Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Thanks, Beth, for the reminder. My recollection and impression is that the period of time to avoid close contact with those who get the live nasal spray is the same as for other live immunizations - 30 days. That's so difficult when it involves family members with whom we want to be together. For that reason, it's good to ask everyone in the family to be sure they get the shot and not the spray. There was some discussion and question last year as to where to find the Fluzone (high dose) shot. Amazingly, my internal medicine clinic did not have it, nor had they heard of it. Neither had a number of pharmacies in my area, but I finally found it at Winn Dixie's pharmacy. That situation may have changed by this year, however, since last year was the first year it was available, from what I could tell. Best to all, Karni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Last year I got the mega fluzone shot at Safeway. They had a very aggressive vaccinating program. Then Walgreen's got on board big time. This year my Walgreen's in San Francisco has the over 65 mega shot as well as the other. My husband just got the big one. I'm waiting a few days more to recover from my breast surgery .. not sure if that is necessary or not. I would love it if everyone got their flu shots, but California especially is very anti-vaccination, sigh. That is why we are having a whooping cough epidemic. And my Sierra Foothill county is the least vaccinated in the state. Lots of moms think they are doing their kids a favor and developing strong immune systems for them by bypassing vaccination. I have a hard time keeping my mouth shut on this one. (So I often don't, LOL) Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Beth - Where did you find the information on Fluzone HD, single vial, and non preservative being the best thing for us? I can find lots of information about getting the vaccine, avoiding the live vaccine, etc. but could not find that particular information anywhere in the several posts I read. I would like to be able to take a copy to my doctor. Last year no one in my area or at UCLA that I talked to knew anything about the HD vaccine. Thanks! Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Thank you Beth for this info. In all my ongoing CLL research this is the first time I heard of Fluzone Hi-Dose flu vaccine. Here's some questions about Fluzone Hi-Dose - I'm hoping some of our excellent posters can help with. - Is it a dead vaccine? - Is it safe for CLL patients to get Fluzone Hi-Dose? - I got my 2011 flu vaccine from my PCP last week - but I bet it was not the Fluzone Hi-Dose vaccine. Can someone also get a Fluzone Hi-Dose flu shot AFTER already receiving the weaker regular 2011 flu shot? A BIG thank you to all you posters who take the time to share so much excellent info - Warm regards - Patti Kruse Beth wrote: /message/15941 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Pat, here's the link, but last year it was not as widely distributed, nor available. Should not be problem this year, especially at UCLA... My pulmonologist's partner did not order it, and denied it existed until the man who treats me pulled out his PDA to show him. that was rich. http://www.cdc.gov/flu/about/qa/fluvaccine.htm there are other pages there, but this one covers most of what you'd need. I had the same problem last year, but I see a couple of people have already found it even in the chain drug stores, HD, so it should be easier this year. be well, beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Pattie, just posted the link to CDC for Pat, see other post, but it's not a live vaccine. At the moment it is what CLL patients would be recommended to take since we are considered immune compromised and for those of us over 65, we would have it recommended for that reason as well. It is a higher dose. The question some have is whether we are able to mount an antibody response to any shots. However most doctors who treat CLL still recommend we get it. You could find out if the shot you got was HD, or not, and if not ask about repeating the shot in a few weeks. I believe Dr. Hamblin dealt with that on his blog, however that was last year, and shots are different each year. Year before last the H1N1 was not part of the seasonal flu shot, but this year it is. (as well as many other strains). We don't all mount or not mount responses at the same rate, any more than we seem to do anything much the same. be well, beth fillman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Here's the link to the CDC information sheet about Fluzone Hi-Dose flu vaccine. It explains that Fluzone Hi-Dose vaccines contain 4 times the amount of antigen (the part of the vaccine that prompts the body to make anyibody)compared to the regular flu shots. http://www.cdc.gov/flu/protect/vaccine/qa_fluzone.htm Patti Kruse Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2011 Report Share Posted September 10, 2011 Pat, I had read the same description as Beth .. that the high dose fluzone was single loaded syringe with no preservatives. Here is one link describing that http://www.drugs.com/pro/fluzone.html Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2011 Report Share Posted September 12, 2011 Thank you Beth for the reminder; That time is here again. This message is mainly for UK patients: Although CLL patients may not get the full protection from vaccines, it is recommended that we are vaccinated. Influenza vaccine -is recommended annually before the influenza season. Up to date Pneumococcal vaccination is recommended for all patients. There are different triggers to be on the vaccination recall list. You may be over 65 you may have a co-morbidity that puts you in a high risk category or you may be on the cancer register. It would appear that not all cases get a notification, practices vary and often younger patients can be missed from the list. Advice received from my GP today is to contact your GP surgery in the first two weeks of September, they will then know when vaccination stock will be issued, You may be able to make an appointment then, or will be notified when to contact them. if in doubt do not rely on them contacting you. better to be vaccinated early than join the soup in the waiting area later when risk of infection will be greater. I am booked for October 1st which is the first day my Gp's surgery commences vaccinating. Take care Nick(UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2011 Report Share Posted September 12, 2011 I thought I would field a question that has quite rightly been raised by other patients, which is how important is it for the patient's direct family, within the household. partners and children to be vaccinated against seasonal influenza? I know the suggestion for vaccinating the " herd " , I think professor Hamblin's writings also suggest this. Not a problem getting my GP to accept vaccinating my partner. However, with two pre teens at two different schools, with kids from two different catchment areas, it's quite likely that an influenza virus could make it home. This question becomes more important the less of a response I get from vaccination myself (but will not know). I guess I'm trying to find out what is the recommendation for CLL patients with young children under the same roof and how does this change with disease progression. What is practised in the UK? Nick (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2011 Report Share Posted September 12, 2011 Nick, I don't know the practice in the UK. My guess would be that everyone in the household should be vaccinated, but not with a live virus variety - eg the spray, which obviously children would prefer - because then they are shedding the virus while around you. You might also want to not arrange activities for them which involve you being in close contact with their friends if they have received the live virus. You can't protect them from what goes on in school. When I was teaching we often had parents send very sick children to school because they didn't want to miss work. That means the other important thing would be to encourage hand washing and other measures to lessen the chance of an infection coming home. Good luck! Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2011 Report Share Posted September 12, 2011 That is really going to depend upon the recommendations from your respective governmental agencies. Here in the US, it is now recommended that everyone receive the flu vaccine. Rick Furman, MD Nick Pet wrote: /message/15975 Quote Link to comment Share on other sites More sharing options...
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