CLL in tissue .. where is yours?

[Guest guest]

I had a breast cyst removed last Thursday. I had been

dealing with it for over 10 years. It had been aspirated 3

times, the last being about a month ago when it immediately

refilled. Pathology report today reported CLL cells in the

cyst lining, as determined by the usual stains etc.

I think I've had a naive mental model of my CLL .. I have

had little node involvement until recently but a very high

WBC. So I've thought of CLL as a " liquid " disease, running

around the lymph highways with stopovers in the spleen,

nodes and other not fully understood places. Clearly I've

missed the notion of cells settling or imbedding into

tissue, even though I've read posts of other CLL-ers

discussing this.

So .. would love to hear the experience of others .. where

did your CLL end up and how was it discovered / analyzed in

that location? Stomach? Skin? Where else? Did the tissue

manifestations go away with treatment?

I'm going to post this question on the other forums as well,

so sorry if you see it too many times. Hopefully the

responses will be varied, interesting and educational.

Thanks

Lynn