Guest guest Posted August 21, 2011 Report Share Posted August 21, 2011 CLL Tracker is an on-line system which records patient information and graphically displays the results of data submitted for all CLL patients to examine. The website was first released in October of 2010 and in that time some 221 patients, worldwide, have submitted their CLL data. If you have not seen the results I would recommend that you visit the website (a sample of the data is shown below). We have now updated the system with the following improvements: .. Questionnaire updated to reflect feedback received. .. User Account functionality added. .. The ability when completing the questionnaire to save your data and return to it at a later date. .. The ability to update your data when changes occur. I would assure everyone that the information/raw data submitted will not, under any circumstances, be passed onto a 3rd party. The information collated is only for the benefit of you. The website can be found at the following address: http://www.clltracker.co.uk I hope that you will find the time to share your experience/data with other CLL patients. Finally, I do apologise to those patients who submitted their information last year, but it is necessary for this data to be re-entered. The new system is built around a User/Patient Control Panel and the CLL patient having the ability to update their information when personal circumstances change. Regards UK, Bournemouth. Dx May 2000. Age 55. 2002 Oral Fludarabine. June 04 and Jan 05 4 weeks of Rituxan. Oct 05/Feb 06 monthly Rituxan and Chlorambucil. July/Dec 08 RFC. Trisomy 12, IgVH mutated, ZAP70 -ve, CD38 -ve. Quote Link to comment Share on other sites More sharing options...
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