and difficulties that we recently have addressed. Anyone wanting the details should go to Abigail-Alliance.org In essence the bill allows patients with serious disease quicker access to successful phase I drugs and devices. Much earlier than current policies allow. In essence, quite possibly based on the wording of this legislation, Cal 101 (or other successful phase I CLL tx) would possibly be available to us all possibly as early as this year....If this legislation, H.R. 4732 can get passed. Every one of us as well as our families should be heavily involved in helping this legislation get passed. I HAVE DONATED TO THIS CAUSE. THE BALL IS ROLLING AND THEY NEED OUR HELP. ALL OF US SHOULD BE CALLING OUR CONGRESSMEN FOR SUPPORT OF THIS LEGISLATION. IMO , , the CLL research organizations, and anyone else with a public voice dedicated towards CLL patients should be behind this cause. Thanks, everyone for reading and calling your Congressman, Leo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2011 Report Share Posted January 8, 2011 The Abigail Alliance has a Facebook page. Just thought others might like to know this. Jan Quote Link to comment Share on other sites More sharing options...
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