Guest guest Posted August 19, 2011 Report Share Posted August 19, 2011 , I had a painful lump on my upper back that was a blocked duct or oil gland. For these kinds of things, I've gone first to the dermatologist, who can tell you whether it's derm-related or something deeper. You should see a doctor, in any case. You're in pain...this isn't hypochondria. Best, Karni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2011 Report Share Posted August 19, 2011 I had two lumps. Location - upper back one between neck and shoulder. Dr thought it was fat tissue. I found another Dr and convince him to take out Because it bothered me having two eraser size Lumps that when I found out they were cancerous. Then I saw onc. I had cll/lss. What a quack I had. I am in w & w and Ck blood around once a year with general Dr. Hopefully there a few years left. Would be nice to see my 4 little girls Grow up. Hopefully God blesses me. I would take Lumps out why wait for treatment. Not what Dr like to hear. It's my body :-) Jack Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2011 Report Share Posted August 19, 2011 , It seems to me that anything swollen and causing terrible pain should be seen by some doctor (maybe your primary care provider), as soon as possible. How can you know if it is related if you don¹t have it looked at? Something seems to be amiss! Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 Hi , Please add this recommendation to the growing list of urgent encouragements you have received: Go see your doctor: the pain and swelling is reason enough. Another reason is that as a CLL'er you are to some degree immunocompromised. That may allow infections to take hold more strongly and quickly than would otherwise be the case. Although it may be early, depending on your specific circumstances and the (actual) length of your time with CLL, secondary malignancies are much more common in CLL'ers. Finally, you know the general state of your health -- if you have other conditions (comorbidities) you may be seeing some emerging difficulty related to that. Not to be alarmist -- just get used to advocating for yourself: Insist that your doctor hypothesize, test, perform differential diagnose, and define to you what is going on based on medical evidence. Regards, Tim Klug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 Jack, If you truly have only SLL and it is localized, unlike CLL which would be seen in the blood and/or marrow along with the nodes, it might be curable with early excision and local radiation. Cured! Lots of " ifs " . but you need SLL/CLL expert to help you Most things on your back will be fatty tumors or benign cysts, not nodes. Get an expert- Get a biopsy if there is any doubt. We are all in this together. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 - so sorry to hear about your pain. I recognize all too well your phrase: " I don't want to bother my doctor ... " I've had many health issues and have had to overcome my resistance. Remembering pain & fear can stress my immune system, this has helped me: When the office is open I ask to speak with the nurse. When the sec'y asks what the cause is, I try not to sugar-coat either the problem or my emotional state about it. If the nurse isn't immediately available, they will call you back, almost always that same day in my case. Knowledgeable nurses often have solutions themselves and will also consult with the doctor. You are off the hook! One of them will call you back with answers. No doctor has ever told me I shouldn't have called -- quite the opposite. ----- As far as painful nodes -- a home remedy that's helped me and many others is to take a small square of good wool fabric and soak it in castor oil and apply. I know it sounds weird ... you'll obviously need someone to help -- and of course your nodes may have other causes where this remedy is not " applicable. " -Frances F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 Pain on one side of the back raises the question of shingles to me, meaning that you start taking anti-viral med immediately. lindaQ wrote: Can one have a swollen lymph in the upper left back? I am new to this disease and the Cat scan showed multiple small lymphs in hip, back, chest and shoulders. But now I am in terrible pain with obvious swelling on the left side of back. Don't want to bother my doctor if it is not leukemia related. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 Can I have shingles without a rash? Thanks. Q Wayne McPherson wrote: > Pain on one side of the back raises the question of shingles > to me, meaning that you start taking anti-viral med immediately. > > > lindaQ wrote: > Can one have a swollen lymph in the upper left back? I am > new to this disease and the Cat scan showed multiple small > lymphs in hip, back, chest and shoulders. But now I am in > terrible pain with obvious swelling on the left side of > back. Don't want to bother my doctor if it is not leukemia > related. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 I had the pain for 2 or 3 days before the rash appeared. Then it was too late for the med to prevent 'PHN,' 'post- herpetic neuralgia,' which erased 3 months from my life. If I were you, I'd go to the nearest ER to get a prescription for antiviral medicine of sufficient strength to ward off shingles. Best wishes! wayne Q: Can I have shingles without a rash? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2011 Report Share Posted August 20, 2011 From what I've read on this list over the years, experience of shingles can vary somewhat among individuals. As always, it certainly can't hurt to stay aware of any red bumps or rashes that might appear, in any case. Karni Quote Link to comment Share on other sites More sharing options...
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