Guest guest Posted May 30, 2011 Report Share Posted May 30, 2011 Hi, My husband finished FCR in May of 2009 (DX 2002) and has begun having symptoms again -- swollen abdomen, lymph nodes in his neck, night sweats, fatigue. His white counts are OK, platelets low, and now RBC of around 8, so anemic. All of this has happened in the last two months. He responded quickly and completely to his FCR -- he had 5 rounds, the 4th round was just Rituxan without the CR. He also was part of a Myvax clinical trial in Portland, OR, which was stopped near the end -- and we never heard another word. We are waiting for a call from our oncologist (not a CLL specialist) and will consult with a CLL specialist before starting any new treatment. There is a CLL specialist near us in Portland, OR at OHSU -- Dr. Spurgeon (I think). Anyone know of him? Other suggestions in the Northwest? Any thoughts about this would be appreciated -- I guess we are off on this journey again, sooner than we had hoped, obviously! Thanks. Alice Quote Link to comment Share on other sites More sharing options...
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