Re: More patients needed in clinical trials

[Guest guest]

Ramona,

Some of the new kinase inhibitors nay also help platelet counts.

Mighty tempting. With my ITP and CLL, I am considering a trial, but

not until I need treatment. Nothing is free or without risk,

including doing nothingm but that is the option I am choosing right now.

[Guest guest]

I agree. If I don't need it, I don't need it. But, I am trying to make 2

points. was saying that once that trials become available no one will

participate, even though we complain that we want them and quicker approval of

new medication. I am willing. Dr. Byrd said it is still an option, when I do

need it. But how long can the study last and it won't be available? I don't

meet criteria for most Cal 101 or PCI 32765 trials (and if I understand, PCI

32765 works better on the immune system). I took it that these were to prevent

having to get " real " chemo, not in place of. Dr. Byrd said that chemo could

make my ITP worse, which is why he mentioned the inhibitors.

My second point is that I am making decisions based on what he is telling me and

mentally preparing for them. Then he says " you don't need it yet " .

>

> Ramona,

>

> Some of the new kinase inhibitors nay also help platelet counts.

> Mighty tempting. With my ITP and CLL, I am considering a trial, but

> not until I need treatment. Nothing is free or without risk,

> including doing nothingm but that is the option I am choosing right now.

>

>

>