My error re Revlimid and neuropathy link

[Guest guest]

A few weeks ago I posted either to the group or an

individual that the doctors I'd seen over the last 3 yrs had

decided, after going back and forth, that the main cause of

the numbness in my feet/legs was thalidomide, with

complications probably arising from my spinal stenosis.

Something one doctor had said left me with that impression

but in fact, I got it completely wrong. Since thalidomide

used the same basic M.O. as lenalidomide (Revlimid), I want

to be sure to correct any misapprehensions I may have left

in anyone's mind. My excellent physiatrist confirmed

yesterday that the severe weakness I have in my left foot

could only result from spinal stenosis, not from the drug.

He also read me the report of the neurologist I consulted

last year, which was that spinal stenosis is the major cause

of my problem. The effects of thalidomide, if any, can't be

assessed.

I hasten to add that this same thalidomide gave me 7 yrs of

s CR, after years of far less effective tx results. So

rejoice, all ye Revvies. While you may not be able to rule

out peripheral neuropathy altogether, hopefully it won't

hamper you in your life.

Alas, for several reasons I'm not a candidate for the

surgery that would probably be the next option.

-Frances