Newly Diagnosed

[Guest guest]

Hi Everyone,

I am glad I found this board. I am almost 67 and have

recently been diagnosed with CLL but my stage and actual

prognosis is still under discussion. I am so confused by

all of the tests, deletions, mutations, genetics, etc. And I

want to know as much as possible before my next appointment

with my oncologist. So I will ask straight out if anyone has

any bone marrow results like these: Postive Zap-70, 11q

deletion, unmutated IVGH, no CD38, 24,000 +- white cell

count (normal blood count and cells four months earlier) at

time of diagnosis. I am waiting for results of a CT scan of

abdomen, chest and pelvis.

My mother was diagnosed with CLL in her late 70s and lived

to age 91 with stage 0 the entire time and died from

something unrelated two weeks ago as I was being tested. I

expected the same type of CLL but I guess not. Anyone else

have relative with CLL?

This is why I am so confused. Any help appreciated. Thanks

in advance. I have no idea how long I can remain symptom free.