Guest guest Posted June 27, 2011 Report Share Posted June 27, 2011 I was dx in 2002 at age 48 with CLL/SLL. Jan 2011 WBC counts jumped up, already had bulky nodes since 2002 but now spleen size more than doubled. Started with combo Treanda / Rituxan, had anaphlytic shock with the Rituxan 1st treatment then 2nd treatment was hospitalized and given slow drip to reduce my sensitivity to it. Reacted to that also, they got the whole dose in me. Continued with the Treanda for 4 more cycles. Treanda was 180mg days 1,2. After 1 treatment all nodes diminished,and WBC came down to 4.4 Had CT after the 4th cycle, spleen still enlarged but all nodes normal sz. again. Just finished my 6th treatment. Side effects hit me hard as I wasn't expecting to have any from what my Dr. told me and from what I had read. Had severe nausea even though I was pretreated for that, Zofran helped, got severe red rash face, chest and back, thrush in my mouth, vagina and intestines were inflamed also, predinsone, and hydroxizine, diflucan, helped all those. Slept a lot, had to take off of work (my Dr. assured me I wouldn't have to) I do physical hard work 1st 2 months had treatment, off work 2 weeks then back to work 2weeks, after all the others was off work 3 weeks worked one week. Looking foward to a long and happy remission! Quote Link to comment Share on other sites More sharing options...
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