Re: Could this be a side effect of PCI?

September 25, 2011

Lou,

Though it is too early to tell, my overall success with PCI

may be due to the LACK of prolonged and extensive treatments

that were a part of Tom's past experience.

The collateral damage to Tom's immune system from prior TXs

maybe more telling concerning his state of current health

than the failing of PCI. So far, my quality of life that

includes better energy and a feeling of well being I

attribute directly to PCI.

It is heart breaking to hear of Tom's condition in spite of

your joint heroic fight.

My thoughts are with you both.

WWW

September 26, 2011

Thank you Wayne for that thought. I think you are correct

in your assessment of Tom. He saw his Dr. today and his

blood counts are stable and holding. And, I also want to

say that while Tom has some really down days, he also has

good days. He still works like a maniac, travels by air 5X

a week and exercises as much as possible.

I think that his fatigue and skin rashes are due to just

good old CLL. As long as he can stay on PCI the better.

When he had to go off of PCI for three days because of a

high fever, his lymph glands busted out all over. We could

almost see them get larger by the hour. After restarting

PCI, they melted away again. We feel very lucky to be on

this trial.

Wane wrote:

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