Re: lobbying for change with the FDA

[Guest guest]

Hello, , Karni and members,

If someone volunteers to compose said email, it will be

no problem to automatically append it to every

Individual email and Digest.

Happy New Year to all,

>

> I have no sense of how political lobbying works but I would suggest that we

> email our own congressman (House reps and Senators) daily on this matter.

> Perhaps someone could compose an appropriate email message on this point,

> encompassing the issues for CLL as well as the general issue and this template

> could be provided for all who choose it to use and to use repeatedly. I would

> hope that the List Managers would agree to include a reminder about the

> importance of the message and a copy to be included with each issue of the

> digest (for folks like me who only read the digest) for the next year or so

> until some helpful changes are made.

[Guest guest]

How large is our CLL list? I would think that letters to Congress, FDA,

anyone else appropriate signed by ALL OF US - one long long letter - might

make an impact.

Bonnie

_____

From: [mailto: ] On Behalf Of

-owner

Sent: Monday, January 03, 2011 11:48 AM

Subject: Re: lobbying for change with the FDA

Hello, , Karni and members,

If someone volunteers to compose said email, it will be

no problem to automatically append it to every

Individual email and Digest.

Happy New Year to all,

>

> I have no sense of how political lobbying works but I would suggest that

we

> email our own congressman (House reps and Senators) daily on this matter.

> Perhaps someone could compose an appropriate email message on this point,

> encompassing the issues for CLL as well as the general issue and this

template

> could be provided for all who choose it to use and to use repeatedly. I

would

> hope that the List Managers would agree to include a reminder about the

> importance of the message and a copy to be included with each issue of the

> digest (for folks like me who only read the digest) for the next year or

so

> until some helpful changes are made.

[Guest guest]

Sounds great, . I hope someone volunteers!

Happy New Year,

Karni

If someone volunteers to compose said email, it will be

no problem to automatically append it to every

Individual email and Digest.

[Guest guest]

This is along the lines of what I was thinking!.  A good knowledgeable letter

written and/or coordinated by some of you would be great.  Thanks and

waiting to act.

 

From: Bonnie Le Var <bonnielevar@...>

Subject: RE: Re: lobbying for change with the FDA

Date: Monday, January 3, 2011, 11:56 AM

 

How large is our CLL list? I would think that letters to Congress, FDA,

anyone else appropriate signed by ALL OF US - one long long letter - might

make an impact.

Bonnie

_____

From: [mailto: ] On Behalf Of

-owner

Sent: Monday, January 03, 2011 11:48 AM

Subject: Re: lobbying for change with the FDA

Hello, , Karni and members,

If someone volunteers to compose said email, it will be

no problem to automatically append it to every

Individual email and Digest.

Happy New Year to all,

>

> I have no sense of how political lobbying works but I would suggest that

we

> email our own congressman (House reps and Senators) daily on this matter.

> Perhaps someone could compose an appropriate email message on this point,

> encompassing the issues for CLL as well as the general issue and this

template

> could be provided for all who choose it to use and to use repeatedly. I

would

> hope that the List Managers would agree to include a reminder about the

> importance of the message and a copy to be included with each issue of the

> digest (for folks like me who only read the digest) for the next year or

so

> until some helpful changes are made.

[Guest guest]

Hi All.

I have been watching this and related threads with great interest as my mom was

recently diagnosed with CLL. For anyone looking for an easy way to contact their

federal and state representatives I suggest using " congress.org " .

Regards,