Guest guest Posted October 24, 2011 Report Share Posted October 24, 2011 Well, it looks like my second encounter with treatment is approaching much faster than I had thought. My WBCs have been on what seemed a gradual increase since spring of this year, but my most recent 3-month appointment last week showed a steep increase. Just like before my first treatment in '08 (FR), I didn't have a clue things were progressing so quickly, because I have no B-symptoms, only an occasional, slight twinge in a neck node and only a slight decrease in hemoglobin. Platelets and neutrophils are fine, and I've had no immunity issues. Having the WBCs increasing steeply once again after a 2-1/2-year remission makes my marrow seem to be going crazy. It seems rather sudden and strange to me, and I'm finding it hard at times to believe, feeling and functioning as I do. I'll admit to wondering what lies in store for me during and after the treatment I'll be facing in a few months. I've always found it very helpful to read about other people's experiences. While there's no way to predict what path our individual CLL will take or how our bodies will respond, it has helped me to know what the range of possibilities might be. In that spirit, I just wanted to check in to let folks know what's happening with me. Choice of treatment will depend on the outcome of BMB tests and PET scan (first one ever) in January. My onc is thinking perhaps R, or BR, and I'm wondering whether it'll be time to consider a clinical trial. I'd love to be able to benefit from one of the newer, non-chemo options. There's so much more I want to do before my time is up! My best to all, Karni Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.